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        New Message Board Archives >> Medications, Treatments, Therapies 2005 >> Topamax question
        
(Message started by: robzilla on Jun 22^nd, 2005, 10:55am)

Title: Topamax question
Post by robzilla on Jun 22^nd, 2005, 10:55am

On Friday night 6/17 started 25mg of Topamax and it is just holding the beast back up untill last night about 9pm the beast was trying to get out. Does anyone take anyother pain meds and what is the max dose of Topamax 200mg? Any other ideas would help.

Title: Re: Topamax question
Post by nani on Jun 22^nd, 2005, 11:10am

Hi Rob. I can't help you with Topamax info, I've never used it. Have you been reading the boards? There are many preventative and abortive meds, there's oxygen to abort and there are alternative treatments as well. Is Topamax all that you're using now? Have you tried any other meds? Have you tried oxygen? Tell us more. ~nani

Title: Re: Topamax question
Post by jcmquix on Jun 22^nd, 2005, 11:34am

I do not know of anyone else, but last week when I saw my GP Dr, for my CH, I told him that I was getting them in the middle of the night (12-1 am) and they were lasting about 90 minutes. I told him I tried
1/50mg ULTRAM and it took the BEAST away.

I thought the ULTRAM was a narcodic, but I was told no, its a little different. Well it worked for about 2 weeks, but now I have to take 2/50mg ULTRAMS & 2 Tylonal, just to put some distance between me & the BEAST.
So it did not last long.

The only thing that I have really noticed is that my CH's just keeps changing, what works one time, might not work the next time. My GP Dr could not believe this, but I found that alot of people here are that way..

Just do not give up trying to find something to use to Prevent and something to Abort the CH's, cause it may take some time. But your life will be happier in the long run.

PF days to ALL !!!

Title: Re: Topamax question
Post by Bob P on Jun 22^nd, 2005, 12:12pm

Topomax dosage:

Quote:

Migraine

The recommended total daily dose of TOPAMAX® as treatment for prophylaxis of migraine headache is 100 mg/day administered in two divided doses. The recommended titration rate for topiramate for migraine prophylaxis to 100 mg/day is:

Morning Dose Evening Dose

Week 1 None 25 mg

Week 2 25 mg 25 mg

Week 3 25 mg 50 mg

Week 4 50 mg 50 mg

Dose and titration rate should be guided by clinical outcome. If required, longer intervals between dose adjustments can be used.

For clusters your doc may ramp you faster. People using it for siezures go as high as 400mg/day.

Reading a little further I see they sometimes have people as high as 1,600 mg/day (must be what Hub is on).

Title: Re: Topamax question
Post by unsolved1 on Jun 22^nd, 2005, 12:40pm

I took 200mg a day.

Beware of

Kidney Stones

Title: Re: Topamax question
Post by Gator on Jun 22^nd, 2005, 4:51pm

Topomax made me dumber than a bag of hammers. I couldn't complete a coherent thought. It got so bad, my wife took my car keys away. I was dangerous on the road, because I would just stare off into space at times totally oblivious to what I was doing. The day she took my keys, I nearly rear-ended the vehicle in front of me three times in just a few miles. It also made the attacks worse and more frequent.

Title: Re: Topamax question
Post by sandie99 on Jun 23^rd, 2005, 2:41am

Robzilla,

do you take topamax for the pain?

I used it as a preventative for few weeks. In my case it did not work at all, I had 24/7 ch for 6 days and after 2 PF days I had 11 painful attacks/day. And the side effects!!! They don't call topamax dopeymax for nothing! It was awful. I went back to my doc and luckily she understood that I couldn't continue with it.

Title: Re: Topamax question
Post by bnfreeman on Jun 23^rd, 2005, 9:21am

I used toptmax for about six months. It helped at first then the CH came back when we upped to dosage there was no change except I almost forgot who I was! Like others said it turns you into Dopey. As for the painkillers, I have had to go to the ER many times for Dilaudid because after so much trex nothing else works for me. Sometimes O2 and even then the Dilaudid just masks it, doesn't really stop it. Good Luck,

BF