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Title: Could not accept there wasnt a cure............... Post by seraph on May 26th, 2005, 1:17pm I stumbled upon this website in search for answers. I could not accept that there was no cure for the disease i had, and will not rest until it is completely gone. I am not a doctor, nor anyone with a medical degree. I am just a normal person that would not accept that there was no cure and that found answers to alot of problems that may help many of you. 4 years ago I out of the blue started to have uncontrolable headaches. It came slowly and increased in intesity everyday. It would last 1 hr to 3-6 hrs everyday, three times a day. There was no pattern, it would just come at about the same time everyday. I would get a lump on the back right side of my neck and my body would get all stiff. The right side of my body would become numb, i would lose all motor functions on the right side of my body and being to flap around like a fish out of water. My right eye would become blood shot red and roll and quiver in the back of my head. It feels like someone put your head in a huge clamp on your head and is tightening it until your eyes pop out , all the while someone is sticking a icepick in the back of your brain. I felt as thought I was loosing my mind and wanted to take a gun to my head and just end it. I went to 2 hospitals both couldnt figure out what was wrong with me. (The second one i collapsed on the emergency room floor from overdosing on Excedrin Migraine) The Third i went to in Illinois diagnosed me with Custer Headaches and said there is no cure and will have them for the rest of my life. I could not accept that answer and proceded to find the answer ..... or i would take the rest of my life trying. I finally found a holistic medicine doctor that took me in and decided to help me. He preformed spinal adjustments, but it didnt help. But what did help was the acupuncture to my back and neck that he was giving. Althought it didnt take it away totally it made it not as severe, and relaxed my back muscles. (Everyone that is reading this knows the headaches are bad, but it took the edge off a little bit). I continued to look for answers and found a website with all the signs of my illness, and at the top it said mercury poisoning. The symptoms of tremors, fatigue, headaches, depression, .. everything. Now in College i did alot of Extacy and grinded my teeth really bad. But what i didnt know is i cracked a filling and it was leaking in my mouth for 3 years. (I did more of the drug cause it took away the pain for a couple days, but all it did was make it worse when it came around again) The Mercury ate away at my gum and got in my blood stream, and settled in my muscles in my head and neck. The pain started in the upper back molars in my mouth, and though my head and ended at the base of my neck. It was a map to the pain I was feeling and where the mercury was. Now i took the test on this home page and read some of your messages and every sign of Cluster Headaches is what i have. So i got a blood test to measure the amount of metal in my body and my tin and mercury tested way above normal safe range. (FACT: if you put 1g of mercury into a lake the government has to quarentine the lake / now imagine how your body is gonna react to that) The next day i got my metal filling taken out and replaced with porceline. It was a pretty penny, but I needed to try. I went back to the holsitic doctor and he started to give me celation shots to filter out the mercury in my blood stream and...... IT WORKED!!!! It took like 3 weeks, but the headaches slowly went away. It went from 3 a day at 1-3 hrs a time, to maybe 1 a week for 15 mins and didnt even come full blown. I couldnt believe it. I did it for a year got it all out of my blood and am now going and taking it out of my muscles. I am also getting TMJ treatments, after the full celation, cause the consistent grinding of my teeth and cracking of my head and neck cause it would be so stiff when I get the headaches unpositioned my lower jaw. I dont know how many of you have metal fillings or may have been exposed to mercury or metals, but i wanted to share my story. Dentists will not accept the fact that mercury fillings are bad for you. It is a metal, and should not be in the body. Maybe this can get to a doctor or scientist that hasn’t thought that this might be the problem and can give all the rest of you a cure. Like I said I am not a doctor, nor anyone with a medical degree, just a person that wouldn’t accept no for an answer and knows there is a cure to everything. If i can help one of you that is one less person that has to feel this pain. Please check it out…. It is helping me Ps. Taking 250 mg of Magnesium (vitamin) a day helps. Magnesium is needed for bone, protein, and fatty acid formation, making new cells, activating B vitamins, relaxing muscles, clotting blood, and forming ATP—the energy the body runs on. Insulin secretion and function also require magnesium. Here is the link to the website with the symptoms for Mercury Poisoning http://www.mercury-poisoning-symptom.com/ Godspeed...... Seraph |
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Title: Re: Could not accept there wasnt a cure........... Post by seasonalboomer on May 26th, 2005, 2:02pm Glad you found something that worked for you. Based on what you described it doesn't seem very clear that you suffer from cluster headaches (I know you say you did take the cluster quiz, I'm not sure you interpreted the results correctly). i'm not aware of the icepick in the back of the neck being a prime sympton for a cluster diagnosis, nor have I seen anything about someone's right eye rolling and quivering in the back of their head . Also, if you are losing motor function on one side of your body during these episodes you may want to go see a neuro to get a scan because that is not a symptom of CH, but could be a symptom of something else. As you spent a considerable amount of time on your post it sounds as though you're trolling for some feedback on Chelation Therapy ;). There are some others on the site that may be able to offer you some excellent feedback on this as I believe it has been discussed in the past. So if anyone can "troll" ;) through the archives for the info that has been generated in the past on this subject that would be great. One little piece of info that I've kept in my files is (http://www.quackwatch.org/01QuackeryRelatedTopics/chelation.html) :-X Good luck with your treatments. :-/ Scott ;) |
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Title: Re: Could not accept there wasnt a cure........... Post by Kim Y. on May 26th, 2005, 2:20pm Some of the stuff you stated doesn't sound like CH! Quote:
I am not a Doctor just making an observation. I am glad that you did find something to help you. That is the most important thing. Kim |
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Title: Re: Could not accept there wasnt a cure........... Post by don on May 26th, 2005, 5:44pm It's no wonder the celation shots worked for you. http://www.btinternet.com/~jp1885/who/celation.html |
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Title: Re: Could not accept there wasnt a cure........... Post by seraph on May 26th, 2005, 5:48pm To scott and Kim, Again what brought me to this website was being told from Doctor in the ER cause i couldnt stand the pain and it was going on for 4 hrs, that i did have Cluster Headaches. I didnt want to admit it or accept it cause when he says there is no cure i couldnt handle that. It was to intense of a pain for there not to be a cure. I got Cat scans, testing of all kind, all came back that they couldnt find anything wrong with me. When i went to this webpage right when you come in there are testimony of people and how they feel. This is the one that grabbed me by the balls and got my attention. This is me to a T!! My right eye felt like I took a couple punches, and my right nostril was starting to leak. I got out of bed, and went downstairs, all the while, this pressure in the right side of my brain kept building and building. My right eyelid was beginning to swell shut. I was squinting and it was tearing. I kept looking at the tears coming out of my eyes, convinced there was blood pouring out. I dropped to the floor and pressed my hands so hard against my temples that I thought I was gonna crush my skull, it wasn't helping. I got up and well, I went insane. It's the only thing I think I can describe it.... stark raving lunatic insane! I was pacing from room to room, crying, flinging myself to the floor, getting back up again... holding my head, squeezing my temples, I looked up to the MAN above and literally begged him, that I would do anything, ANYTHING, just make this madness stop. He wasn't in that morning, and I suffered. I wanted to die, just simply that, I wanted death to take me as I just could not deal with this excruciating, horrible, horrible pain. I was chewing Tylenol like tic tacs.. screw swallowing, I was chewing them into a paste... 10 minutes passed, then 20, then 30... I swear my brain was cooked. I mean, the entire right side was numb from my forehead to behind my right ear. I was rocking myself in this chair wimpering like a lost little boy, and then, as suddenly as it started... it was gone.[i][/i] That is stated at the begining of this website. I've taken so many excedrin Migraine that i've puked up black. You still dont believe me.... You know when you have to push inside your eye cause it feels like it cant stop, or you eye turns blood shot red and tears. (my eye spasms, yours might be different, like i said, im not a doctor) Or when you lay down and you have to hold your breath cause the pain is so intense Or when you start sweating in the beginning Or when your back arches and every muscle in your back is spasming. Or the lump on the right side of the neck.... this is for you kim.... During a cluster attack, blood pressure elevates, heart rate increases, the body overheats, a ganglion lump on the back of the neck is quite common which becomes inflamed during an attack and diminishes when the attack subsides. Intolerance to light and sound is much more common with migraine sufferers than cluster sufferers, although some do report the same sensitivity and prefer to be in a quiet dark place to be alone, however, remaining motionless or falling asleep during a cluster attack is NOT POSSIBLE. if you guys want to sit and deal with them that is up to you. I found, HOPEFULLY, a solution with MY life. Its up to you guys what you do with this information, and your life. I was just trying to help. |
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Title: Re: Could not accept there wasnt a cure........... Post by floridian on May 26th, 2005, 6:24pm Chelation may not work by binding up the mercury. It binds up many metals, including calcium. Given the fact that calcium channel blockers are known to help many with clusters, consider that possibility. |
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Title: Re: Could not accept there wasnt a cure........... Post by don on May 26th, 2005, 7:14pm Quote:
Only 1 ER Doc and 4 hours for a DX? Then it must be true. |
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Title: Re: Could not accept there wasnt a cure........... Post by Jonny on May 26th, 2005, 7:43pm Ive had CH for 30 years and have posted on this site everyday for nearly six years and NOT ONE person has ever said that one side of their body went numb. Find a new doc....you do not have CH. |
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Title: Re: Could not accept there wasnt a cure........... Post by BobG on May 26th, 2005, 9:38pm Hey Jonny, that was very nice of you. Very much a Gentleman. seraph, I am not a doctor and can not diagnose. But.... I think I can safely say....... Your are just plain nuts! You do NOT have clusterheadaches. |
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Title: Re: Could not accept there wasnt a cure........... Post by vig on May 26th, 2005, 9:44pm QuickSilver! bummer about the Hg poisoning, but it's not like CH very much at all... though there's a few here with foul breath... [smiley=laugh.gif] SYMPTOMS OF MERCURY POISONING 1. Psychological Disturbances (erethysm) Irritability, Nervousness, Fits of Anger, Memory Loss, Lack of Attention, Depression, Low Self Confidence, Anxiety, Drowsiness, Shyness/timidity, Decline of Intellect, Insomnia, Low Self Control. 2. Oral Cavity Disorders Bleeding Gums, White Patches - Mouth, Stomatitis, Bone Loss Around Teeth, Loosening of Teeth, Ulcers of Gums- Palate- Tongue, Excessive Saliva, Burning of Mouth, Foul Breath, Gum Pigmentation, Metalic Taste. 3. Gastrointestinal Effects Abdominal Cramps, Colitis, Crohn's disease, Gastrointestinal Problems, Diarrhea. 4. Systemic Effects Cardiovascular, Irregular Heart Beat, Changes in Blood Pressure, Feeble or Irregular Pulse, Pain or Pressure in Chest 5. Neurologic Chronic or Frequent Headaches, Dizziness, Ringing or Noises in Ears, Fine Tremors (Hands, Feet, Eye Lids, Tongue) 6. Respiratory Persistant Cough, Emphysema, Shallow or Irregular Breathing. 7. Immunological Allergies, Asthma, Rhinitis, Sinusitis, Swollen Lymph Nodes in Neck 8. Endocrine Subnormal Temperature, Cold Clammy Hands & Feet, Excessive Perspiration, Muscle Weakness, Fatigue, Hypoxia, Edema, Loss of Appetite, Loss of Weight, Joint Pain Anybody got any of these? not me. |
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Title: Re: Could not accept there wasnt a cure........... Post by BobG on May 26th, 2005, 10:58pm on 05/26/05 at 21:44:03, vig wrote:
Yes, I do. 1. Psychological Disturbances Memory Loss Sometimes I forget I have Alzheimer’s. Lack of Attention What was the question again? Shyness/timidity That is why nobody has ever seen me. I hide behind this stupid computer because I’m too shy to meet people. 2. Oral Cavity Disorders And Fits of Anger For me these 2 go together. But not for the symptoms listed. Sometimes when I get pissed I have a shitty mouth. 6. Respiratory Persistent Cough I cough a lot. Is there mercury in cigarettes? 8. Endocrine Excessive Perspiration I live in Las Vegas. It’s summer here. Everybody has that problem. Does sunshine and low humidity give you mercury poisoning? |
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Title: Re: Could not accept there wasnt a cure........... Post by SusieWong on May 27th, 2005, 4:28am on 05/26/05 at 13:17:48, seraph wrote:
IF you do have CH this could very well be a natural remission. If you have found the answer to what ever caused your problems then I am very pleased for you. SusieWong |
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Title: Re: Could not accept there wasnt a cure........... Post by don on May 27th, 2005, 7:02am Quote:
Well there you have it seraph, stop letting people screw around with your oral cavaties |
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Title: Re: Could not accept there wasnt a cure........... Post by Ueli on May 27th, 2005, 9:41am Mercury poisoning you get from Mercury vapor, as from living in a room with lots of spilled Mercury, or being a illegal gold seeker in the Brazilian rain forest, who poison themselves and the whole nature with Mercury. If someone tells you, you have Mercury poisoning from your tooth fillings, he is a crooked quack, a irresponsible scoundrel. Read here about [smiley=smokin.gif] |
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Title: Re: Could not accept there wasnt a cure........... Post by seasonalboomer on May 27th, 2005, 10:02am on 05/26/05 at 17:48:35, seraph wrote:
I appreciate your compassion. As I said in my original posted reply, I am glad you found something that worked for you. Cluster headaches are something that almost anyone that is going to spend some time on this site respects and manages. Part of the value of this website is that many of us learn about various treatments that are both valuable to cluster sufferers and those that have proven to be either marginally helpful, dangerous, or plainly a waste of time. We also develop an eye for presentations and claims that are, quite simply, overly dramatic or seem a little puffed up. And to be honest there Seraph, you lay a lot on folks here in your first ever post on the site to let us know that you found the cure in the form of Chelation Therapy. We're not a bunch of dolts, laying around waiting on the "cure". We're an actively engaged group of people who have this condition that have tried, many successfully, ways to manage our condition and live a full and happy life. And, we're also here to talk through how to deal with not only symptoms directly related to the pain, but the effects that these headaches have on us psychologially, emotionally and to our families. So get over yourself! If you are truly a sufferer of Clusters or some other condition, I'm sorry for you, and again state my pleasure that you have found something that works for you. Spend a little time on this website and learn some, you will see that it is an incredibly valuable place for people who have this condition. Good luck >:( |
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Title: Re: Could not accept there wasnt a cure........... Post by Kim Y. on May 27th, 2005, 10:42am Seraph Quote:
My first time I went to the ER they stayed clueless. They thought I was FOS. Doctor misdiagnosed it as Greater Occipital Nephropathy. Then my second cycle I fianlly got a true DX. None of those symptoms for Mercury poisoning are present here. I again will tell you how very pleased I am that they have been able to help you. Going through life in pain isn't any fun. Kim |
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Title: Re: Could not accept there wasnt a cure........... Post by seraph on May 27th, 2005, 11:33am I came back and read some of the replys and it honestly sickens me. I am not offering a final cure or a solution (i am not that ignorant), i have seen that something is HELPING (NOT CURING) me and sending it out cause it may help others. And maybe you may not feel the pain that you feel in your daily life. What is better doing trying or just dealing with it. What is one more test? TO ALL THOSE PEOPLE WHO SAY I DONT HAVE IT CAN GO TO HELL!!!! I am 29 years only, and have gotten these stupid fucking things everyday of my life for 4 years. I lost people that have loved me, jobs, family is constantly worried, and lost out on life. From what it seems like in all your posts and i will get them for a long time to come, and all you people can do is put me down and say "you don't have it". NO ONE CAN EVER IMAGINE THE PAIN I GO THROUGH WHEN I GET THESE!!!! EVER!!!!!!!!!! I have researched this thing to death and went to constant doctors and had thousands of test, all of them saying i am in perfect health. So you tell me what the hell i have. I saw something that helped me and tryed to share it, but i got ridiculed and made fun of. So i will tell you what, you people can go, not look for a answers, put down others cause of your problems, and live with these things. I will not let this control my only life here on this planet. I dont know what i did for god to let me have this, but i found out why god gave it to you.' For the people that didn't ridicule me, thank you, i hope you find your solution. |
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Title: Re: Could not accept there wasnt a cure........... Post by don on May 27th, 2005, 11:45am Quote:
Its a warm fuzzy! |
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Title: Re: Could not accept there wasnt a cure........... Post by thomas on May 27th, 2005, 12:10pm Several people get "cluster lumps" on their necks, and they can last past 4 hours. I am not convinced that this person does not have CH. It may be possible that there is another problem in conjunction with the CH that is causing the numbness. Just ask Carl D about that. |
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Title: Re: Could not accept there wasnt a cure........... Post by E-Double on May 27th, 2005, 12:28pm I am thrilled when anyone finds relief regardless of how it came about!! Chelation therapy is/can, however be dangerous!!! I've had numbing as a side-effect down face and arm but never anything constant and do have a freaking walnut of a "cluster lump" As for the cynism, I tend to feel it leans more towards helping people be aware of misconceptions with this affliction and tries to get them to seek appropriate help. It is just misconstrued. Though it always evokes a nasty reply... Oh well.....enjoy your PF time and hope if it is CH it stays away for a while!!! Ex2 |
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Title: Re: Could not accept there wasnt a cure........... Post by seraph on May 27th, 2005, 1:15pm This is for Thomas..... I read somewhere that there is a nerve that controls the right and left motor functions (arms, legs, etc) that runs on the outer muscles. At the base of the neck is where it runs though a muscle and enters the brain. If that muscle tightens and gets knotted and pinches that main nerve (hold a straw inbetween your fingers and make a fist) can someone twitch on one side of there body???? During the headaches my neck and back are so tight and the muscles on the right side are tight. Its like i have to relax that muscle to relax the right side of my body. If you can, please explain more about these "cluster lumps".. Thank you for the positive response Thomas... |
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Title: Re: Could not accept there wasnt a cure........... Post by seasonalboomer on May 27th, 2005, 1:17pm on 05/27/05 at 11:33:37, seraph wrote:
Wow. There are aspects of your posts that lead me to believe that BobG is right in his assessment. Look bud, if you've experienced a lot of pain through this affliction you have then that's awful. As for no one here being able to understand YOUR pain. You need to take a few deep breaths and think about what you're saying and to who. THESE ARE CLUSTER HEADACHE PEOPLE! What you've seen here are some people saying that you may not be being diagnosed correctly. you've got some symptoms that are not only not typical, but not indicative. While you indicate you have had thousands of tests (that would be an average of 1 testevery day for the last 4 years of your affliction) there's something that is indicating to this group of people, who have spent a good bit of time researching as well, that something doesn't sound right. If your pain has been solved by this Chelation, that is really great. That's great for you. You should now work on many of the psychological issues that you apparently still have that may be related to the pain experience you have gone through. As for god's role in giving these headaches to you or anyone else, you will find various opinions on that within this forum. I would say that the predominant opinion is that god hasn't really chosen us for these headaches. But that instead a malformation of our hypothalamus is to blame. Ease up a little there Seraph. Just sit back and read and "feel the love" here on this site. It's there, really. |
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Title: Re: Could not accept there wasnt a cure........... Post by Kim Y. on May 27th, 2005, 2:03pm Quote:
Seraph I realize you said this post was for Thomas and I am sorry to but in. Maybe you have CH but you could still have something else as well and that could be the mercury poisoning and that is why you are getting some relief. Many people here have more then one thing going on at a time. Relax we are all here for you and are glad to see you are getting relief. There is tons of information here use it to your advantage and store it away. PF wishes Kim |
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Title: Re: Could not accept there wasnt a cure........... Post by bnfreeman on May 27th, 2005, 11:01pm I was told by an ER nurse that it was CH that I was having. At the time I was seeing a neuro that was treating my for migraines. I can feel your pain. I was glad to see I wasn't going crazy and that there were others who understood my problem. You said you used to do a lot of X in the day. So did I, but I have no cavities. I often wonder it the X is the reason I have CH. Or maybe being punished. Who knows, but at least you have found a way to end your pain. Thanks for your story. BF |
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Title: Re: Could not accept there wasnt a cure........... Post by Sean_C on May 27th, 2005, 11:03pm on 05/27/05 at 11:33:37, seraph wrote:
Give it a break, I've had these for twenty six years and I say you have meegraines................................kid Why some people want to have CH is beyond me, some even demand it [smiley=laugh.gif] If they only knew how much fun it really is ;;D Peace Sean............................. |
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Title: Re: Could not accept there wasnt a cure........... Post by don on May 28th, 2005, 8:42am Quote:
Just so you'll know. Thomas is currently incarcerated somewhere in Iowa in an instituion for the criminally insane. Any further correspondance should go through his really, really good friend Bruno in Pod #5 ,Tier 3. |
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Title: Re: Could not accept there wasnt a cure........... Post by floridian on May 28th, 2005, 8:49am on 05/27/05 at 09:41:21, Ueli wrote:
The idea that mercury fillings have no effect on the amount of mercury in the body is based on theory. Experiments have repeatedly shown that the body load of mercury (in urine, liver, kidney, brain and other tissues) is directly related to the number of amalgam surfaces. (The people that believe that mercury fillings are so safe also firmly believe that Monosodium Glutamate has no effects on human health, and that people who claim their cluster headaches can be triggered by MSG have over-active imaginations.) Quote:
Quote:
Is it the cause of clusters? Probably not. Could it be a risk factor for clusters? Possibly. Does mercury mess up the nervous system? Yes, it can. Does removal of mercury fillings improve health? There is not enough research to answer that question. |
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Title: Re: Could not accept there wasnt a cure........... Post by Jonny on May 28th, 2005, 2:16pm on 05/27/05 at 13:17:38, seasonalboomer wrote:
Hmmmmm, 30 years chronic CH and I have only had one MRI and one CAT scan. As far as I know there is no test that will tell if someone has CH or ADHD for that matter ;;D 1000's of test's?.....You must be...Nevermind. |
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Title: Re: Could not accept there wasnt a cure........... Post by hdido on May 29th, 2005, 5:04am Thanks for the objective data about mercury poisoning, Ueli. I've yet to hear of a case where mercury based fillings have caused poisoning-were that the case, virtually everyone in the world who had fillings done prior to the 60's or 70's (I forget when mercury amalgams ceased being used) would either be dead or mad from the mercury (the expression "Mad as a hatter" originated from hat makers going mad due to mercury poisoing by inhaling the fumes every day as it was used in the hat making process). The other symptoms don't sound like CH and I too question being on "hundreds" of meds in 68 weeks-what kind of doctor would prescribe like that and how would one find the time to take them? Further, most preventive meds take weeks to start working-whatever, I'm glad that you are better, seraph, whatever you have/had. Just one more note: I doubt that a cracked filling "leaked" into your system over 3 years-fillings are small and solid and chronic over exposure to toxic metals over a such a time period would have resulted in death or permanent damage to various body organs, particularly the brain with mercury. If someone told you that, seaph, then they were selling you the Brooklyn Bridge or were really ignorant. Was it the holistic doctor? Is he/she an MD? A strange but interesting story. Peace, brother. |
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Title: Re: Could not accept there wasnt a cure........... Post by ArCane on May 29th, 2005, 1:14pm I can not personally say if seraph has CH or not. He does seem to have symptoms of CH and some abnormal symptoms unusual to CH. It has been said many times that CH is different for everyone. The symptoms he describes can not be used to diagnos him. IMHO even doctors can't diagnos our condition. How many times have you found doctors that knew less about the condition than you? Even some neuros whos specialty is headaches seem to be ignorant. Does the mercury have anything to do with this situation? It could be the real problem and he does not have CH. It could be that the mercury triggered a cycle and once the mercury was purged from his system than he went into remission. It could be there is no mercury problem and it was just another example of a misdiagnosis of CH. Who knows? Seraph, I am happy for you. I am glad you have found relief no matter what the cause. I don't want to be the bearer of bad news, but if I were you I would pray the doctor was wrong. If it was just the mercury than you have escaped death from poisoning and are now becoming PF. This is the good senerio. If the doctor is right, and you do have CH then the "fun" has just begun. With or without mercury, it doesnt matter. CH is part of your life that you can't get rid of. You will have the pain again and again and again. Its only a matter of time. Some of us go years without pain only to be crying, screaming, and banging our heads once again. I do understand, and respect, your quest for answers. Get other doctors opinions and research, research, research. I wish you the best of luck. Allen |
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Title: Re: Could not accept there wasnt a cure........... Post by Gena on May 30th, 2005, 3:27pm A cluster bump or lump is a knotting in the ch side of the neck below the base of the skull, plenty of people have talked about them. My neck gets stiff from the muscles in my neck clenching due to the extreme pain, not as a symptom of ch itself, but just a reaction to the pain. And yes Sean, I too am amazed at the number of people who want/need/have to be part of the "club". It would be funny if it wasn't so pathetic. I would give just about anything to NOT be in this group, trust me. Edit to add this is thomas posting and to add don you SUCK!!!!! ;;D |
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Title: Re: Could not accept there wasnt a cure........... Post by Sean_C on May 30th, 2005, 8:18pm on 05/30/05 at 15:27:07, Gena wrote:
That was a beautiful finish bro ;;D |
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Title: Re: Could not accept there wasnt a cure........... Post by unsolved1 on May 30th, 2005, 10:35pm Seraph --> If you do have CH ... Allen said it all ... on 05/29/05 at 13:14:36, ArCane wrote:
Best of luck to ya Unsolved |
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Title: Re: Could not accept there wasnt a cure........... Post by seraph on Jun 3rd, 2005, 4:42pm Everyone questioned weither i had cluster headaches or not. In my first post this is what i said my symptoms are..... "4 years ago I out of the blue started to have uncontrolable headaches. It came slowly and increased in intesity everyday. It would last 1 hr to 3-6 hrs everyday, three times a day. There was no pattern, it would just come at about the same time everyday. I would get a lump on the back right side of my neck and my body would get all stiff. The right side of my body would become numb, i would lose all motor functions on the right side of my body and being to flap around like a fish out of water. My right eye would become blood shot red and roll and quiver in the back of my head. It feels like someone put your head in a huge clamp on your head and is tightening it until your eyes pop out , all the while someone is sticking a icepick in the back of your brain. " Everyone questioned that i had cluster headaches cause of the lump on the back of my neck with the icepick feeling going into my brain. Recently i found this on the Michigan Head•Pain & Neurological Institute website for Cluster Headaches "The cluster tic syndrome features the primary symptoms of cluster headache but with the added component of stabbing, ice-pick neuralgic-like components involving the eye, face, and jaw. The syndrome is found in 10-20% of patients but is often undiagnosed. True trigeminal neuralgia may coexist with cluster headache." http://www.mhni.com/faqs_cluster.html#tic Now since we all have a disease that hit maybe .01 percent of the population and i had something that hit 10 - 20% of us few, do you now believe that i had it or do you need to see my medical records and come and visit me in person. I never asked for this... nor do i want it. You guys can have it and keep it. That is not meaning to be mean i just know the pain and would give up anything not to have it. Maybe i am in remission or it might be dormant now but I found something that help me and might, just MIGHT, help you. (I still get them, just not as frequent and severe for whatever reason. Which is weird cause i used to be able to set my clock to them. That is why i posted this on the site. The only thing that helped was getting the mercury removed) If Unsolved is right and i will get them again I am just taking every precaution to not get them. If i got to deal with them the rest of my life i will put up a fight trying. Here is something from Oklahoma State University that explains Mercury Poisoning more in detail. http://www.pp.okstate.edu/ehs/training/mercury.htm When you get the mercury removed from your mouth, the doctors wear guards to protect from inhaling the fumes. Now these things are in your mouth for years getting wear and tear and, and if they crack leak in your mouth for as long as they go untreated. There is a reason they dont use them anymore, and if they really told people the reason they dont. How many lawsuits would arise. I know one of my friend that actually went throught the pain of suiting a dentist and in the end won. I also read alot of stuff on TMJ and the affects of it. This is also another precaution that i am taking. From what i used to be 2 or 3 years ago till now is 300% better. I remember the pain i had and dont wish it upon my worst enemy. I feel for anyone that even has to look in this website. You all are in my prayers. I am just wanting everyone to not give up and think. Something is causing this and with all of our help we may be able to help one another. That is why i posted this unto the site. Godspeed Seraph |
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Title: Re: Could not accept there wasnt a cure........... Post by seasonalboomer on Jun 6th, 2005, 10:33am Glad you found something that is working for you.... |
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Title: Re: Could not accept there wasnt a cure........... Post by thomas on Jun 6th, 2005, 11:16am on 06/03/05 at 16:42:20, seraph wrote:
Are you sure about that? The every one part? ;) |
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Title: Re: Could not accept there wasnt a cure........... Post by seasonalboomer on Jun 6th, 2005, 11:47am on 06/03/05 at 16:42:20, seraph wrote:
As you've decided to be so nit picky about how EVERYONE on this website has lambasted you, I'll take a moment to dissect your statements. The info you sited about the ice-pick nueralgia in the EYE, FACE and JAW, doesn't sound much like your description, "all the while someone is sticking a icepick in the back of your brain." Unless your eyes, face and jaw are located at the back of your head, it's different. I don't want you to have Cluster Headaches as much as I wish all the people on this site could be free of it and change the total subject matter for the message boards to, "what are you having to drink tonight?" Any questioning about your condition by ANYONE on this site is not about holding exclusive membership, it is about the idea that you might be lucky (or unlucky) and have something else. Maybe treatable. While it might sound like someone wants to keep someone out of the club that's bullshit. I and others don't want anyone to have to be here. As for your harping on the Mercury thing. I've read a fair amount on it and if thats the case, Chelation aint the answer for me. It might be fine for others but read up. Quit your whinin' |
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Title: Re: Could not accept there wasnt a cure........... Post by jokrs2 on Jun 7th, 2005, 5:12pm Seraph. I have had clusters longer than you have existed. I have and get big lumps in the back of my neck, sometimes when in cycle but also out of cycle, I also have 3 herniated discs. I recently had the complete list of blood tests and "DO NOT" have mercury poisoning. I have an extra jaw bone which causes TMJ but have had years of therapy to learn how to live with it. If you can show me evidence of mercury and it's direct relationship to the hypothalamus than I will say kudos to you kiddo. Glad you are in less pain. IMHO the physical pain comes from the devil as God doesn't want us to suffer. (That's why there are alternative meds) ;;D I just love these strings...makes ya think. Blessings, Joe |
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Title: Re: Could not accept there wasnt a cure........... Post by kkgoenka on Jun 14th, 2005, 2:37am I have gone through your message. It is very informative and I fully agree dental is playing very big roll for cluster heasaches. I am also suffering from cluster headache for last 25 years. After trying all medicine I stop taking medicine. Now yoga and alternative theraphy which helps. Plus control on food habit. Going for morning walk and deep breath which increase the supply of oxgen is really helpful. kkg |
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