Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> Medications, Treatments, Therapies 2005 >> Just been diagnosed again
        
(Message started by: RoyHuling on May 16^th, 2005, 3:02pm)

Title: Just been diagnosed again
Post by RoyHuling on May 16^th, 2005, 3:02pm

5 years ago I suffered with clusters for 3 months, put on Prednizone for a week and have not had any for 5 years, # weeks ago they started again, all during the night(3) and 1 during the day, today the Dr, put me on Prednizone (20mg) again along with verapimal (360 mg). and also ordered oxygen for the home to try ay 100 % oxygen for 5-15 min at onset. We will see what happens now, I am a newcomer here.. Roy
email royhuling@hotmail.com

Title: Re: Just been diagnosed again
Post by Jonny on May 16^th, 2005, 3:19pm

Welcome Roy, theres plenty to read here so you better get started ;;D

Sorry you had to come looking for us, but we are a mental bunch so you could get some laughs...LOL

....................................jonny

Title: Re: Just been diagnosed again
Post by Karla on May 16^th, 2005, 3:26pm

Sorry to hear that you are starting to go through this all over again. Remember we are here for you if you need us.

Title: Re: Just been diagnosed again
Post by sandie99 on May 16^th, 2005, 3:53pm

Warm welcome to ch family!

on 05/16/05 at 15:19:10, Jonny wrote:

we are a mental bunch so you could get some laughs...LOL

I'm so sorry that you have ch, but I'm so glad you found us... :)

Best wishes & PF days and nights,
Sandie

Title: Re: Just been diagnosed again
Post by LeLimey on May 16^th, 2005, 4:14pm

Hi Roy, its nice to meet you even if it does have to be here.
As everyone else has said already, read read read.. you'll end up knowing alot more than your doc I guarantee you!
What dose of verap are you on? Bear in mind you usually start at a lower dose and build up so don't be afraid to go back and see the doc to get him to up your dosage. Don't be tempted to do it yourself as it could end up messy.. verap is actually a BP drug (it just works bloody well for ch!) so don't mess with it. Here we have to have an ECG at every increase so I would suggest you speak to your doc about that too. It usually takes about 2 weeks to kick in which is why the pred taper is great as it covers you.
O2.. greatest thing ever in the history of the ch world in my book. I love it! People here seem to range between 8-15 Litres per Minute, I myself go between 12 and 15 (cos I have a BIG gob and I gulp it! Everyone else.. SHUDDUP!)
You do need to be using a non rebreather mask though.. those nasal cannula's are about as much use as a chocolate fireguard.
Ask all the questions you want, come and join in with the rest of us nutters and remember, every single one of us knows how you feel and can empathise.
Welcome home!
PFDANS (painfree days and nights)
Helen