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        New Message Board Archives >> Medications, Treatments, Therapies 2005 >> Please please please help me!
        
(Message started by: Davies on May 16^th, 2005, 8:55am)

Title: Please please please help me!
Post by Davies on May 16^th, 2005, 8:55am

:'(Please help me.Went to the doctors a month ago and he gave me verapamil to take 4 times a day they didnt do a thing! What do I do next? Had such a bad attack last night couldnt stop crying was nearly screaming with pain! I couldnt go to work today and its not nice for my huuby but you all will know this.The doctor will go for new medication for me tomorrow but please tell me what do i do ? Any ideas what to try? I take imagran sprays but they have not been that good.They will stop it when I take it then it gets worse again later on.Any ideas???????

Title: Re: Please please please help me!
Post by nani on May 16^th, 2005, 8:59am

Have you tried oxygen? Also, you may want to add lithium to the verapamil. Sometimes the combo is just what's needed. Imitrex injections are probably the most effective way to deliver the Imitrex. Or, consider dropping all of those and trying one of the alternatives. There are 3 that help many. Kudzu, LSA, or 'shrooms. Read about them first. Pain free wishes and hang in there, nani

Title: Re: Please please please help me!
Post by thomas on May 16^th, 2005, 8:59am

O2 at a high flow rate to abort, for starters. Are you getting hit while you sleep? If so see if melatonin is available where you are, it can help a lot with the night hits.

Title: Re: Please please please help me!
Post by Bob P on May 16^th, 2005, 9:30am

Quote:

Concurrent use of calcium channel blocking agents with lithium may increase the risk of neurotoxicity in the form of ataxia, tremors, nausea, vomiting, diarrhea and/or tinnitus. Caution is recommended.

Be careful with the verap/lithium combo.

Title: Re: Please please please help me!
Post by Sean_C on May 16^th, 2005, 9:41am

I use Imitrex as an abortive with o2 and lots of ice packs.

Heres a good link on the o2

http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm

Hope you get some relief soon

Sean...................

Title: Re: Please please please help me!
Post by sandie99 on May 16^th, 2005, 10:50am

[smiley=hug.gif]

I hope you'll find relief soon... In my case it came from verapamil, 600mg/day.

Best wishes & PFDANs,
Sandie

Title: Re: Please please please help me!
Post by Bob_Johnson on May 16^th, 2005, 11:26am

Several excellent sources of information:

http://www.headachedrugs.com/pdf/HA2005.pdf

WWW.MELDRUM.DEMON.CO.UK/migraine. At bottom of home page, look for FAQ on clusters: four sections of extensive material; strong on treatment options.

Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. (2002)

http://www.brightok.net/~mnjday/chtherapy.pdf

Title: Re: Please please please help me!
Post by LeLimey on May 16^th, 2005, 11:56am

Hi Davies
Go to OUCH uk to the meds board here http://www.clusterheadaches.org.uk/home/index.cfm?address=../treatments/txt_treatments.cfm&added=23/01/04&code=CD

Pay particular attention to this O2 link http://www.clusterheadaches.org.uk/home/index.cfm?address=../treatments/txt_drug_oxygen_regs_cd.cfm&added=11/08/03&code=CD

In the UK the high flow regulators aren't available on the NHS.. we have to buy them. This way you can get a smaller tank with an in built regulator whoch makes it alot easier to try. You need a non rebreather mask too. These are not available on prescription but you can buy them from Boots for about £4-5. You can get them through OUCH UK alot cheaper but see how you get on with it first.
There is a helpline phone number on the OUCH website which is well worth giving a call for further advice on meds. Think about asking for the Imigran injections, they are ALOT faster and are in fact the only licenced treatment for CH in the UK. I know they are expensive but your GP cannot refulse to prescribe them based on cost. There are resources at OUCH yet again that will back this up for you.
This site is fantastic for support, I love it but for advice on meds I would recommend the OUCH site as there ARE differences between the US and the UK on drug names for instance as well as regulations and cylinder sizes for instance.
Make the most of all the resources you have I say!
Good luck, let us know how you are getting on okay?
Regards
Helen

Title: Re: Please please please help me!
Post by MINGEYTWO on May 30^th, 2005, 9:42am

I HAVE SUFFERED FOR 35 YRS. CALL YOUR DOC AND ASK FOR DEPECOTE 500 MI. PER DAY AND MAXALT 10 MI MELT IN YOU MOUTH TABS FOR WHEN CH HAPPENS. THE DEPECOTE WILL BRAKE THE CYCLE AND WHEN ONE BLEEDS THROUGH THE MAXALT TAB STOPS THE PAIN IN 3-5 MIN. ITS CHANGED MY LIFE MINGEYTWO@COMCAST.NET