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        New Message Board Archives >> Medications, Treatments, Therapies 2005 >> Has anyone tried SinusBuster
        
(Message started by: m3harri on May 14th, 2005, 5:21am)
Title: Has anyone tried SinusBuster
Post by m3harri on May 14th, 2005, 5:21am
Have anyone here tried SinusBuster? It is a pepper based extract that is sprayed up the nose. It sounds scarier than it really is.  I got some a year or so ago and it helps sometimes, about 50/50. It costs about 10 bucks or so for a bottle. The other day I dissolved an Imitrex 100Mg pill into a 35Ml bottle but have not had a chance to try it yet.
Title: Re: Has anyone tried SinusBuster
Post by vig on May 14th, 2005, 8:29am
uh, you did WHAT with an Imitrex pill?
why?
It DOES come in a spray.

(and spare us the SinusBuster please)
Title: Re: Has anyone tried SinusBuster
Post by LeLimey on May 14th, 2005, 8:47am
I'm feeling mellow at the moment....  ;)

We have had countless snake oil vendors coming on to the site trying to sell treatments that DO NOT WORK FOR CH.

Sinus Buster does not work for CH. It never has, it never will.

Maybe I need to emphasise that a bit

SINUS BUSTER DOES NOT WORK FOR CH.

once more for those who are a bit dim..

SINUS BUSTER DOES NOT WORK FOR CH!!

I hope that helps. Do you know what though? Sometimes it is NO FUN being in a good mood!!  
Title: Re: Has anyone tried SinusBuster
Post by Langa on May 14th, 2005, 8:52am
Helen??? Is that you Girl???   ;;D

You ARE in a good mood girl...Miss Mary Poppins herself... 8)

Langa
Title: Re: Has anyone tried SinusBuster
Post by don on May 14th, 2005, 9:37am
I tried it and now my sinusus feel great.

Now if only I could do something about the CH.
Title: Re: Has anyone tried SinusBuster
Post by Redd715 on May 14th, 2005, 10:44am
http://members.iinet.net.au/~vroncol/Smiley_gifs/rolleyes.gif
Title: Re: Has anyone tried SinusBuster
Post by pattik on May 14th, 2005, 11:01am
[smiley=bigguns.gif] [smiley=nono.gif] [smiley=ohjez.gif]
Title: Re: Has anyone tried SinusBuster
Post by floridian on May 14th, 2005, 11:19am
http://www.med-owl.com/clusterheadaches/tiki-index.php?page=Capsaicin
Title: Re: Has anyone tried SinusBuster
Post by Ueli on May 14th, 2005, 12:49pm
m3harri,
could you please ask you boss to stop sending his huckster to this site at regular intervals?
We do not believe sinusbuster is a good treatment for cluster headaches.
Furthermore, what your boss describes on his website doesn't sound like clusters. The same for his bagmen, their "knowledge" of clusters was learnt in 5 minutes, from dubious sources like above mentioned website.
But I have to admit, the symptoms and treatments of these peddlers are sometimes quite hilarious. Hell, we recently had a moron who pulverized Imitrex pills and snorted them.
http://humferier.free.fr/sapc/yuk.gif
Title: Re: Has anyone tried SinusBuster
Post by m3harri on May 14th, 2005, 5:28pm
Sorry, I wish that I search the boards for this topic. I am not a salesman, hell due to this condition I am not even “employable” anymore. I have had chronic CH for about three years now. Like many I have allowed it to ruin my life. Wife gone, job gone, friends gone, my dogs also gone. Just over a year ago I was under a continuous barrage of attacks for a week and I was so desperate that I ODed on several medications at once. My ex found me the next day in repertory arrest. My coworkers asked her to check on me. I was very lucky to live at all. My family was brought in from 700 miles away (I live in Kansas City MO. My family is from the extreme end of SE Arkansas) and told to prepare for the worst. I came through with just minor brain damage and severe hearing loss.
CH hits me on at least twice every three days. So even when I was insured, I never had enough imitrex to help me. I was given 5 nasal doses and 4 injections and what ever I could afford out of my pocket a month. The pills did not work. Like others I am very desperate at times.
About “SinusBuster”
If I could rewrite my original post I would say that it seams to work around 50% of the time. I wanted to see if others had some constructive to say one way or the other. I did not know that this was a touchy subject. Hey, I hate spam at least as much as you guys if not more. You will note that I did not include any links in my post.
Anyway it seams to alleviate some of the pain, sometimes, or keeps it from getting worse.
As I am desperate for relief and for workable meds I tried to “make” some nasal imitrex. Hell it still seams to be a good idea. Why is it not? Please. Feel free to call me an idiot.
BTW Long live quackwatch.com
Stephen Barrett, M.D is awesome. I highly recommend “HEALTH ROBBERS” even if it is 30 years old.
One of the bones of contention in my marrage was that I refused to see a Quackopractor.
If anyone wants to email me add @yahoo.com to my user name m3harri
Again sorry to waste your time and I am not into sales of any kind
Title: Re: Has anyone tried SinusBuster
Post by Chillrmn1 on May 14th, 2005, 5:57pm
M3harri,

Check out the threads regarding LSA and alternative treatment.  Also check the FAQs at clusterbusters.com.

Lots of folks are finding relief and success with alternative therapies, with the financial cost minimal when compared to conventional meds like Imitrex for example.
Title: Re: Has anyone tried SinusBuster
Post by Bob P on May 15th, 2005, 7:00am

Quote:
A double-blind placebo-controlled trial of intranasal capsaicin for cluster headache.

Marks DR, Rapoport A, Padla D, Weeks R, Rosum R, Sheftell F, Arrowsmith F

Clinical Immunology Unit, Massachusetts General Hospital, Boston 92114.

It has been suggested that treatment of cluster headache (CH) patients with topical capsaicin may desensitize sensory neurons by depleting the nerve terminals of substance P. We attempted to determine whether capsaicin is effective in aborting CH attacks. Patients in acute cluster were randomized to receive either capsaicin or placebo in the ipsilateral nostril for 7 days. Patients recorded the severity of each headache for 15 days. Headaches on days 8-15 of the study were significantly less severe in the capsaicin group vs the placebo group. There was also a significant decrease in headache severity in the capsaicin group on days 8-15 compared to days 1-7, but not in the placebo group. Episodic CH patients appeared to benefit more than chronic CH patients. These results indicate that intranasal capsaicin may provide a new therapeutic option for the treatment of this disease.
Title: Re: Has anyone tried SinusBuster
Post by wetdogtwo on May 20th, 2005, 2:32am
I'm an episodic sufferer whose latest cluster has just begun.  Three cycles ago, my neurologist - Dr. David Kudrow, well respected, his father pioneered Imitrex, etc. - put me in a capsaicin study where I took daily snorts up the nose of pepper spray.  And for me, it worked.  Maybe it was a different formula than SinusBuster, but whatever it was (placebo effect?), the intensity of my headaches lessened and my cycle ended shorter than usual - after just a few weeks.

Unfortunately, they wouldn't let me keep the spray and so the past couple clusters, I made my own from an empty nasal spray bottle, cayenne pepper and boiling water - cost me a couple dollars and a coffee filter.  It's not fun, but it works for me.  My headaches aren't as painful.  But I also am trying the mushrooms this time around.  I tried a small dose the day it started, but I still hit a couple 9s this week so I'm going to try again.

I'm also trying the melatonin thing.  My feeling is all three treatments are relatively safe, they don't interact with one another and they're cheap.  I'm going to try them all to break this chain.  And if it works, I'm going to do exactly the same thing the next time.  I don't care which treatment did the job, just so long as I can get pain free.  I also know it's not going to work for everyone else.

My point is, everyone has to figure their own treatment out.  Just because pepper spray didn't work for you doesn't mean it's not working for me.  And if you think it's just hype then make it yourself.  It's easy.  But don't blanketly dismiss the treatment.  Verapamil didn't help me, ergotamine made me queasy, I wasn't comfortable taking Prednisone or lithium and O2 only helped me sometimes.  Does that mean I should post how bad those treatments are?  Or if I say that Imitrex works every time (for me, it does), does that make me a shill for GlaxoSmithKline?

Please try to keep an open mind.  And be skeptical, too.  Turns out there are a lot of hucksters on the Internet, though I think I'm onto something with this Nigerian bank...
Title: Re: Has anyone tried SinusBuster
Post by Bob P on May 20th, 2005, 7:20am

Quote:
I'm also trying the melatonin thing.  My feeling is all three treatments are relatively safe, they don't interact with one another and they're cheap.


This should bring Flash a runnin'!
Title: Re: Has anyone tried SinusBuster
Post by don on May 20th, 2005, 7:39am
wetdogtwo ???

Hmmm?

Did WaterDog get his GED?
Title: Re: Has anyone tried SinusBuster
Post by Margi on May 20th, 2005, 10:21am

on 05/14/05 at 05:21:40, m3harri wrote:
The other day I dissolved an Imitrex 100Mg pill into a 35Ml bottle but have not had a chance to try it yet.


sorry, I gotta ask too.....you did WHAT with an Imitrex pill?  Why?  

M3Harri, I'm real sorry to hear that you're in such a rough spot.  Please also read the information on Kudzu.  It's also helping a lot of people and you don't need a prescription for it.  
Title: Re: Has anyone tried SinusBuster
Post by Tiannia on May 20th, 2005, 10:54am

on 05/20/05 at 10:21:01, Margi wrote:
sorry, I gotta ask too.....you did WHAT with an Imitrex pill?  Why?  



My question exactly.  Why the hell would you do THAT to a tab there are a ccrap load of other things in the pill besides Trex and you are going to snort that up your nose?

And wetdog2, what medical degree do you have to know what treatments dont interact with each other?

Sorry not in a good mood today.  >:(
Title: Re: Has anyone tried SinusBuster
Post by wetdogtwo on May 20th, 2005, 11:40am
And wetdog2, what medical degree do you have to know what treatments dont interact with each other?

Sorry not in a good mood today.  >:(


I'm sorry, I should have prefaced that with, "As far as I've learned from what information I have found..."

I find it amusing when people say, "Sorry, I'm in a bad mood" as if that gives them license to be a jerk.
Title: Re: Has anyone tried SinusBuster
Post by pattik on May 20th, 2005, 12:29pm

on 05/20/05 at 11:40:55, wetdogtwo wrote:
And wetdog2, what medical degree do you have to know what treatments dont interact with each other?

Sorry not in a good mood today.  >:(

I find it amusing when people say, "Sorry, I'm in a bad mood" as if that gives them license to be a jerk.


Are you generalizing, cause I thought Tianna's question was reasonable.    :)
Title: Re: Has anyone tried SinusBuster
Post by Roxy on May 20th, 2005, 12:33pm

on 05/14/05 at 17:28:18, m3harri wrote:
CH hits me on at least twice every three days. So even when I was insured, I never had enough imitrex to help me.


Just curious, but getting hit every three days isn't too bad.  How does that keep you from working?  Sorry that I'm a little confused about this, but twice every three days sounds pretty manageable.

Try some 02....pain in the ass, but nectar of the Gods.
Title: Re: Has anyone tried SinusBuster
Post by Tiannia on May 20th, 2005, 1:09pm

on 05/20/05 at 12:29:46, pattik wrote:
Are you generalizing, cause I thought Tianna's question was reasonable.    :)


Thank Pattik.  This post was far from me being a jerk.  But I am normally a lot more politically correct and not so blunt with new people.  

Personally I have an issue with people, especially on the Meds Board, when they stating opinion rather then fact can get yourself or other people hurt if they think that you know what you are talking about.  "as far as you are concerned" the non-interaction between the treatments could put you in the hospital.  Everyone here generally agrees that no treatments should be mixed unless you have discussed it with a doctor first and preferably a damn good neuro.  Also it is generally accepted that if you are going to try a new treatment then yo need to detox off ALL other treatments from 5 days.  Just shoveing different things into your body, be it pills, sprays, shots, whatever has a terrible habit of getting people dead.

Have a wonderful day.   ::)
-Tia
Title: Re: Has anyone tried SinusBuster
Post by seasonalboomer on May 20th, 2005, 1:22pm
I'm not sorry, but I am in a bad mood today. I'm doing system upgrades on computers and it could be going better.

Your posts, wetdog, and mharri, are just a little wacky. You really lay a lot on us here and we're trying to sort out all the stuff from what your question is.

No one has answered about the dissolving imitrex tablet yet... after you've asked about Sinusbuster which has long been a "hot" topic around here (and up your nose), as you've seen.

As for wetdog, you only show a few posts but you argue like a veteran of these boards without the logic. As for your statement, "And if you think it's just hype then make it yourself." Well, if I thought it was hype, why would boil up some myself to torture my sinuses in this manner. I have countless, legitimate sources on these boards who have told us that Sinusbusters isn't really worth a go, along with why it's not worth it.

So, call me a jerk if you like, but show some degree of respect for the forum. Your post was all over the place and folks are on the lookout here for hucksters. We've actually seen posts like these that come from the worst kind of hucksters -- maybe you are, maybe you aren't. You'll find these people will listen as you make clear who you are and why you're here.

Be pain free.

Scott
Title: Re: Has anyone tried SinusBuster
Post by wetdogtwo on May 20th, 2005, 2:17pm
I apologize if I came across as disrespectful.  My point is that when people post things that blanketly announce that some treatment doesn't work when there is evidence - both anecdotal and in the medical community - that say otherwise, it irks me, especially since it has worked for me.  I speak of capsaicin, not SinusBuster; I am not familiar with the product.  It irks me further when those posters then dismiss anyone who says otherwise as either being ignorant or frauds.

Here are the results of the study I was in: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=12056936&dopt=Abstract

The conclusion: "Intranasal civamide solution at a dose of 50 microg may be modestly effective in the preventive treatment of episodic cluster headache."

If a treatment has not worked for you, just say, "It hasn't worked for me."  Does LeLimey have a medical degree to announce that something does or doesn't work for CH?  And don't lash out at me if I say it has worked for me.  I'm not saying crush Imitrex into pepper spray or infuse your O2 tanks with kudzu juice.  

So let me restate my claim simply: capsaicin spray - under the supervision of a neurologist - helped ease my CH pain.  It did not cure it.  It did not make me smarter or better looking.  It eased my pain.  I skipped days.  My cluster was shorter than usual.  I made my own spray, it seemed to work in the past, it's relatively safe (cops use it on perps every day without a prescription) and and it cost me very little.  Also, it takes repeated treatments before it starts helping.  Hopefully it'll work for me this time around - I hit a 10 last night and am not in a good mood at all.

I believe this forum is about sharing information and experiences.  I am trying to do both.

wetdogtwo

p.s. small side note: a small dose of mushrooms aborted my headache last night.  I believe taking mushrooms to be a much riskier prospect than pepper spray, so please take care, do much research and keep Pink Floyd standing by if you choose to pursue this treatment.
Title: Re: Has anyone tried SinusBuster
Post by Mr. Happy on May 20th, 2005, 2:29pm
Synthetic analog of capsaicin: civamide.

4. Civamide clinical trials have closed out and the number crunching has begun. What they learned from the earlier trials with civamide is that it works most effectively in a prevention mode. It appears to work on a cumulative effect. The first week does not show much improvement, but by the time they get out to 20 days there is marked improvement. This may be something that can be used to abort a cycle, not just an attack. (http://www.clusterheadaches.org/conventions/2003/report.htm)

OUCH history.
RJ
Title: Re: Has anyone tried SinusBuster
Post by vig on May 20th, 2005, 2:35pm
funny, when I was experimenting with capsaicin, it would work a time or two then stop, not vice versa...
Title: Re: Has anyone tried SinusBuster
Post by Giovanni on May 20th, 2005, 4:21pm
I am personally happy for ANYTHING that brings relief from these things we call cluster headaches.  We should all know by now that what works on one person may be not be effective for another.  Remember the tuning fork? LOL Before completely dismissing someone's claim we should keep that fact in mind.  

BTW, Wetdogtwo, there has been some indication that melatonin MAY interfere with the muchrooms with some people.  

John  :)
Title: Re: Has anyone tried SinusBuster
Post by jefferator on May 20th, 2005, 4:31pm
Ouch...just seeing the words tuning fork made me shadow....careful in here!!
Title: Re: Has anyone tried SinusBuster
Post by wetdogtwo on May 20th, 2005, 4:41pm
Giovanni,

Thanks for the heads up on the melatonin!

Marty


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