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        New Message Board Archives >> Medications, Treatments, Therapies 2005 >> cyber knife
        
(Message started by: tbp38 on Mar 21^st, 2005, 12:16am)

Title: cyber knife
Post by tbp38 on Mar 21^st, 2005, 12:16am

had cyber knife at stanford on feb 8, still on meds, very few headaches, and very mild, haven't had one in ten days, will go of meds soon, that will be the real test, will keep you posted, let me know if you have ????"s i'm afraid to say that it is working, but i think that it might it be. i am a chronic 'ch' , usually every night for the past 20 years, i have only had nine ha's since feb 8, only two were killers, the rest were very mild, took O2 and they subsided. stanford has never done this before for CHA'S , this procedure is usually confined to people with brain tumors and other maladys not related to headaches. hope this is the answer , let me know if you have questions, either through this site or email me at brancyk@sbcglobal.net

Title: Re: cyber knife
Post by Mr. Happy on Mar 21^st, 2005, 12:35am

on 03/21/05 at 00:16:25, tbp38 wrote:

let me know if you have questions, either through this site or email me at brancyk@sbcglobal.net

Well of course we have questions, ya nit. I'm not sure what the "cyber knife" involved, but it musta been more than extra sprinkles at the local Dairy Queen.

What _exactly_ did they do? (Or did I miss something?)
RJ

Title: Re: cyber knife
Post by tbp38 on Mar 21^st, 2005, 12:48am

hey dick all i know is that it might be working, im trying to let everyone know what is out there, if you want details call me at 4082813217 , you sound like an AS. tb

Title: Re: cyber knife
Post by nani on Mar 21^st, 2005, 12:54am

His name is RJ, not Dick. Is this surgery the same as gamma knife surgery?
PS you may want to take your phone number off and just send him a pM with it. Keeps the crazies off your phone line.

Title: Re: cyber knife
Post by jokrs2 on Mar 21^st, 2005, 1:03am

Yeah, what's with the phone fetish thing. Typing isn't that hard ;;D.
Hi Nani! ;)

Title: Re: cyber knife
Post by tbp38 on Mar 21^st, 2005, 1:05am

don't want to talk to the smart ass, i'm just trying to help all of us, and i think that tihis thing might have worked, i'm not sure yet . i'm hoping, your freind is a jerk

Title: Re: cyber knife
Post by tbp38 on Mar 21^st, 2005, 1:06am

Title: Re: cyber knife
Post by nani on Mar 21^st, 2005, 1:07am

Mr Happy is a misnomer. He's a crabby old fart. ;;D So...is this the same as gamma knife surgery?

Title: Re: cyber knife
Post by jokrs2 on Mar 21^st, 2005, 1:30am

Hey buddy boy FOB yourself [smiley=laugh.gif] [smiley=laugh.gif] It's a simple question. What did they do? LYG ;;D

Title: Re: cyber knife
Post by don on Mar 21^st, 2005, 7:33am

Quote:

Taking one's own advice can be as productive as giving it.

Can attitudes be ajusted with a gamma knife?

Title: Re: cyber knife
Post by Kevin_M on Mar 21^st, 2005, 9:00am

on 03/21/05 at 00:16:25, tbp38 wrote:

had cyber knife at stanford on feb 8,
...will keep you posted,

Quote:

dick
sound like an AS.

Quote:

smart ass
jerk

Quote:

Ok, the clues tell me Stanford doesn't have an on-site Dairy Queen.

By your update posts to the curiosity, my impression is "cyber knife" is some sort of online cut-up that seems to involve a dull knife.

warmer or colder?

Kevin M

Title: Re: cyber knife
Post by jokrs2 on Mar 21^st, 2005, 10:13am

[smiley=laugh.gif] [smiley=laugh.gif]
Nice, Kevin
Attitude transplant next on the to do list. ;;D

Title: Re: cyber knife
Post by unsolved1 on Mar 21^st, 2005, 10:48am

Very interesting Tom. We all want to know more.

Unsolved

Title: Re: cyber knife
Post by Ueli on Mar 21^st, 2005, 12:15pm

That cyber knife must have missed it's target and damaged the centers of intelligible communication and good manners..... :( >:(

Title: Re: cyber knife
Post by kissmyglass on Mar 21^st, 2005, 2:22pm

Hes got to mean Gamma knife. I have to have it soon. Not thrilled about it either.

RJ....stop your nonsense will ya please?? ;;D

Kev

Title: Re: cyber knife
Post by toolong on Mar 21^st, 2005, 7:07pm

OK I've read all the threads here and I'm curious as to what the .....is being said?Is this just a bunch of bull shit or a real treatment? >:(David

Title: Re: cyber knife
Post by nani on Mar 21^st, 2005, 7:22pm

Gamma knife surgery is real. There are threads on it. I'm still not sure if he's talking about the same thing.

Title: Re: cyber knife
Post by don on Mar 21^st, 2005, 8:19pm

Quote:

Is this just a bunch of bull shit or a real treatment?

Its real. A rather drastic treatment for chronics who do not respond to treatments involving medication.

Title: Re: cyber knife
Post by Mr. Happy on Mar 21^st, 2005, 9:50pm

The gamma knife is real enough.........it's the "cyber" knife reference with no other info that bugs the crap out of me.

Sort of like the post just entered by "easy" -

cure for me!and you?
« on: Today at 10:41pm »
I have found a cure after 15 years of suffering every January form 7:00pm to 3:00 am.

No wonder I'm going crazy.
RJ

Title: Re: cyber knife
Post by Not4Hire on Mar 21^st, 2005, 10:39pm

on 03/21/05 at 21:50:00, Mr. Happy wrote:

jones... the pore guy/dumshit/tbp38 took offense to ya callin' him a "nit-wit"... you and I know that's a
>Term of Endearment< ...

and this:

....
Quote:

I have found a cure after 15 years of suffering every January form 7:00pm to 3:00 am.

is sorta like asking if it's warmer in the city than it is in the summer.......

wtf?

...I just have to ask:

is slashing away at yer cranium--and possibly removing perfectly good gray matter-- the first ...or second... or..... thing you do unless

YER REAL DAMN SURE

there are not .....more ...gentle ... things to do

?

like shrooms
and kudzu
and
well,
stompin' on yer foot
to distribute the pain....

edited to add:

...keep trying, Randy, my brother, sooner or later they will realize we're not gonna >actually< charge 'em double.....

Title: Re: cyber knife
Post by mynm156 on Mar 24^th, 2005, 1:35pm

Cant you just feel the love?

Title: Re: cyber knife
Post by Tiannia on Mar 24^th, 2005, 5:51pm

nit wit???????? Damn considering all of the shit I have seen on this board, that is mild.

I had RFG last Feb and will never let then touch anything inside my head again. It just is not worth it and did not help.

Glad, eerrrrrrr Hope it helped you,
-Tia

Title: Re: cyber knife
Post by gore2424 on Mar 25^th, 2005, 8:38am

ok tbp38 please could you give more details of what you had done I am interested in any procedures
thank you Terry

Title: Re: cyber knife
Post by andrewhurt on May 12^th, 2005, 3:52pm

the cyberknife is like the gamma knife, but different in some significant ways. they are both radiosurgical systems meaning they both use beams of radiation to create a lesion at a focal point. the cyberknife (made by accuray), like related systems (such as the novalis from brainlab, the xknife from radionics, etc.), is a linear accelerator ("LINAC"). these use high energy x-rays to make the lesion. the gamma knife uses gamma radiation. the important point is that the use of linac systems to treat craniofacial pain has hardly been studied at all. this is the first case of linac treatment for CH i've heard of, and there weren't any results i found in a pubmed search. even for a much more thoroughly studied craniofacial pain disease--trigeminal neuralgia--there is very little research.

it's hard to find unbiased info on this topic as it's seen as a "hot new technology," but www.irsa.org seems to be relatively fair and balanced.
-andrew

Title: Re: cyber knife
Post by E-Double on May 12^th, 2005, 4:14pm

Thank you!!!

Title: Re: cyber knife
Post by Mr. Happy on May 13^th, 2005, 1:43am

Right on with the Thank You, Eric.

The intent was never to piss off thb38 dude........it was a request for more info. It might have taken a couple months to get an answer, but thanks for your input, Andrew, on what this is. I still don't understand it, hope I never have to do it; thanks for the explanation.

Sure wish I was smarter. Not to mention the Memory thing....
RJ

Title: Re: cyber knife
Post by don on May 13^th, 2005, 6:32am

Quote:

your freind is a jerk

LMMFAO

Quote:

Sure wish I was smarter

We all do Hap. LOL

Title: Re: cyber knife
Post by Gator on May 18^th, 2005, 12:59am

Here is an e-mail exchange I had with Mr. Brancyk. I had intended to post it sooner, but things got kind of crazy for me at the time and I forgot all about it until now. CRS taking a major toll here. Sorry everyone.

Quote:

Okay, dude. It has been 5 days since this post. You left some very interested people hanging because of the misguided humor of one person. Yes, he was trying to be funny. That's his way. At 56 years of age and having had CH every day for 20 years, you should have a lot thicker hide than this. How about finishing what you started and give the people interested in what you have to say the information you said you'd give them? Or if you truly do not wish to do so on the message board, how about filling me in and letting me relay it? These people are sufferers just like you are. Can you really turn your back on them so easily?

Mike
aka Gator

==================

ok pal ,pay attention, check these sites out,www.accuray.com, and www.stanfordhospital. com. stanford radiosurgery dept 650-723-5573.the target nerve for my prcedure was the"sphenopalatine" on the left side of my face. i am almost off meds, haven't had cha in fourteen days. talk to your doc about this. im not going to the cluster h a site any more, beleive me i do want to help every one am pretty excided about this, other wise i would never have posted in the first place. i can't type, this took me twenty minutes, if you are serious enough about this, i will give you me phone number, if you don't already have it and i would be glad to give all of the info that i have and then maybe you could pass it on . its your call, good luck, thomas

Title: Re: cyber knife
Post by Zephrah on May 18^th, 2005, 4:41pm

[smiley=huh.gif] this has got to be the most messed up thread i've ever seen! :o