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        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Clusters and Epilepsy
        
(Message started by: Pinkfloyd on Nov 14^th, 2004, 9:04pm)

Title: Clusters and Epilepsy
Post by Pinkfloyd on Nov 14^th, 2004, 9:04pm

If there are any cluster sufferers here, that also suffer from epilepsy, could you please contact me. I am in particular looking for someone that may have had a VNS implanted. If you have, or know of someone that has, please send me an email or IM.

Don't worry, I'm not trying to sell anything. It has to do with a cluster treatment and possible research. :D

Thanks
BobW

Title: Re: Clusters and Epilepsy
Post by nani on Nov 14^th, 2004, 9:18pm

Yoo hoo.... Charlie.....

Title: Re: Clusters and Epilepsy
Post by Charlie on Nov 14^th, 2004, 11:20pm

Thanks Nani.

I've already been through this however. The VNS thing is pretty new. My CH and epilepsy are not related.

Good luck Pinky

Charlie

Title: Re: Clusters and Epilepsy
Post by Pinkfloyd on Nov 15^th, 2004, 12:31am

Yes, I've already run Charlie's data through the computer (a modified wayback machine) and he seems to fall into the high end of the "enigma" classification.

I'm searching for someone that is closer to a "medical marvel"

but thanks anyway ;;D

bobW

Title: Re: Clusters and Epilepsy
Post by radioflyer72 on Nov 15^th, 2004, 7:23pm

Hi Floyd

A newbie here....CH episodic also dealing with General Tonic Clonic seizures (controlled with Tegritol)......No VNS implant, but I'm willing to share whatever might help our fellow man.

My only advice. Lose the head...it's WAY overrated :-P

David

Title: Re: Clusters and Epilepsy
Post by Pinkfloyd on Nov 16^th, 2004, 1:38am

on 11/15/04 at 19:23:55, radioflyer72 wrote:

Thanks David very much. i do need to speak with someone that has both clusters and a VNS. If you happen to even run into such an unlucky (or lucky I guess if it works) person, please let me know.

BTW, welcome. Hope the folks here can be of some assistance.

PF