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Title: instant gratification vs. clear thinking Post by karma on Oct 6th, 2004, 12:15pm The pain from CH sucks! It is life altering and temporarily debilitating. It doesn't help that there is no clear method to treat the symptoms and no method at all to cure the problem. Since I've been here it's become pretty clear that allot of people (myself included) suffered through the pain of CH for years and years w/o benefit of triptans. It seems that these people are episodic. On the other hand allot of people here have gone through drug after drug only to find out they stopped working. The most heart breaking comment I read is "I don't know what I will do if this stops working" It seems that most of these people are chronic. I'm sure you guys have figured out where I'm going with this and I don't want to get into a pain comparison. I'm trying to understand why people will continue to take drugs that have serious health consequences or may cause the CH cycle to get worse over time and even if they don't work vs. more wholistic methods like exercise or meditation techniques that have virtually no side affects. I'm glad to see O2 is being pushed more and more not just because it seems to be very affective but also because it has virtually no side affects. The wholistic approach doesn't always work either but at least it won't kill you, no matter how much you do. Is the instant gratification of being pain free for a short time forcing us to make make a deal with the devil? |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 6th, 2004, 2:01pm Yea I know no one wants to admit that maybe there is no magic pill. blast me, cuss me tell me to fuck off, I don't give a damn here it is. My humble opinion of course. Derby Demons post is a perfect example of what I'm talking about. Sorry D.D. I'm not picking on you. Drugs don't work? Throw more drugs at it! O shit, Now i've got a problem caused by the drugs! Throw more drugs at it. O shit now I'm on my way to the E.R.! Throw more drugs at it. Guess what ? Now I'm taking drugs 24/7 and having the worst CH cycle of my life. Does anybody see a pattern here? |
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Title: Re: instant gratification vs. clear thinking Post by Tom K on Oct 6th, 2004, 2:25pm Better living through chemistry? I fall into the episodic category, Trex and O2 work for me. If I couldn't take Trex any more, I don't know what I would do. Probably still take Trex. Yeah, it is a health hazard, but it works. holistic stuff doesn't work, no herbs, yoga, meditation, nothing. The witch doctor, eh, I mean chiropractor never fixed it, accupuncture never fixed it, why waste the coin? I may be one of the lucky ones, but I get away with up to 6 doses of Trex Stats in a day. Full 6mg ones. Never had a side effect, only when I didn't have a CH and I thought I did. Turns out it was sinus ha not a CH but felt the same. I don't want everyone to think that it is good to do but I have been told by more than one Dr, that if you take it for CH, then it will do what it is supposed to and you can take up to 6 per 24 hrs. I've done it and am still here to talk about it and have never been to the ER on a Trex related event. What works for me might not work for you, so kids...don't try this without taking to your Dr. T PS...I'm not a doc nor do I play one on TV. This works for me and I have clearance to do so by my Dr. This does not in anyway shape or form condone OD'ng on Trex. Read the flier in your meds and follow all instructions or talk to your Dr. T |
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Title: Re: instant gratification vs. clear thinking Post by DerbyDemon on Oct 6th, 2004, 2:43pm In the time I've been diagnosed with CH, the only thing that has sent me into an episode has been my foolishness of not refilling the Covera prescription. Now that they don't make the stuff I have to fight this thing with Verapamil. I wouldn't be opposed to something more natural. But we are in the year 2004...I've known the sex of all three of my children before they were born...can get a meal served to me in under a two minutes in my car...and can make juice out of powder that the astonauts drink in space. Give me pills or let me drop acid. And thank you Tom for the info. |
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Title: Re: instant gratification vs. clear thinking Post by don on Oct 6th, 2004, 2:52pm Quote:
Because none of those things will stop an attack. |
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Title: Re: instant gratification vs. clear thinking Post by Tom K on Oct 6th, 2004, 3:13pm There is one thing that does work, sometimes and that is Mt Dew AMP. If I slug down 2 of them, ice cold, it will sometimes stop a K4 in its tracks. Don't know how or why but it is cheaper than Trex and pretty much at any Quickymart. T |
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Title: Re: instant gratification vs. clear thinking Post by Jonny on Oct 6th, 2004, 3:34pm Drugs, drugs and more fucking drugs for me....Tex I dont like to take cause it causes me rebounds, but if I have Trex in hand and a HA...Guess what....im spiking that Mutha!! 14 years chronic with nothing but ice, followed by two years of finding the right meds is enough for me. Now that I have found DRUGS that work for me I will pump them in all day long to kill the beast, even if it kills me...it kills the beast for good ;;D ..........................................jonny |
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Title: Re: instant gratification vs. clear thinking Post by Tom K on Oct 6th, 2004, 3:36pm on 10/06/04 at 15:34:23, Jonny wrote:
AMEN to that! T |
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Title: Re: instant gratification vs. clear thinking Post by Superpain on Oct 6th, 2004, 5:59pm on 10/06/04 at 15:34:23, Jonny wrote:
Well said... Not to mention I love to bludgeone people who suggest "holistic" hippydippy bullshit to deal with a cluster! After I bury a fukin axe in their head I suggest that they try to meditate and don't eat any wheat. [smiley=laugh.gif] ::) |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 6th, 2004, 6:16pm D.D, the Cevora and the Verap didn't stop the episodes you still got hit and now they are probably useless. Tom, did the cycles get worse when you got started on the Trex? Longer cycle, more hits? Don, I hate it when people generalize. Exercise and meditation do abort most attacks for me. For the ones that get through I've learned how to make them shorter and less painfull. Ya just gotta get out of the Lay z Boy. Jonny, did you ever give the exercise thing a try? Is it possible that the 02 and exercise might work w/o the abortives? 14 years chronic and I might be singing a different tune but for now I have no experience with being there. I wouldn't waste money on what doesn't work, including meds but if I try something and the cure is potentialy worse than the pain then I gotta wonder why I'm doing it. I've been getting through this for a long, long w/o them and I'm still here living a mostly good life. I've read enough horror stories here that start like this: wrong meds, can't get to a doctor for two months, uncooperative insurance co's, meds, that don't work, panicky people that have run out of meds. I took all these meds. but now I've got something else. I decided that if I could stay away from the meds. I at least know how to deal with what I have and I don't have the expense. There are alot of people that have no insurance or shitty medical facilities or no money that need to find ways to deal with the pain other than outrageously expensive meds. and incompetent, overpriced doctors. When I mention life style changes or holistic methods I'm not talking about witch doctors and scents, I'm talking about what does work for me and has no side affects. Vigorous exercise, water and meditation. Sometimes it not as instantly gratifiying as 2 minute belly bomb while waiting in your car. But in the end I don't have to deal with the belly bomb instantly wanting to leave the premises. |
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Title: Re: instant gratification vs. clear thinking Post by don on Oct 6th, 2004, 9:17pm I admit I have tried "tree hugging" While repeatedly smashing my noggin on the trunk of the grand ole Elm. |
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Title: Re: instant gratification vs. clear thinking Post by Tom K on Oct 6th, 2004, 9:41pm Don't know if they got longer on their own or because of the Trex. I have had to go through a few with no meds because of taking Zomig NS and it not working. Had to go 6 hours with no other meds...sucked ass. Didn't see the cycle shorten any because of it, though. The exercise thing didn't work, I'm dancin' enough don't like trying to jog on top of it. If those things work for you, then have at it. Didn't work for me, rather take my chances with Trex, Trigger Point Injections and O2. What doesn't kill me makes me stronger, or something like that. And, like Jonny says, if the Trex kills me, then it kills the Beast, too. I've dealt for 21 years and know that I'm in for a lot more. F'ck 'em. I live my life, take my meds and let the chips fall where they may. I almost bit it 3 years ago, non-CH related and started smoking again, because I'm going to do what I want to do. I'm not going to do shit to please other people. Maybe the wrong attitiude, but it is my attitude. T |
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Title: Re: instant gratification vs. clear thinking Post by Gator on Oct 6th, 2004, 10:43pm I'm so very happy for you that you've found what works for you. As for me, I have discovered: 1. Exercise only delays the inevitable and a lot of times makes it worse. 2. You can't dance in the "Lotus Position" 3. Trying to pee (because of the extra water intake) while dancing makes for a HUGE mess in the bathroom. From your stance on drugs, I can only imagine you've never found yourself staring down the barrel of a .44 magnum as you put it in your mouth or took every pill out of the medicine cabinet and laid them on the desk with a glass of water preparing to do the only thing you know for a fact will end your pain. I've been there. If the pain from a ch is the devil, then O2 and trex are my saviors. Like McCoy said to the priestess (who performed Fal Tor Pan and restored Spock's Katra), "I choose the danger." Gator |
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Title: instant gratification can be a Good Thing Post by Mr. Happy on Oct 6th, 2004, 11:59pm on 10/06/04 at 22:43:47, Gator wrote:
Praise Wotan! Another satisfied customer. O2 remains the common denominator here.....let's not forget that important point as the gloves come off, gentlemen. I love my drugs. I remember the times before I had them. They really sucked. I got gallon bags of trex and zomig snorts, enough verapamil stored up to keep a rhino constipated for a year, and half a dozen O2 tanks laying around the house. Unfortunately, I've only been able to use the O2. Ate some of them damned shrooms (http://clusterbusters.com), and son of a bastich, I haven't had to sample any wares in over 2 weeks now. So much for Beta testing any new stuff. I still sleep with a 6 pack of trex under my pillow, tho. I'm not sure how holistic that is...... But it sure is Realistic, RJ |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 7th, 2004, 7:52am Let me clarify. I'm not against taking drugs. I have no problem taking drugs if they work. In fact I'm taking verap right now and I've still got a couple zomigs left over from when I gave it a try in August. The Zomig will get old and stale or end up in the trash because it didn't work. The only thing that changed was I got hit harder and more often when I tried it. The verap seems to help so it stays while in cycle but you can bet that it would be out if it didn't work or had seroius health consequences. I've never considered the ultimtate cure for the pain but I have done the math when it comes to deciding how often or how bad I want to get hit. My own experience taught me that zomig doubled the number and severity of the hits. It made my life unbearable so I stopped and went no further in exploring triptans. I looked for something less complicated and more affective. 02 works for most to abort but for some reason its hard to get a script for. Shrooms work to kill the cycle but are illegal. Neither one of these treatments has any downside. Exercise, Caffine, water, meditation etc. all work to some extent and don't make the condition worse. Doctors, hospitals and insurance companies make money on selling drugs they don't make shit on the others so where is their loyalty? That awsome feeling of being PF after a horrendous hit is very powerful but if what you are doing to get there is realy making your condition worse then maybe your not thinking clearly. I prefer to remain an episodic that gets hit every couple of years rather than do anything that even has the slightest chance of increasing the frequency. I'm not trying to convince anyone that I'm right or wrong. If the triptans work for you great, being pain free is everyone's goal. The point I'm trying to make is that if the meds. don't work more meds. may not be the answer. Remember the KISS theory. |
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Title: Re: instant gratification vs. clear thinking Post by Redd715 on Oct 7th, 2004, 8:14am Quote:
Try explaing this to your boss that you are leaving your desk and running around the block for a half hour, or sitting crosslegged doing nothing while your coworkers are covering your ass doing their job and yours while you meditate and suck down a gallon of water in the luch room three or four times over the course of the work day. Think you'd hold a job for long? Think youd be able to pay your rent or keep food on the table for your children? Think again!!! |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 7th, 2004, 8:25am Got two kids, two mortgages, 30 employees and two businesses to run. Yea been there done that |
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Title: Re: instant gratification vs. clear thinking Post by Redd715 on Oct 7th, 2004, 8:43am Hmmmm sounds like you are the boss and have job security....doesn't sound like this is much of a worry for you. |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 7th, 2004, 8:48am Its the same but different. I've got the job security of 30 people to worry about. Still gotta pay the bills and the bank don't wanna hear about no damn headache. |
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Title: Re: instant gratification vs. clear thinking Post by Redd715 on Oct 7th, 2004, 8:56am Yeah well, I'm off to commute 45 minutes to my job where I have to fucking ask permission to pee let alone go take care of a headache. I spend 99% of my day talking on the phone to people who think they don't ever HAVE to pay bills, some of them they CAN"T pay their bills, and I can't just toss my phone aside and say "Please hold... I have to go meditate a while" and I do this just so I can pay MY bills. Damn skippy I'm gonna keep trying whatever I have to to keep the roof I got and food in the pantry. |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 7th, 2004, 9:38am Good Luck Redd, I hope things get better for you. |
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Title: Re: instant gratification vs. clear thinking Post by Tom K on Oct 7th, 2004, 2:57pm on 10/07/04 at 07:52:28, karma wrote:
I don't know how you could surmise that. Each one of my cycles has been almost totally different then the last. Sometimes they last a few weeks, sometimes a few months. And that is whether I Trex or not. When I'm peaking and getting hit 8 or more times a day with K8's, the last thing I'm looking for is exercise. Hope your plan works for you, because usually just when I think I have the Bastard figured out, it throws me another curveball. T |
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Title: Re: instant gratification vs. clear thinking Post by Mr. Happy on Oct 7th, 2004, 8:45pm Karma......talk to Kim. You'se guys are on the same page. You go to your church, I'll go to mine. We'll meet here later and have a great time. Git down tonight........ RJ |
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Title: Re: instant gratification vs. clear thinking Post by thebbz on Oct 7th, 2004, 10:19pm When I find a prevent that works I will eat it dont care. Have one other therapy to try...am loaded for bear as I know its time any time. Have the trex and pred for back up . If boiling acid worked I would buy a five gallon bucket. I will continue to be the guinea pig as I have for 25 years,until I find something practical that works. As I too have to maintain employment cycle or not. I have found though once my employers see the demon in action they say go home I tell them home is for rest and cant rest there either,slam the trex take a break and go to the business of the day. ;;D BB |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 8th, 2004, 8:17am Blaming the triptans for making the cycle worse was easy. In over 15 years the cycle only changed when I used it. When I treid to abort with it the hits went from 2 a day to 4 -5 and from 15-30 minutes to 2 hours. Add sever shadows 24/7 with Zomig and virtually none w/o. Two days after I stopped the routine was back to normal. For you skeptics you can say its only conicidence but you'd be wrong. There is more and more evidence to suggest that the use of triptans may make the Cycle worse. I know it sucks because the triptans have been the saviour for so many in killing the pain but at what expense? There was a study inserted here that suggested that same thing a month or so ago. There are exceptions to every scenario but I would be willing to bet that if a study was done that tracked the progress of CH suffrers and the use of triptans it would show an increase in the severity of the cycle in direct relation to the increase in triptan useage. You can't get away from the fact that the sufferers here that take the most medication, including triptans are the ones that have CH the worst. Mind numbing drugs, Boneeating drugs, Stomach eating drugs and heart stopping drugs that may or may not help vs. 02, vigorous exercise, water, meditation, suppliments and shrooms that may or may not work? Everyone has a choice to make. Do what works best for you to get through. I know what I got and I know how to deal with it. I refuse to be a guinea pig and I'm still alive and kicking and enjoying life (most of the time) Show me a cure and I'll risk it but risking my health to treat the symptoms is not an option I will consider. |
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Title: Re: instant gratification vs. clear thinking Post by E-Double on Oct 8th, 2004, 8:47am I wish I had an answer(but don't we all) This is my first cycle using medication. It is also my longest. Is that why...I don't know. Previously, I only got cycles 2x a year, only at night for about a month. This cycle started out day and night and went untreated for the first few weeks. Then came the diagnosis and then the meds. Well it's now nearly 20weeks of a cycle, 17 of which are on meds..... Is this the course of the cycle or is it the meds??? I honestly don't know nor care to be honest. All I know is that I was not functioning and although they still come I am living a mostly "normal" life again. If the cycle breaks great... I will find out next time whether it is meds or not because I will try them again. If not, honestly I will stay the course because I'm functioning. I keep a spreadsheet of all CH activity including every variable that I could account for. That's a lot of data.... The only true way scientifically would be to do reversals. Test to see how the CH responds when on meds and off. The only problem with that is the CH change for many regardless if on or off. Too many variables to measure or control for. AND try finding someone who finally has tasted relief to get themselves to give it up to prove a hypothesis. Funny thing is, even as a scientist by nature I wouldn't do it. Why mess with a good thing?? Glad you found what works for you. I mean that!! Eric |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 8th, 2004, 12:48pm I need some help trying to understand. Why is it that when an alternative method is tried and it is not completely successful its thrown in the rubbish heap and when a potentaily harmul drug is tried and not completely successful people think that more dosages are ok? From my experience it really doesn't matter what method you use, if you don't get a handle on it right away your in for the ride. Forget about all the consequences that being disbaled have for awhile have just think about the treatment. |
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Title: Re: instant gratification vs. clear thinking Post by Kevin_M on Oct 8th, 2004, 1:39pm on 10/08/04 at 12:48:16, karma wrote:
Some doctors have had more success treating clusters with higher doses of say, verapamil when lower doses didn't work. When higher doses of verap weren't effective, sometimes adding lithium helped. Same for topomax. There can be a level of dosage that can make the difference. Since there is really no preventative made for clusters, higher doses of other medications can sometimes sporadically work. But... if something like chiropractic sessions did not work, I would not go in for more frequent sessions. If hot peppers did not work, I would not opt for hotter and more peppers. If running did not work, I would not run longer and harder with a cluster, who knows where I would end up and what I would do; and if meditation did not work, I would not persist to meditate longer. Now with running and meditation, the opportunity to utilize these methods is not always available, but if I had to, yes, I would experiment. Although I actually do some type of pleading mantra when hit, but it's to maintain sanity I think. Nonetheless, when I can stop an attack with imitrex everytime, or with oxygen, these I will keep near and use. They are convenient and effective. Though I take them, I'm not a fan of prevents medications, not much luck. Kevin M |
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Title: Re: instant gratification vs. clear thinking Post by whitestone on Oct 8th, 2004, 4:09pm Well said Kevin. I know I am not the only one reading this message board that goes through the insane phase. You know, the pleading for your life to be taken from you, hot, cold, head banging, don't give a damn what you do as long as it is gone. My wife saw me for the first time hit a K8 the other night. Usually, she's still asleep and I "do my thing" downstairs, as quiet as possible. I just got out of a cycle (I believe...oh God I hope), the first one I've had in like 4 years. I've done the O2 as well as Trex. When I did the trex pills, I used up to 16 a day. (I'm not condoning this at all). The nasal and shots worked better...but it's the insane factor that causes you to not give a rats tail if this shot takes a couple years from your life...just as long as you can see past the next 10 minutes. |
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Title: Re: instant gratification vs. clear thinking Post by BlueMeanie on Oct 8th, 2004, 6:50pm on 10/08/04 at 08:17:37, karma wrote:
I use Imitrex for EVERY CH. Every cycle is different with intensity, length of cycle & number of attacks per day. Imitrex makes NO difference for me. Before Imitrex when I suffered through EVERY CH my cycles would still ALL be different with intensity, length & number attacks per day. You just never know with the Beast. It stays as long as it wishes and hits as many times as it feels like. Quote:
As long it it ends my CH I don't care until they find something NOT as dangerous that WORKS. Quote:
Those things DON'T WORK for me so it's back to the Imitrex. Quote:
I'm glad you found something that works FOR YOU so you don't have to take meds. PF vibes that it KEEPS working for you. |
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Title: Re: instant gratification vs. clear thinking Post by Filbert on Oct 9th, 2004, 5:35am Hi to all. When asked at the London meeting of OUCH UK in June 2004 "Do you think taking Imigran/trex could extend your cycle?" Prof Goadsby replied " Probably!" The same person asked " and how about verapamil?" Prof Goadsby replied "Probably!" All I know is I went through eight cycles undiagnosed and therefore with no effective meds.Cycles lasted 3-4 weeks. Last cycle I got the imi shots. Length of cycle 9 weeks.What a terrible decision we have to make! Should we therefore be advising newbies to take these medicines without at least mentioning that there are certain people who think cycles could be made longer. I know of three people who believe verapamil turned them chronic. Just my £10 worth. Take care Filbert. edit for spelling |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 9th, 2004, 8:23am This thread was started for two reasons 1) to provoke some seroius thought on the long term affects of Ch and the treatments. 2) because I am personaly terrified of having it get worse. It is a terrible decision we have to make, especially when 99.99% of the population don't understand why we need to make a choice in the first place. I have accepted the fact that I have CH. I don't fight it. I don't abort with drugs and won't try prevents again. Its difficult to explain but when I get hit I am able to isolate the pain and although the pain is still there it doesn't affect me the way it used to. Getting through it with what I've got has made me stronger. I've got no anxiety over running out of meds. or worry if the meds will work or not. Its just me and the pain and I know I will always win. I figued this out when I had to go off island to see a doc. I was on a flight to fla. to see a neuro for this and got hit on the plane. Then driving down to keys from Mia I got hit again. I couldn't stop because If I did I was gonna be late so instead I came damn close to endangering other people on the road at 85 mph. I just didn't care and thats scary. Bingo the light went on! If I'm in the middle of something or with someone and I gotta get away for awhile thats what I do. If they don't understand thats there problem not mine. You guys do what you gotta do but please consider the consequences of how you fight your own personal battle. Don't get caught with the blinders on. Consider all the options, Ask questions and don't let the pain or the treatment ruin your life. PF wishes to all |
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Title: Re: instant gratification vs. clear thinking Post by don on Oct 9th, 2004, 12:07pm I upped my visits to the chiro..........didn't work I upped my visits to the Accupuncturist...didn't work I upped my therapist visits......didn't work I upped my dosage of OTC weeds in a bottle....didn't work I upped my massage therapy.........didn't work I upped my bio feedback sessions.....didn't work I upped my verapamil....... THAT WORKED! |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 9th, 2004, 1:03pm You forgot about the tree hugging |
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Title: Re: instant gratification vs. clear thinking Post by don on Oct 9th, 2004, 4:33pm Oh yeah. I got a rash and now I pay monthly sapling support. |
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Title: Re: instant gratification vs. clear thinking Post by Tom K on Oct 9th, 2004, 4:34pm on 10/08/04 at 16:09:22, whitestone wrote:
Yeah, but it's the crappin in your pants, drooling on yourself years...rather Trex now. [smiley=laugh.gif] T |
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Title: Re: instant gratification vs. clear thinking Post by Heretic on Oct 10th, 2004, 3:10am Hoping not to offend anyone. :o After 10 years as a sufferer, my usual Instant Gratification used to be 4 Aspirins and Physical Exercise that promoted Hyper-Ventilation, and at times included Sexual Self-Gratification which ended most episodes within 10 minutes after ingesting the aspirin. Unfortunately, My CH's have progressed to Migraines, now I'm on Imitrex tabs, 100mg. And Cafergot can't be found anymore either! Am I the only one who has used this technique ? |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 10th, 2004, 8:39am The aspirin probably doesn't do anything but vigorous aerobic exercise no matter what it is as long as it significantly increase the air and blood flow seem to be the key to success. I've found that it works best when you cool down slowly rather than stop all at once. Probably that is the reason it doesn't work for some people. The drugs and the anxiety kill the determination to make it work. Taking a pill or a shot is easy and it usually works even though it probably increases the length and severity of the cycle. Do what ever works. |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 10th, 2004, 9:11am "This is my first cycle using medication. It is also my longest" Like I said do what ever works |
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Title: Re: instant gratification vs. clear thinking Post by E-Double on Oct 10th, 2004, 10:05am on 10/10/04 at 09:11:00, karma wrote:
Since you're quoting me I will add some more. I don't question's people's methods for relief of this god awful thing we have. Unless it is complete dangerous garbage, suggest what you want. This is a general statement not directed at anyone. As far as it being my first cycle being medicated and the longest cycle to date, it might be coincidence, it might be a direct cause. I don't know!! All I know is that my old tricks of nonmedicinal treatment did not work anymore. PLUS they were not just @ night like they had always been. During the day I could not just stop what I 'm doing, tie a bandana around my skull, place a towel over my head and over a stream filled sink. Not possible. I could not run in place for a half hour or pace around the block for how ever long it took nor could I scream and bang my head. I also can not take the time to bring myself to another place per se' I only could take 15 minutes to regain my composure and take my Oxygen and Trex. I hate meds as much as anyone however, I like having my life back and I like being able to teach, run my practice, lecture, and consult way more. I just wish everyone the best results with whatever method they use to feel better. Eric and by the way there is no such thing as Instant Gratification with any of us regarding the pain. We can get into a conversation about that seperately. Undersatnding "that" is part of my expertise. We'll discuss pain management and human behavior if ya like. |
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Title: Re: instant gratification vs. clear thinking Post by Filbert on Oct 10th, 2004, 10:16am Great post Eric I think that sums up the situation that we face perfectly. I'm certainly not an advocate of the hollistic approach [simply because it doesn't work for 99% of people as far as we know]. I just feel that if the meds that give effective relief do turn out to prolong cycles that's just one kick in the teeth too many! Filbert |
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Title: Re: instant gratification vs. clear thinking Post by Redd715 on Oct 10th, 2004, 10:19am Quote:
Am I the only one who caught this? WTF?????? |
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Title: Re: instant gratification vs. clear thinking Post by Filbert on Oct 10th, 2004, 10:23am Perhaps he meant to write Fortunately |
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Title: Re: instant gratification vs. clear thinking Post by Redd715 on Oct 10th, 2004, 10:30am on 10/10/04 at 10:23:38, Filbert wrote:
With the word progressed in there I doubt it. ::) |
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Title: Re: instant gratification vs. clear thinking Post by nani on Oct 10th, 2004, 10:32am Quote:
Caught it, Redd. :o |
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Title: Re: instant gratification vs. clear thinking Post by don on Oct 10th, 2004, 10:53am I wish I could be that unfortunate. The only thing my CH could progress to would be a beheading. |
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Title: Re: instant gratification vs. clear thinking Post by Ruth on Oct 10th, 2004, 11:07am Well, Here's my 2 cents worth, after nearly 36 years a CHer, I have found something that aborts the pain (imitrex). I use it. I am well aware of what it is like to go through cycles long or short without meds. I have looked down the barrel, I have raised two children and held down a full time job with out meds, it sucks and if a person can and will get through these times without meds, well so be it. If I have a choice and I do, I will take the meds because mentally and physically I am not up to doing the ride with out my meds. Ruth |
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Title: Re: instant gratification vs. clear thinking Post by Redd715 on Oct 10th, 2004, 11:21am on 10/10/04 at 10:53:43, don wrote:
or the insatiable craving for the taste of gun metal? |
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Title: Re: instant gratification vs. clear thinking Post by E-Double on Oct 10th, 2004, 12:02pm The progression statement was caught. It was just left alone. The holistic thing would be welcome if it worked for me. When you think of all the chemicals that we take in, there has to be some natural suppliments that do the samething. That is fact. Is it easier to take a shot or swallow one pill then swallow a couple dozen? You betcha. I take quite a handful of dietary suppliments. Isn't that a part of holistic healing? What I don't do is sit in a circle of shells with a pyramid on my head. But if that were scientifically validated I bet all of us would ;) I don't think this is supposed to be a debate. It was just some food for thought. I certainly appreciate it. Later, E. |
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Title: Re: instant gratification vs. clear thinking Post by lionsound on Oct 10th, 2004, 12:18pm My three cents 1. you don't have to sit cross legged to meditate, no shells, no pyramids :) you can sit in a chair. 2. I meditate and exercise daily and I do it for myself not my headaches, if it helps that's an extra bonus. 3.Often instant gratification with meds IS clear thinking. ( a friend helped me to learn that last night :) ) -L |
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Title: Re: instant gratification vs. clear thinking Post by notseinfeld on Oct 10th, 2004, 12:32pm Quote:
That'd be a 'regression' Don. |
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Title: Re: instant gratification vs. clear thinking Post by Filbert on Oct 10th, 2004, 12:38pm on 10/10/04 at 10:23:38, Filbert wrote:
Redd I was joking with this post. Filbert |
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Title: Re: instant gratification vs. clear thinking Post by Heretic on Oct 10th, 2004, 7:27pm on 10/10/04 at 03:10:30, Heretic wrote:
on 10/10/04 at 10:19:02, Redd715 wrote:
I used to get a CH only once a night, that would last 15-30 minutes.....Daily, for the past 12 years. Now I get 2 Pains a day that can last from 2-4 hours...... So knowing that Migraines are in my bloodline......... I'd rather have the daily 15 minute ones compared to these 2-6 hour ones, which I classify as Migraines. That's what I mean. Fortunate would be being able to have a Beer without worries, Fortunate would be not having to take Trex, Fortunate would be having a Drill-bit enter my Skull at times too! |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 11th, 2004, 8:14am Eric, Originaly I wanted to insert a bunch of quotes that showed both sides of this. I still don't know how to do that so yours ended up alone. That quote by itself is out of context with your overall post. I know that and I'm sorry if it caught you off guard. If this thread forces some people to question the effectiveness and consequences of all the treatments before blindly accepting them then it has been useful. If I could I would have everyone try 02 first to abort, clusterbusters and suppliments to prevent and if that doesn't work progress to the meds. |
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Title: Re: instant gratification vs. clear thinking Post by Kevin_M on Oct 11th, 2004, 9:10am on 10/11/04 at 08:14:40, karma wrote:
The problem is, once they get the MD after their name, doctors adhere to "accepted medical practices" first. Blindly accepting non-medical practices would not be as safe. Kevin M |
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Title: Re: instant gratification vs. clear thinking Post by karma on Oct 11th, 2004, 10:06am Yup its up to us to make ALL the things that work accepted medical practices. Shit I can't believe no one is backing me up on this thread. [smiley=huh.gif] Maybe I don't have Ch and its all a dream. Yea thats it I'll wake up and it will all be gone. [smiley=sayyes.gif] |
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