Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Woohoo!  Melatonin!  Melatonin!
        
(Message started by: Tom K on Sep 14^th, 2004, 6:18am)

Title: Woohoo! Melatonin! Melatonin!
Post by Tom K on Sep 14^th, 2004, 6:18am

Finally got 8 hours. Yes! Gotten woken up with a K4 or maybe it was a K6, I don't really know because I was pretty brain dead after 8 hours of sleep but I slept all the way until it came. Thanks for the advice, everyone. Taking my BComplex and going to see the new neuro today. I have never been so excited to see a doc in my life! ;;D

Title: Re: Woohoo! Melatonin! Melatonin!
Post by plateglass on Sep 14^th, 2004, 8:03am

Hey Tom I just had the same results. Took 9mgs of Melentonin last night, slept all through the night. Woke up with a Kip 3-4. Not bad at all ... But like you said What a night of sleep!

Title: Re: Woohoo! Melatonin! Melatonin!
Post by E-Double on Sep 14^th, 2004, 8:50am

Did you guys just start taking it??

Stick with it.
I personally would get hit after about 1/2 hour awake. It was almost as if the beast was just pushed back during the night and woke when I woke. Those subsided as well. The rest certainly appears to have helped me battle during the day.

SLEEP IS GOOD

Good luck and enjoy :)

Title: Re: Woohoo! Melatonin! Melatonin!
Post by thomas on Sep 14^th, 2004, 9:08am

AWESOME! ;;D

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Tom K on Sep 14^th, 2004, 10:45am

I did a little "cocktail" of 100 BComplex and 3mg of Melatonin last night, then 100 BComplex and a Multi Vitamin this morning. Got hit at 4:15 and just now at 9:15. The 9:15 wasn't as bad as they have been in the past few days. WooHoo! Mel-a-tonin!

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Giovanni on Sep 14^th, 2004, 7:29pm

[smiley=sayyes.gif]

Great News................

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Mr. Happy on Sep 14^th, 2004, 7:51pm

Quote:

Melatonin.com
... Melatonin has no known LD50 at this writing which means it is nearly non-toxic."

Sounds good to me. Try tossing some Magnesium into your kokkktail......just avoid the kind that has "Milk" in it. There's nothing like a controlled, non-toxic experiment.

Chew, chew, chew,
RJ

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Superpain on Sep 14^th, 2004, 7:58pm

It sounds to me as if melatonin has the highest efficacy of any of the things we use for relief.
That shit's great. ;)

Title: Re: Woohoo! Melatonin! Melatonin!
Post by whitestone on Oct 8^th, 2004, 4:42pm

I used melatonin for a year...I did not even think about it helping w/ the clusters, but it did when I had a cycle, but after a year, my sleep became, I don't know how to describe it, but dirty. I woke up in the morning feeling though I had slept at all. This continued for several weeks until I stopped using it. I haven't used it again in a cycle. Thanks for posting this, I'll probably try it.

AWESOME IF IT WORKS FOR YOU.

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Tom K on Oct 8^th, 2004, 5:18pm

Well, it's been 3 weeks, roughly on the tonin. Still getting a good nights sleep, no hits. Weird thing, dreaming my ass off around the time I get up. Not getting hit, been PF for about 7 days, now. Took a nap last Sunday, Bears were losing big time, didn't take the tonin and woke up with a small shadow. Nothing major and didn't need Trex for it. Went away in about 30 mins. Don't know and not going to change anything for fear of jinxing my luck!

T

Title: Re: Woohoo! Melatonin! Melatonin!
Post by tex_leger on Oct 8^th, 2004, 5:52pm

I read about the test, but they used only 3mg. just started taken melatonin and would like to know more about 9mg is there any problems with taken that amount.
tex ;)

Title: Re: Woohoo! Melatonin! Melatonin!
Post by E-Double on Oct 8^th, 2004, 6:31pm

on 10/08/04 at 17:52:16, tex_leger wrote:

I read about the test, but they used only 3mg. just started taken melatonin and would like to know more about 9mg is there any problems with taken that amount.
tex ;)

I AM NOT A DOCTOR but my doctor suggested 9-12mgs to start with. I started @ 6 and it has done the trick. Once in a while if I feel like a rough night may be on its way I will take 9mg. That is just what I do not medical advice. ;)

E.

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Connie on Oct 8^th, 2004, 9:38pm

Always heard of melatonin but never pursued. After ready these posts I did some research. Seems like it can't hurt. Won't be able to talk to neuro until Monday but I feel like running out and buying it tomorrow.

Any thoughts?

PS - I know you guys/gals are not doctors, just looking for what has worked for you and then I will do my own reserach.

Thanks

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Kris_in_SJ on Oct 8^th, 2004, 9:58pm

So glad it worked for you! (Gator, are you reading this?)

I'm still a convert, even though my cycle is winding down. I was taking 9mg, now down to 6.

The vivid dreams caused by Melatonin are documented on several sites. I find it kind of curious though, since Melatonin is supposed to suppress REM patterns during sleep. All I know is it sure helps me - glad to know it's helping you too!

Hugs,

Kris

Title: Re: Woohoo! Melatonin! Melatonin!
Post by cschick on Oct 8^th, 2004, 11:36pm

Just took 9mg myself - I read about it last night and ran to Wal-Mart tonight and bought some. I will try anything to keep from getting woke up with a k8-k10, which is what I get in the middle of the night. I don't have my appt with my doc until next Friday. hope I can make it another whole week without Hubby having to hide the gun from me. When I had my cycle last year he hid the handgun from me because I was going to shoot myself. I even begged him to do it for me. I will do whatever I can to try to prevent the beast from sneaking in.

Title: Re: Woohoo! Melatonin! Melatonin!
Post by tex_leger on Oct 9^th, 2004, 8:17am

Thanks e-double I'll give it a try, I didn't think there would be any trouble just wanted to make sure, glad you said your Dr. recommended it. take care and good luck ;)

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Judo_Tom on Oct 9^th, 2004, 5:43pm

CONGRATS!!!

might want to add some zinc to the mix as well

Title: Re: Woohoo! Melatonin! Melatonin!
Post by floridian on Oct 9^th, 2004, 8:48pm

on 10/08/04 at 21:38:41, Connie wrote:

I think melatonin helps me. My summer cycles start with a distinctive pattern of insomnia/disturbed sleep. I start taking melatonin as soon as I notice those changes, and it seems to get me back to normal. Melatonin doesn't help everyone, but if it does help you, it is a good thing.

Title: Re: Woohoo! Melatonin! Melatonin!
Post by hoosierdaddy on Oct 10^th, 2004, 11:15am

My pharmacy recomended that I talk to my doctor before trying melatonin, he said that the meds i'm on could have some reaction to it.

I'm taking Varapamil 240mg, Divalproex ER 500mg and just finished a prednisone taper but my doctor put me back on a 5 day constent prednisone dose of 20mg 3 times daily, and Zomig nasal spray after trex pill didn't work.

Have any of you had any reactions?

Title: Re: Woohoo! Melatonin! Melatonin!
Post by E-Double on Oct 10^th, 2004, 12:08pm

on 10/10/04 at 11:15:41, hoosierdaddy wrote:

Have any of you had any reactions?

Just sleep and no more wake up calls.

I'm not a doctor though ;)

Title: Re: Woohoo! Melatonin! Melatonin!
Post by hoosierdaddy on Oct 10^th, 2004, 12:26pm

Thanks E, I'm gonna try it tonight 9mg and see how it goes.

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Connie on Oct 10^th, 2004, 2:20pm

I just bought it Vitamin Shopp Brand 3mgs. Want him to try it tonight but not sure if I should start with 3, 6 or 9 mgs. He is only on Verapamil & Topamax.

Guess I will research alittle more to make sure there are not interactions.

Has anyone had the melatonin make for more frequent clusters? He only gets up about 2x and the O2 has been working, kinda apprehensive to put anything new into the mix right now but also thinking maybe he won't get up at all.

And the saga continues....

Title: Re: Woohoo! Melatonin! Melatonin!
Post by E-Double on Oct 10^th, 2004, 3:26pm

on 10/10/04 at 14:20:47, Connie wrote:

Here's what happened with me....
I started with 3mg which is what the bottle suggests despite my doctor telling me to take 9-12.

It did nothing for the CH. I woke up in the middle of the night and got slammed only I was too groggy to find any of my meds.

The next night I went up to 6mg. I slept for the entire night for the first time in cycle. Big smiles... I wound up getting slammed about 1/2 hour after being awake. This happened for the first couple of days.

I stayed with 6mg. and have managed to sleep through the night since July with the exception of 4 or 5 times.

Once in a while I will take 9mg if I feel like it's going to be a rough night (heavy shadows) or have had a really rough day and need a real break.

This is just what I do. For me it has been a godsend!! If I were only getting hit during the night again I would still take it then I would be completely PF. Mine just happen to come during the day as well. At least I'm rested :)
It is not necessarily what will work for you. I can only hope for ya :) Do your research and talk to doctor like with any med.

Good luck,
Eric

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Tom K on Oct 10^th, 2004, 5:49pm

Let me add something. I started off the same way as E. I mixed mine up though. I take 6mg of regular and 3mg of extended or time released. Don't know if it matters but seems to be working. Going to the doc tomorrow so hopefully I can start working my way off this stuff, soon.

T

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Kris_in_SJ on Oct 10^th, 2004, 8:24pm

Ditto to the above - I started with 6mg, but after 2 nights, went up to 9mg. That was my magic number.

I don't know of any cases where Melatonin interacted badly with the meds you mentioned your hubby was on. Worst case scenario is he might be groggy in the morning, though I've never experienced that.

I've taken Melatonin off and on for several years in lower doses for menopausal sleeplessness so increasing the dosage wasn't a big jump for me. Just know I'm grateful it exists at all - and without a prescription!

Good luck,

Kris

Title: Re: Woohoo! Melatonin! Melatonin!
Post by hoosierdaddy on Oct 11^th, 2004, 8:07am

I tried it last night.
9mg about 1 hour before bed. I was having really wierd HA from about 7:00 till 10:00. strong k7 for 3min then gone! 10mins later same thing and then nothing for an hour then another one.

But, I slept like a baby. Non interupted from 11:00 till 5:30. PF so far and loving that advice.

Thanks everyone

Title: Re: Woohoo! Melatonin! Melatonin!
Post by E-Double on Oct 11^th, 2004, 5:27pm

on 10/11/04 at 08:07:17, hoosierdaddy wrote:

But, I slept like a baby. Non interupted from 11:00 till 5:30. PF so far and loving that advice.

Thanks everyone

Sleep is good!!! :)
Glad to hear ya caught some zzzzzzzzz

Title: Re: Woohoo! Melatonin! Melatonin!
Post by JeffB on Oct 11^th, 2004, 7:34pm

Has anyone used Nortryptoline? They say it's for depression but aids in the pain and helps one sleep better. I am sleeping better but still get the visit from the beast around 3am.

Title: Re: Woohoo! Melatonin! Melatonin!
Post by cschick on Oct 12^th, 2004, 7:54pm

I am on Nortriptylene, has helped control my migraines but hasn't done crap for the CHs. I have been on Nortriptylene for over a year for my migraines which when I first started it I was having migraines about 6-7 times a month and now I am down to the first 3 days of my period. Working well for me for migraines but not so great for CHs. Never know though from what I have learned here nobody is the same.

Title: Re: Woohoo! Melatonin! Melatonin!
Post by becky8 on Oct 13^th, 2004, 9:58am

I just started on the Melatonin a few nights ago. Started at 6mg didn't help. The next night I did 9mg and made it til 3:00 am but still woke with a kip5. Last night I did 6mg reg and 4mg time-released, made it until 2:00am but slept great and didn't wake with any Ha. Tonight I am going with 6mg reg and 6mg time-released. I read in a Neuro's review someone sent me., the Dr.'s start off with 9mg and some people even have to go up to 12 like me. And best news they said was sometimes it even helps with the day ones.

Title: Re: Woohoo! Melatonin! Melatonin!
Post by becky8 on Oct 13^th, 2004, 10:00am

Forgot to mention, my dream last night was when I awoke my bedroom was filled with 02 tanks (I don't have 02 yet) I thought it was kinda funny!!!

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Tom K on Oct 13^th, 2004, 12:32pm

Becky, my neuro told me to give higher doseages a week to stablize in my system. I ramped up to 9mg over 7 days. It didn't work right away at 9 but after a few days, I was getting better and better sleep.

T

Title: Re: Woohoo! Melatonin! Melatonin!
Post by becky8 on Oct 13^th, 2004, 5:48pm

Tom,
Thanks for the info, maybe I'll just stick with the 9mg for awhile and give it a chance. I wasn't sure how the melatonin thing works, but they say its not harmful? Right?

Title: Re: Woohoo! Melatonin! Melatonin!
Post by Tom K on Oct 14^th, 2004, 12:44pm

Correct, not harmfull. Don't know how it works, either, but it does. For me, anyhow....

T