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        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> so tired of being chronlc
        
(Message started by: eddie on Sep 13^th, 2004, 3:58am)

Title: so tired of being chronlc
Post by eddie on Sep 13^th, 2004, 3:58am

i have been chronic so long
i have lost count
i have done the pred taper 3 times just this summer
verapamil
melintonin
o2
imitrex
my next step is cluster buster
i do have family in jacksonville FL if they can get back
the hits i get are not as often or as long but long enough k6tok8 about 5 to 8 times day and night
i have some research to do THANKS EDDIE

Title: Re: so tired of being chronlc
Post by unsolved1 on Sep 13^th, 2004, 8:34am

Hang in there Eddie. There are many of us in the same boat as you.

Chronic for 4 years myself. Not much helps. Looking at the shet i've been through might make you feel better ! Read THIS (http://www.chhelp.org/michaelsprocedures.html)

Unsolved

Title: Re: so tired of being chronlc
Post by Giovanni on Sep 13^th, 2004, 8:53am

So sorry you're getting hit so badly right now Eddie :-/

I believe the alternative treatment might be the way to go as soon as you're able.

John

Title: Re: so tired of being chronlc
Post by eddie on Sep 13^th, 2004, 10:38am

THANKS, im going to get it together
and try it because pred , had it enough
this year the other meds are not that
bad. but i have taken pred since i was
23yrs old i cant keep taking it.
thank you to all
PFDAN TO ALL

Title: Re: so tired of being chronlc
Post by ferbio36 on Sep 13^th, 2004, 1:08pm

I have had them for 20 years.Hang in there bro.I have tried every med under the sun.The best way that I deal with them is to take percocet before they start.I went to a holistic neurologist,and she told me to try something called pain gel.It's basically a benzocaine mixed with camphor.If you have noticed,the pain is also focused in the nasal canal besides the eye.You take pain gel on a cotton swab,and swab it up the nostril as far as you can get it without hurting yourself.It numbs the nerve pain in the nose and gives pretty good relief.If you can't afford pain gel($70.00),just use anbesol(the toothache gel).It works just as well.These two things together give pretty good relief.Hope this helps.It sounds like fringe treatment,but if it works,what the hell right.?Take care.

Title: Re: so tired of being chronlc
Post by miapet on Sep 13^th, 2004, 11:35pm

Eddie,
D was chronic for 20 years. The good days meant only one or two h/as . . the bad days meant one right after the other, every hour, for about 40 minutes each. He too had tried everything (except DHE and surgery). The alternative treatment is the only thing that worked for him. On Wednesday, we will be marking our 18th week p/f. We highly encourage the alternative, with o2 to abort as you get off the pharmacy, and to use in conjunction with the alternative. We have not used o2 since early May . . .it has been a life changing event.
*positive light and energy*
miapet

Title: Re: so tired of being chronlc
Post by mynm156 on Sep 15^th, 2004, 4:33pm

Eddie,

Sorry to hear about being chronic. I too have recently been diagnosed as chronic Zomig NS, Stadol NS, Verampamil, Zonegran, Imitrex when I am out of Zomig.

Good Vibes !

MYNM156

Title: Re: so tired of being chronlc
Post by Karla on Sep 15^th, 2004, 5:59pm

I was chronic for the last 6 years and have been pain free now for the last 5 months. Looks like Ive turned eposodic. Have you tried lithium, or topamax or Neurontin or verapamil and lithium together or DHE, etc.? There are many more meds you could try then what you listed. Maybe you just didn't feel like typing them all. Been there done that. Anyway If you haven't tried any other meds let us know and we can list off some more for you but the ones I listed are the main ones that I am aware of.