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        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> 2 Weeks into Verapamil &
        
(Message started by: mynm156 on Aug 24^th, 2004, 6:16pm)

Title: 2 Weeks into Verapamil &
Post by mynm156 on Aug 24^th, 2004, 6:16pm

Hey Guys,

I started another go around with Verapamil and after a couple weeks I have noticed that there has been a decrease in the amount of my clusters. I still get them couple days a week but maybe a total of four a week now, which is a far cry from the 3-4 days a week 3-5 a day that it was. HOWEVER, I have noticed that the ones I get are OFF my previously known KIP scale. These Beasts are beyond painful!!!! They hit at night and take a good 20 mins or so after 2 doses of Zomig. STADOL was a wast of time helped me sleep afterwards I suppose but WOW!!!

I was just wondering if anyone else has had this type of thing happen with they used Verapamil.

Good Vibes and stay PF

MYNM156

Title: Re: 2 Weeks into Verapamil &
Post by Kris_in_SJ on Aug 24^th, 2004, 8:13pm

Hi,

Glad you're getting some relief.

Actually, it sounds like the Verapamil is working. Don't know what your dose is (480mg/day is my magic #), but maybe your cycle is peaking. The Verap is knocking back the number of HA's, but maybe hasn't yet reached the effectivenes where it can knock out those 9-10's that hit you at your peak.

Thanks to Imitrex injects, I never have to go there - 4-5 minutes and I'm good. Maybe you need a different abortive?

Just a thought ... don't give up on the Verap!

Kris

Title: Re: 2 Weeks into Verapamil &
Post by IndianaJohn on Aug 24^th, 2004, 8:34pm

Gotta agree with Kris, the verap does sound like it's working. You may be peaking in you cycle, like I did two weeks ago. I ended up getting some prednisone which helped alot. Maybe losing the stadol and going with the prednisone my help.

I use the Imitrex nasal spray. I get some relief in about three minutes and get PF in 5 or 10. I just hate needles!

Best Wishes!

John

Title: Re: 2 Weeks into Verapamil &
Post by Biker on Aug 24^th, 2004, 10:53pm

Verapamil slows mine down alot, but I dont think they ever stay completely away. I had been prevenative free for quite a long while, and the CH returned early this past summer. Finially broke down and got on a predisone taper, and was taking 220mg verap a day. Ch was gone for nearly 2 weeks, then one night WOW!!!!!!!! Completely different feeling in the same spot. Kind of like a burning pressure. I did not actually recognize it at first. I ran for the oxygen when I finally came full awake, then the imitrex tab. I ran my verap up to 330mg per day, for about a week. Now, Im reducing the Verap. Have to find my happy medium for this particular cycle. Hang in there, and keep trying.

Title: Re: 2 Weeks into Verapamil &
Post by jhgnopain on Aug 25^th, 2004, 1:58am

Verap did the same for me (in combination with indomethicin). I used to get them every day and with these two meds, I can be lucky and only get 2-3 per week. I wish you endless pfdan!!!

Title: Re: 2 Weeks into Verapamil &
Post by ex_pat_asia on Aug 25^th, 2004, 1:15pm

on 08/24/04 at 18:16:11, mynm156 wrote:

I started another go around with Verapamil and after a couple weeks I have noticed that there has been a decrease in the amount of my clusters. I was just wondering if anyone else has had this type of thing happen with they used Verapamil.

Mynm, I can almost say ditto to your post but I started a betamethason taper at the same time as the Verapimil so it has been difficult to figure what is doing what to what. :-/ The relief was nearly immediate, starting in the 24 hour period of the second day of the drugs, a noticeable diminishment in symptoms. I guess we should "hi 5" now eh?

However, I am nearing the end of the taper and will soon find out if the verapimil is doing the work. I am having a couple of attacks a day still but they have been more manageable for the most part. Actually I shouldn't have said verapimil alone. I also started Cafergot at noon and again at bedtime (my "prime" times.) I will be starting verapamil at 480 per day in two days. Presently at 240.

Also using melatonin and I use Oxygen to abort when needed.

Delighted to hear that you got some relief and hope it continues.
PFDAN to all.