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Title: Psilocybin Study, update Post by Pinkfloyd on May 25th, 2004, 3:03am ;;D Yes I'm posting this here and on the general board. I hope DJ doesn't mind as I feel it's important. Responses, if any, don't need to be put in both places :) Update on the Psilocybin Study MAPS has added the Psilocybin research for Cluster Headaches to their website. http://www.maps.org/research/index.html#PSILOCYBIN More information will be added within the next week. The project is also mentioned in their most recent MAPS email news, that is sent to all their members and is listed again on their home page. The study is also mentioned in the MAPS Bulletin that is at the printers. When it comes out in a few weeks, it will be archived on the MAPS website. This begins their, and our, public appeal for additional funding. MAPS has already begun mailing information to potential donors. In addition to coordinating the entire project and handling all the paperwork submissions, they are also donating all their time and their overhead costs of the project. This is a substantial donation by MAPS. It is also my pleasure to announce the identity (as it were) of the donors that came forward and invested not only a large sum of cash but also a large vote of confidence in this research. Had this donation, in this sum, not been made, we would have been far removed from the point of progress we now find ourselves. Marsha and David W. (Marsha posts here under the name maria9) have made a $50,000.00 donation that has already been received by MAPS. For those of you that know Marsha and Dave or discover their last name at MAPS or elsewhere, I (and they) would appreciate all due respect for their privacy and not posting it on this or any public message board. Had they been able to make this completely anonymous, they would have. Since it can not be so, we would prefer their names not to come up on google searches. We at Clusterbusters can not thank them enough for not only the donation, but the confidence they have shown in Clusterbusters, the research, and the treatment possibilities in the future. If you would, or know anyone that would, like to make a donation, a link can be found currently at: http://www.maps.org/cgi-bin/thatsanorder_LE You do not have to join MAPS. All donations should be marked as being specifically intended for use in the cluster headache study only. "Cluster Headache Study" in the notes on paypal or checks mailed directly, will be sufficient to guarantee that all funds will only be used for this research. We will shortly be added to a priority funding page that is currently being reworked on the MAPS site to include this project. If you know of anyone that might be interested in making a substantial donation or wishes to discuss funding, they should contact Rick Doblin directly at MAPS. His email address can be found on the linked page. Dr. Halpern, Dr. Sewell and Rick Doblin are in receipt of over 300 pages of detailed anecdotal reports on the treatment. They are currently reviewing the data and information. It's first use will be for publishing a paper in a peer reviewed journal(s). These collections of anecdotal testimonials will be culled through and a representative sample will be contacted for follow-up and further evaluation. If anyone is interested in being interviewed, and have not yet given me your contact info, let me know and the information will be forwarded to the doctors. They will then select the people to be interviewed. There is still much work to be done and a long road ahead. I want to thank everyone that has had a part in bringing us to this point. I promise to post a more detailed thank you to those that have done so much and have supported us. It deserves its own place in the archives. Thank you all very much. Please keep those surveys coming!!! BobW Clusterbusters www.clusterbusters.com |
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