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        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Has anybody tried this one?
        
(Message started by: mynm156 on Apr 19^th, 2004, 11:08pm)

Title: Has anybody tried this one?
Post by mynm156 on Apr 19^th, 2004, 11:08pm

My NEW Neuro wants me to try "ZONEGRAN ” cant read his writing. Something like that. Won’t know till tomorrow when I get to pick it up. Anybody know what it is?

Thanks all!!

Title: Re: Has anybody tried this one?
Post by Rock_Lobster on Apr 19^th, 2004, 11:25pm

ZONEGRAN

nope

Title: Re: Has anybody tried this one?
Post by BobG on Apr 20^th, 2004, 4:25am

Zonegran (zonisamide), is an epilepsy drug (anticonvulsant).
You may say “I don’t have epilepsy.”
There are drugs used for epilepsy that are also used for clusters. Topomax is a well known drug at the site.

Click on the link below.

http://my.webmd.com/content/article/22/1728_56052.htm?lastselectedguid={5FE84E90-BC77-4056-A91C-9531713CA348}

It is also used for weight loss

http://my.webmd.com/content/article/63/71964.htm?lastselectedguid={5FE84E90-BC77-4056-A91C-9531713CA348}

Title: Re: Has anybody tried this one?
Post by Superpain on Apr 20^th, 2004, 7:51pm

Did you try foothills neurology?

Title: Re: Has anybody tried this one?
Post by no-one on Apr 20^th, 2004, 9:46pm

Hi,

I tried zonegram, I was told it was on the same like as topamax without all the side effects. But it didn't work for me. I hope that you have good luck on it and are soon PF.

Becky

Title: Re: Has anybody tried this one?
Post by Lizzie2 on Apr 20^th, 2004, 9:49pm

on 04/20/04 at 21:46:01, no-one wrote:

Hi,

I tried zonegram, I was told it was on the same like as topamax without all the side effects. But it didn't work for me. I hope that you have good luck on it and are soon PF.

Becky

did you try it thru the study at jefferson? or did dr. young just prescribe it to try? just curious
lizzie

Title: Re: Has anybody tried this one?
Post by no-one on Apr 21^st, 2004, 2:07pm

Hi Lizzie (Carrie)

Dr. Young just prescribed it, I was not part of the study.

Becky

Title: Re: Has anybody tried this one?
Post by Renee on Apr 21^st, 2004, 11:28pm

I take 100mg zonegran and it is helping! Have been on it for about a month now. I could not take topamax because of the side effects.

Zonegran doesn't give me any side effects except a bit of drowsiness.

I know of another patient of the same neuro clinic that's on this board that is also on zonegran.

at this point, it is the first med that hasn't knocked my socks off with side effects and has provided relief.

good luck
renee

Title: Re: Has anybody tried this one?
Post by wsnyder on Apr 22^nd, 2004, 12:12am

I've been taking zonegran both as a seizure med and to help with the clusters. I think it is OK. It sure beats the heck out of depakote. The only side effect for me is that I lost a ton of weight and I have to literally remember to eat ... it really supresses the hunger drive for me.

The cycle of cluster attacks that just recently ended for me was very severe. I cannot tell if zonegran had anything to do with the severity but do know that things got better when I increased my verapamil, which I also take. I was due for a more severe cluster cycle, I think, as the last couple were fairly mild comparatively, that is if mild is ever a word that can be used to refer to a cluster attack.

Bill

Title: Re: Has anybody tried this one?
Post by sandie99 on Apr 27^th, 2004, 5:08am

Nope, a new name for me.