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Title: Episodic Cycle Avoidance Post by Giovanni on Apr 2nd, 2004, 7:49am I have had episodic cluster headaches for almost eleven years with the dominant cycle beginning in late February and ending in mid June to the middle of July. This cycle has been predictable and persistent with the exception of one year in which the cycle did not materialize for unknown reasons. Last year the headache cycle ended on June 14th with the introduction of melatonin. After this bout of clusters, I decided to try the alternative treatment to try to avoid my next one scheduled to hit the following February. After much reading on the subject my farm was started and successful (EU). The preventive doses were as follows: 12-23-03 1.7 grams 7:30 P.M. level 1.5+ 01-11-04 2.0 grams 1:15 P.M. level 2.0 02-15-04 1.5 grams 2:00 P.M. level 1.5- The following notes are from my diary: Friday 20th February Kip 1.5 around 4:00 taken some O2 quickly gone Saturday 21, 04 Kip 2.5 from 2:00 P.M. – 4:00 P.M. two quick cups of coffee plus some 02 around 3:30 P.M. quickly dispatched Sunday 22, 04 Kip 1 at 8:00-9:00 A.M. barely noticeable light shadow At 4:00 P.M. dosed with .5 gram tea Monday 23, 04 Kip 1 randomly throughout day….good day Tuesday-Wednesday February 24, 25 Minor shadowing pf Thursday February 26 Kip 2 (very light) some O2 about 7 P.M. Friday 27, 04 Minor shadow early AM Still pf Friday 28-Monday March 15 PF Level 0 March 16 Tuesday – March 19 Friday Level 1 no pain but minor shadows lingering Dose (March 19) 11:15 A.M. .5grams EU (more of a persistent head pressure) March 20 – April 2, 2004 Pain level 0—Occasional head pressure— At varying times of day I am totally confident that if this therapy had not been initiated, I would be in full blown cycle by now. Last year I stopped counting imitrex injections after 125 stat doses. I am currently taking verapamil @360; B-complex 50s X 2 a day; melatonin a couple times a week (sleep patterns are still wacky).For the next several months I will do small maintenance doses of .5 each month; then go to every 3 months with 1.5. In conclusion, this treatment has been a total success in my eyes and the first pain free spring in years. Giovanni ;;D |
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Title: Re: Episodic Cycle Avoidance Post by ave on Apr 2nd, 2004, 10:18am Hoping right with you... Good show! |
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Title: Re: Episodic Cycle Avoidance Post by JJA on Apr 2nd, 2004, 10:41am Congrats Do you have shadows on most days or are you usually completely pain free? Thanks for the update. JJA |
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Title: Re: Episodic Cycle Avoidance Post by Giovanni on Apr 2nd, 2004, 12:15pm The shadows now are almost non-existant. I do feel some head pressure from time-to-time during the day. My sleep patterns are not normal--as I become very tired early and wake up about 4:00 A.M.. I am totally pain free. I feel like I've gotten my life back! Anybody thinking of this, do your homework and plan ahead. That's the best advice I can give you. John ;;D |
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Title: Re: Episodic Cycle Avoidance Post by Flounder on Apr 2nd, 2004, 3:22pm Fuckeneh!!!!!!! Ain't it great when you get your life back. Congratulations John!!!!!!!!!!!!!!!!!!!!!!!!! ;;D ;;D ;;D ;;D ;;D ;;D ;;D ;;D ;;D ;;D ;;D |
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Title: Re: Episodic Cycle Avoidance Post by Thorns on Apr 2nd, 2004, 4:30pm Still farmin'! Thanks for the post and update. I'll have to keep it for my records when the time is right. Oh yeah ;;D Thorns |
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Title: Re: Episodic Cycle Avoidance Post by miapet on Apr 4th, 2004, 12:07pm *HAPPY DANCES* for Giovanni!!! You rock!!! *positive light and energy* miapet (giving you also an OMFG . .YOU TOTALLY ROCK) hehe |
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Title: Re: Episodic Cycle Avoidance Post by Pegase on Apr 6th, 2004, 9:18am This is cool... Fun so see the evolution... PF for ya... I'm planning to be a farmer soon... Pegase |
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Title: Re: Episodic Cycle Avoidance Post by Giovanni on Apr 6th, 2004, 10:04am Thanks for all the encouragement here. I'm still doing well with no signs of the beast. John ;;D |
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Title: Re: Episodic Cycle Avoidance Post by thomas on Apr 6th, 2004, 10:53am Great news, John. Are you going to be mixing the screwdrivers in Nashville? ;) |
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Title: Re: Episodic Cycle Avoidance Post by Giovanni on Apr 6th, 2004, 10:59am Absolut ly [smiley=me&mb.gif] |
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Title: Re: Episodic Cycle Avoidance Post by sandie99 on Apr 7th, 2004, 5:56am Congrats, Giovanni! ;;D As they say, a patient always knows best! :) Many more PF springs to come, Sandie99 |
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Title: Re: Episodic Cycle Avoidance Post by 9erfan on Apr 7th, 2004, 12:59pm WOOHOO John!! ;;D |
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