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New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Prednisone taper
(Message started by: Superpain on Apr 1st, 2004, 1:14am)

Title: Prednisone taper
Post by Superpain on Apr 1st, 2004, 1:14am
Just wanting to get an idea of what to expect when I get done with this taper... For now the ha's are gone.
My question is for those of you that have taken pred and it was successful in providing relief, did it last after the taper is done, or did the ha's come back.

So,
Stayed away...
or
Came back???

Title: Re: Prednisone taper
Post by buckeyescooter on Apr 1st, 2004, 1:51am
Had both happen before....the big question is what preventative are you using while the taper holds off the beast. Stay consistent with the preventative. It's easy to forget to take it when the beast is being stopped by the pred. Good Luck. Sleep well.

Title: Re: Prednisone taper
Post by Superpain on Apr 1st, 2004, 1:57am
verap... Just started yesterday.

Title: Re: Prednisone taper
Post by genss on Apr 1st, 2004, 2:42pm
Two years ago I took the 18 day taper.  Headaches were gone after 1 day and did not come back until Feb of this year.  In Feb I stared a 6 day taper.  The headaches went away after 1 day but came back the day after my last pill.  Then I started the 18 day taper and the headaches went away after day 1 and did not come back.  However, because I took so much prednisone, I experienced a severe weakening of the muscles.  It is 2 weeks after I stopped taking prednisone and I am just now able to climb stairs.  The headaches are gone though.  I don't think I will take prednisone again because the side effects are awful.  But it does take away CH for me right away with the right dosage.

Title: Re: Prednisone taper
Post by TxBasslady on Apr 1st, 2004, 11:28pm
I went on a Pred taper 205 days ago, while in a horrific CH cycle.  My taper was 12 days.  

From the 1st Prednisone pill........the CH was gone.

Last Wed night/early Thurs a.m., I awoke with a CH, about a 7 on the kip scale.  Scared the living hell outta me.  I thought, for sure, I was going into cycle.  However, that was it.....just that 1 CH.  That was day 197......

You can bet I keep my fingers crossed.....I know the bastard is still out there.

The Pred worked for me.....no shadows, nothing, till last Thurs a.m.  So, 1 CH in 205 days.  For me, it is definitely a miracle drug.  Hope it works the second time, if I go into another cycle.

Good luck....

PF vibes,

Jean

Title: Re: Prednisone taper
Post by Superpain on Apr 2nd, 2004, 1:22am
Glad to hear it!
I hope I do so well.

Title: Re: Prednisone taper
Post by neetnut on Apr 8th, 2004, 8:22pm
I have been tapering of Pred. now for 1 week after a 4 week dose. So far the clusters have not returned. What a relief!  Although the weight gain from the pred is embarrasing, would rather live with that than with cluster. ;;D
Hope you do well with your dose.

Anita

Title: Re: Prednisone taper
Post by Lizzie2 on Apr 8th, 2004, 8:49pm
I just picked up my prednisone from the pharmacy.  Is it ok to take all 80mg right now, or should I wait till tomorrow and break up the dose?
Thanks
Lizzie

Title: Re: Prednisone taper
Post by Superpain on Apr 9th, 2004, 2:49am
Lizzie, you should have a morn, noon, dinner. bedtime schedule to take it at intervals. Start with the whole day.

Mine seems to be holding them off pretty well. Hope yours does too...

Title: Re: Prednisone taper
Post by JDH on Apr 9th, 2004, 8:36am

on 04/01/04 at 01:14:39, Superpain wrote:
My question is for those of you that have taken pred and it was successful in providing relief, did it last after the taper is done, or did the ha's come back.

So,
Stayed away...
or
Came back???


For me they come roaring back as soon as I start to taper down off of it. I get a few nights of sleep which is nice but it's right back to hammer time after that.
There's some nasty side effects with prednisone and IMO better ways to fight ch's so I won't be going back on it.
good luck,

Jim


Title: Re: Prednisone taper
Post by Bob P on Apr 9th, 2004, 11:19am
I've used those Medrol dose packs a few times.  It's the 6 day taper (6 tabs the first day, 5 the second, etc.)  My attacks stop the first day but return about day 4, when I get down to the 2 tabs for the days.

My doc says just take them all at once for the day.

Title: Re: Prednisone taper
Post by Lizzie2 on Apr 9th, 2004, 12:18pm
Thanks for the info!  I decided last night that I would wait till today to start it.  I took 40mg this morning, and I will take 40mg with dinner tonight.  Thanks!

Lizzie :)

Title: Re: Prednisone taper
Post by Bob P on Apr 9th, 2004, 1:13pm
BTW - added your picture to the pic page last night.  It's under Lizzie2

Title: Re: Prednisone taper
Post by Lizzie2 on Apr 9th, 2004, 3:42pm
cool!  Thanks Bob! :)

Lizzie :)



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