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        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Any ideas please-jaw pain
        
(Message started by: pubgirl on Mar 26^th, 2004, 5:37pm)

Title: Any ideas please-jaw pain
Post by pubgirl on Mar 26^th, 2004, 5:37pm

Have developed a weird and uncomfortable symptom today and not sure if it is related to my CH or not although I understand some other people with CH get it.. I apologise if it seems trivial.

I have no real headache at the moment (Thank God), but (bear with me here) imagine you had been to the dentist and they had put an injection in the nerve at the axis of your jawbones and it is wearing off.

I can't close my back teeth together on that side, my mouth is slightly less mobile on that side, and I'm a bit dribbly (nice!) and it hurts. Not massively, but it is uncomfortable enough. Also slurring a bit (not drunk for a change) as I can't move my jaw properly.

Any ideas? I know about TGN but it isn't that painful. (have tried anti-inflammatories and a Zomig but nothing happening)

Wendy

Title: Re: Any ideas please-jaw pain
Post by Karla on Mar 26^th, 2004, 6:27pm

TMJ is the only thing I can think of. I know of a website called www.healthboards.com. They have a message board for TMJ. You might want to go there and see if anyone there suffering from TMJ thinks your symptoms sounds familiar. I will pray your pain ends quickly.

Title: Re: Any ideas please-jaw pain
Post by eyes_afire on Mar 26^th, 2004, 6:32pm

Do you have a fever?

If so, go to the doc at once.

--- Steve

Title: Re: Any ideas please-jaw pain
Post by pubgirl on Mar 26^th, 2004, 6:39pm

Steve
No fever, I feel totally fine! (you were thinking lockjaw weren't you, crossed my mind enough to make a note to get my tetanus updated!)

It just hurts and I'm going to get lovely and thin if it carries on because I can't eat!

I think it is a coincidence that it is on my Ch side now. Paranoia!

Thanks Karla, I was surfing around and TMJ fits the symptoms.
"rest it" is the cure apparently. Bit of a problem that as I train for a living and have to talk.

Wendy

Title: Re: Any ideas please-jaw pain
Post by FZfan on Mar 26^th, 2004, 6:52pm

If there's no fever, then it almost sounds to me like your jaw is out-of-place, or at the very least some jaw muscles have been strained.

You didn't take a punch in the face recently did you? ;;D

Seriously, if I'm understanding your description, I've had a similar experience a few times, especially the part about not being able to put your back teeth together without pain. For me, it wore off after a few days, so I have no idea what it is really. It just felt like my jaw was out of place. I also have rather bad teeth so it could have been one of them acting up. (I HATE dentists)

Doesn't sound serious, but one can never be too cautious.

Title: Re: Any ideas please-jaw pain
Post by 9erfan on Mar 26^th, 2004, 6:53pm

Sounds like TMJ, but you need to go to a dentist. Had the exact same thing happen to a coworker of mine many years ago. That was the first time I ever heard of TMJ. She had to have surgery to fix it.
Sorry, don't mean to scare you but you need to get to a dentist right away...ok?

Title: Re: Any ideas please-jaw pain
Post by pubgirl on Mar 26^th, 2004, 7:03pm

Will do

Meanwhile despite my personal anti-opiate stance for CH, in order to relax the muscles while I sleep I have just sent myself on the way to la-la land by taking an opiate painkiller with a large slug of booze to enhance the effects!

I shall enjoy the ride I think ;;D (sorry!)

Wendy

Title: Re: Any ideas please-jaw pain
Post by FZfan on Mar 26^th, 2004, 7:44pm

Hey, sometimes ya gotta do what ya gotta do.

Enjoy!

Title: Re: Any ideas please-jaw pain
Post by toader on Mar 27^th, 2004, 12:27pm

You guys and your acronyms, I swear! [smiley=huh.gif]

For what it's worth, I went to the dentist last fall, complaining of a "terrible toothache". The pain felt just like the pre-rootcanal pain of another tooth from a couple of years previous.

Ended up seeing the tooth specialist who looks for cracks, infections and basically "any excuse to root canal it". Anyway, the tooth was fine. I developed cluster headaches 3 weeks later. Coincidence?

Title: Re: Any ideas please-jaw pain
Post by Thorns on Mar 27^th, 2004, 9:31pm

Does your jaw pop or click???

I had this same problem about 3 years ago near the end of a very long cycle ~4mos. However, at the time I did not know that I had CH. Anyway, I went to the dentist and he adjusted my bite, gave me some muscle relaxers, and told me to eat soft foods for 2 weeks--I couldn't open my mouth very wide or chew without pain. It was also on the same side as my attacks.

After two weeks and no improvement, I was sent to a physical therapist b/c I had what they called "banding" of the muscles that control the opening and closing of your mouth and keep your jaw in tract. If you felt the inside of my cheek at the back you could actually feel what felt like a few long stiff bands--almost like a cramped muscle and very swollen/tender.

After a few treatments where they massaged the bands with their fingers after some evil jaw exercises I had to stop. Every time they massaged the "bands" it would trigger a CH. Luckily, my cycle stopped shortly after everything returned to normal. I do still get the "bands" and jaw pain near the end of my cycles though. I was told that this was not TMJ b/c I have no clicking or popping. Hope this helps.

~Thorns

Title: Re: Any ideas please-jaw pain
Post by Rock_Lobster on Mar 29^th, 2004, 9:55pm

Wendy,

I read today that a side effect of dry o2 is a bit of a susceptability to sinus infections. I may have picked that up.
I had a mild but annoyingingly long (like days) one sided headache with the same thing you have... a really sore jaw on the HA side... thought it was a bad shadow, but constant.

Mentioned it to the doc... he thinks it may be a mild sinus infection brought on by the dry o2. Trying a little amoxicillin and some antihistamine...Chlorpheniramine Maleate in my case... $5 for 100 off the shelf. Wanted to play with it anyway...some here mention a little luck with antis and CH's in the Diamond threads.

Wrokk

Title: Re: Any ideas please-jaw pain
Post by Tiannia on Mar 29^th, 2004, 10:58pm

on 03/29/04 at 21:55:24, Rock_Lobster wrote:

Wendy,

I read today that a side effect of dry o2 is a bit of a susceptability to sinus infections. I may have picked that up.

Wrokk

I know that I am not O2 savy, but isn't there a way to add a bubbler or something so that you are adding a little bit of moistier to the O2? I thought I read that somewhere on these boards. I Know that i have seen people talk about packing the tubing in ice to is cools the air down. Or am I just completly losing it? Dont answer that people, I've have shitty luck lately. And I am well aware that I left myself wide open on that one. ;)

I hope it gets better or you at least find the cause.

Take care Wendy.
-Tia

Title: Re: Any ideas please-jaw pain
Post by djsdds on Mar 29^th, 2004, 11:23pm

Hi!

I'm a new member, a CH sufferer and ...I happen to be a dentist.

I've had HA for 20 years so it seems your jaw situation is unrelated. It sound very much like you have a problem in the TM joint. I'd see your dentist and have a nightguard made. It can relieve some stress on the pad of tissue between the jaw bones called "the disc".

This can start from clenching your teeth, trauma, opening too wide or biting into something hard, like crusty bread.

Anti-inflamatories like ibuprofen are good too.

Good Luck!!

Title: Re: Any ideas please-jaw pain
Post by Rock_Lobster on Mar 30^th, 2004, 7:55am

[quote author=Tiannia link=board=meds;num=1080325545;start=0#11 date=03/29/04 at 22:58:11]...isn't there a way to add a bubbler or something so that you are adding a little bit of moistier to the O2?
quote]

Yes, there is, but my episode is not going to last long enough for me to have any need to worry about such measures. Yeah, right! [smiley=laugh.gif] [smiley=laugh.gif] [smiley=laugh.gif]

Wrokk

Title: Re: Any ideas please-jaw pain
Post by pubgirl on Mar 30^th, 2004, 12:03pm

Thanks for everyone's help.
The discomfort (wouldn't dare call it pain here ;;D)
has almost gone now and the jaw has realigned and I can eat.

I can only assume that the advice is right and that I damaged myself clenching/tooth grinding in my sleep. If it happens again I will do what the kindly djsdds (sorry, don't know your name) dentist suggests and get my dentist to give me something to prevent me doing it.

Best guess is that I must have been very wound up that night and took it out on my teeth!

There have been a few ruder suggestions about what I was up to that night that made it happen, but as my husband was away, they are definitely all lies! ;;D

Thanks again

Wendy

Title: Re: Any ideas please-jaw pain
Post by floridian on Mar 30^th, 2004, 1:23pm

Wendy,

I had TMJ (it still acts up occasionally). Hot packs to relax the jaw are the best thing for me. I had a mouthpiece to wear at night - never woke up with that in place (with sinus problems and a need to breath through the mouth, I would spit it out in my sleep). But others benefit from a mouthpiece. Also, stretching the jaw, jutting it out, and shifting it to the sides helps me (must be done very slowly and gently).

Title: Re: Any ideas please-jaw pain
Post by Opus on Mar 30^th, 2004, 2:34pm

Wendy,
I got TMJ right after my daughter was born, I could not open my mouth wide enough to eat an apple, there wasn't much pain it just wouldn't go, in about a year it was gone. Recently I have upped my stress level ( by caring about things I had long given up hope on ) to help get rid of my breakthroughs, it worked but I increased my stress too far, TMJ is back too, but the beast is in hiding.

Opus/Paul

Title: Re: Any ideas please-jaw pain
Post by pubgirl on Mar 30^th, 2004, 4:33pm

Hi Paul

If you gave me a choice, I know which I'd go for!

Hope the things you are caring about are giving you some good as well as stress.

Wendy

Title: Re: Any ideas please-jaw pain
Post by Jeepgun on Apr 1^st, 2004, 2:00pm

Okay: This is off the topic of TMJ, but I do hope you get some relief, Pubgirl. I know it's a seriously BAD BAD BAD cluster when the pain begins to radiate down my jaw. Dogdamnfuthermuckinsonofabiyatch, there is NOTHING that hurts worse than that.... :-[