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        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Botox and CH
        
(Message started by: M8895 on Mar 11^th, 2004, 7:45pm)

Title: Botox and CH
Post by M8895 on Mar 11^th, 2004, 7:45pm

Has anyone heard of or experienced Botox helping with CH? I am presently being treated for Chronic CH and Migraine and am taking preventative meds. I'm also giving Botox a try for both HA... Please respond. Thanks? Connie

Title: Re: Botox and CH
Post by UN_SOLVED on Mar 11^th, 2004, 8:04pm

I haven't tried Botox or heard of another clusterhead trying it either, but i'm interested in hearing if it works for you or not. Let us know what happens plz.

Best wishes & good luck

Unsolved

Title: Re: Botox and CH
Post by wsnyder on Mar 11^th, 2004, 8:04pm

I did the Botox injections during another CH cycle a few years ago. My insurance wouldn't pay so I did. It cost me $500+. It didn't do anything for me. It was another example of a CH patient trying anything in an attempt for relief.

Bill

Title: Re: Botox and CH
Post by pubgirl on Mar 11^th, 2004, 8:15pm

Connie

I have read the results can be good for migraine, but for CH? Unlikely

Wendy

Title: Re: Botox and CH
Post by M8895 on Mar 11^th, 2004, 8:19pm

Hi Bill,

I will let you know how things pan out for me. I am fortunate that my insurance co is covering the botox but believe me not without a fight. I'm paying for 100.00 out of the 500 plus. I am praying and will post the outcome here so check back from time to time and I will put the info here. I also placed the post about my experience at the Thomas Jefferson HA clinic which was and is a great place to go If you want to read that one. Bill for me and all of us it is one day and night at a time... There has got to be an answer and I refuse to stop trying and learning until I find one period!

Take care of you, Connie

Title: Re: Botox and CH
Post by wsnyder on Mar 11^th, 2004, 8:42pm

Connie,

For me now, it has been 44 years of hunting for the answers. I still have the energy. The trouble is, whenever I find an answer on a Tuesday it doesn't often work anymore on Thursday, or for the next bout, or three years later. O2 for me has been the only reliable constant.

Now that we know so much about the role of the hypothhalimus I am hoping that I we'll all get to see that definitive solution. Boy ... will we party!

Bill

Title: Re: Botox and CH
Post by 9erfan on Mar 12^th, 2004, 4:11pm

Tried botox a couple of years ago. Didn't do anything for the clusters but I looked 10 years younger.

You may get relief from your migraines though.

Title: Re: Botox and CH
Post by Samantha_Smith on Mar 16^th, 2004, 9:33pm

I have considerable experience with Botox and it has helped me tremendously in terms of relieving not only my chronc cluster headaches but also those "other headaches" that we're not allowed to mention on this message board. Please PM me with specific questions if you want to. I'd be happy to share my experiences.
Samantha

Title: Re: Botox and CH
Post by Karla on Mar 16^th, 2004, 11:40pm

I do botox for my migraines but it does nothing for my clusters. Doesn't touch them at all.