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        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Occipital Nerve Stimulator
        
(Message started by: UN_SOLVED on Mar 9^th, 2004, 1:17pm)

Title: Occipital Nerve Stimulator
Post by UN_SOLVED on Mar 9^th, 2004, 1:17pm

Well, I did it. Got my trial stimulator today. Will have it for about a week. Hope it works to stop some of the pain. The operation was virtually painless. I have 2 wires in my neck. They ruined my fucking hair! Now, I guess I'll go shave the rest of it off to match the back >:(
I'll let ya know more in a couple of days. Anyone have any more questions about the procedure, PM me.

Wanna see a pic of the back of my head ? Check it out HERE (http://unsolved.home.insightbb.com/oshit.JPG)

UNSOLVED
the cluster guiniea pig !! ;;D

Title: Re: Occipital Nerve Stimulator
Post by Prense on Mar 9^th, 2004, 2:19pm

Did I read that correctly? You are only going to have the stimulator for a week? What happens after that?

Hope it works for you!

Chris

Title: Re: Occipital Nerve Stimulator
Post by notseinfeld on Mar 9^th, 2004, 4:43pm

Hey, the hair will grow back which is more than would happen if it were my head! Wishing you the best of luck and I'm also curious, what happens after this week?

nots

Title: Re: Occipital Nerve Stimulator
Post by Tiannia on Mar 9^th, 2004, 5:32pm

Glad it was painless for you hun. Please keep us posted on how you are doing. All of my thoughts are with you as you definatly deserve some resite from the Beast.

Pain Free wishes to you,
Tia

Title: Re: Occipital Nerve Stimulator
Post by Cathi04 on Mar 9^th, 2004, 5:38pm

Hey, Unsolved.....It doesn't make yer EARS stick out!!!!
I hope this works for you, and that you find PF times with it!!!
Yer a great "guinea pig".......wishing you success!!!

Cathi

Title: Re: Occipital Nerve Stimulator
Post by Rock_Lobster on Mar 9^th, 2004, 5:48pm

I would bet 10-to-1 that cleaning that boreworm nest out from behind your ear would cure you. Ever hear of a Q-Tip? That is just nasty. ;;D

Good luck with the ONS... hope is works for you!

Rock

Title: Re: Occipital Nerve Stimulator
Post by Giovanni on Mar 9^th, 2004, 7:07pm

Good luck and pf days ahead Un_Solved.

John

Title: Re: Occipital Nerve Stimulator
Post by UN_SOLVED on Mar 9^th, 2004, 9:31pm

I'll only keep it for a week. It's a 'trial'. If it seems to work, then i'll have the implant in 2-3 weeks.

What a bad hair day ! ;;D

Unsolved

Title: Re: Occipital Nerve Stimulator
Post by miapet on Mar 10^th, 2004, 12:30pm

I'm keeping all the best thoughts and energy for you . . .and I'll be watching (multiple times per day) for any and all updates!
Oh . .and your hair will grow back . .. maybe you can start a new trend??
miapet

Title: Re: Occipital Nerve Stimulator
Post by Mastifflvr28 on Mar 11^th, 2004, 1:23am

Unsolved...still sending up good luck vibes to ya!!!
Mast

Title: Re: Occipital Nerve Stimulator
Post by sandie99 on Mar 11^th, 2004, 5:24am

Good luck Unsolved! I hope it works!
Loads of PFdays!!!!

Wishes,
sandie99

Title: Re: Occipital Nerve Stimulator
Post by UN_SOLVED on Mar 13^th, 2004, 8:12pm

Even though I have this ONS, I've still had shadows everyday except for Friday (which was PF).

Never knew a 9 volt battery could give such a jolt !! :o

BTW...I'm the first person to get a Bi-lateral ONS. I get it taken out this Monday.

Unsolved

Title: Re: Occipital Nerve Stimulator
Post by miapet on Mar 15^th, 2004, 3:41am

*hugs* friday is my favorite day *positive energy and light*

Title: Re: Occipital Nerve Stimulator (Failure)
Post by UN_SOLVED on Mar 17^th, 2004, 6:34pm

ONSI Failed. Starting new drug tomorrow. For those that respond well to steriods, this drug is also an autoimmune suppressant drug that is steriod free. It is called "Cell Cept", mainly given to transplant recipients to lower risk of organ rejection. Blood tests every week for a while. Hope I don't get sick.

Here we go again !

Unsolved

Title: Re: Occipital Nerve Stimulator
Post by pubgirl on Mar 17^th, 2004, 9:42pm

Are you absolutely sure it has failed? If so I am so sorry. :( :'(
I am sure you know best but thought I would mention that Mike's headaches got much worse straight after his ONSI, then settled down when the scar tissue formed around the electrodes and held them in place.

Wendy

Title: Re: Occipital Nerve Stimulator
Post by UN_SOLVED on Mar 17^th, 2004, 9:50pm

My leads were 'positional'. If I moved my head in certain ways, it would cause an increase or decrease in electricity. I had a good 'placement' of the electrodes. In other words, the electricty was flowing from the back of my head (on both sides) almost all the way to the front. I was still having headaches. (daily) Cranking up the power did no good. Leaving the power on for days did no good. It just didn't help. It did kinna feel like an electric message though. :) Too bad the headaches continued.
Doc says that patients who respond well to Occipital Nerve blocks have a descent success rate. I've had 5 bi-lateral blocks. The first was a (17 day) success while the last 4 were all failures.
The ONSI was at least worth a try.

Unsolved

Title: Re: Occipital Nerve Stimulator
Post by pubgirl on Mar 17^th, 2004, 9:54pm

I am so, so sorry.
I only hope the new drug gives you some relief

Wendy

Title: Re: Occipital Nerve Stimulator
Post by hdbngr on Mar 23^rd, 2004, 5:17pm

There are several brands of stimulators out there. Where one type doesn't work, maybe another would?

I do know that they take 2-3 months for the leads to anchor down. You get that electric feeling immediately, but it may not really help reduce the headaches until some healing time has elapsed and they are strapped down by the scar tissue. They can also reposition those leads...

There's an answer out there. Hang on.