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        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Balls of Steel
        
(Message started by: notseinfeld on Feb 19^th, 2004, 3:02pm)

Title: Balls of Steel
Post by notseinfeld on Feb 19^th, 2004, 3:02pm

Or maybe just outta my head but either way I'm swinging free. Have been eating abortives like candy and spent the last 3 days with seriously uncomfortable heart palpitations so I've decided to not take anything, including preventatives.

So far it has been mildly successful and while I still do have some palps they've been less worrisome. H/A have reduced to extra long k4's (sometimes 3 hours) but an equitable trade from the normal k8 45 minutes. I can also sleep w/o being awakened but will start an attack the second I open my eyes in the AM.

Will continue on this course unless I have a heart attack. I've instructed the dogs not to call EMS and that I've provided for them in the will.

Additionally this will be an all out detox leading up to the shrooms which should be ready in about 3 weeks. Godspeed, eh?

Title: Re: Balls of Steel
Post by thomas on Feb 19^th, 2004, 3:39pm

Godspeed, indeed brother. Hope this works...... got my fingers crossed.

Title: Re: Balls of Steel
Post by Giovanni on Feb 19^th, 2004, 5:03pm

In the meanwhile, can you get some O2?

Good luck,

John

Title: Re: Balls of Steel
Post by 1MajorPain on Feb 19^th, 2004, 5:05pm

Best of luck, I'll keep my fingers crossed for you.

Major

Title: Re: Balls of Steel
Post by Flounder on Feb 19^th, 2004, 11:17pm

It's not easy getting off all the meds but well worth it when the shrooms kick ass on the beast. Best of luck to you and we will all be here pulling for you.

Title: Re: Balls of Steel
Post by firebrix on Feb 20^th, 2004, 1:09am

All the best notseinfeld!
Keep the O2 handy and full.
Keep the dogs handy too - they're great sitters.
firebrix

Title: Re: Balls of Steel
Post by notseinfeld on Feb 20^th, 2004, 1:19pm

Thanks for the kind words all---you're a stellar bunch!

Have never tried the O2 I think b/c it makes us look so SICK! Need to get over that and I think I'll order some today.

Title: Re: Balls of Steel
Post by Roxy on Feb 20^th, 2004, 1:39pm

Good luck with the shrooms, hope it does it's thing for you. Try to get the 02 as soon as possible, three weeks is a long time without meds. That's how long I've been med free, and it's the only thing that has helped me keep my sanity.

Sorry you're having to go med free, but, in the end, it's the best thing. I'm dosing tonight, at this point I don't care what the doctors say. Hope we both get lucky..... :)

Title: Re: Balls of Steel
Post by eyes_afire on Feb 20^th, 2004, 7:40pm

Good luck Notseinfeld, I hope you have better luck this time around. Keep us updated. I'll be watching with interest since the results of my last go round were 'inconclusive'.

Rock on

--- Steve

Title: Re: Balls of Steel
Post by Mastifflvr28 on Feb 21^st, 2004, 10:06am

BEST of luck to ya Nots!!
Let us know how the O2 works for ya too.
Take care
Mast

Title: Re: Balls of Steel
Post by notseinfeld on Feb 23^rd, 2004, 9:03pm

Saw Dr.Compassion (not) today and he actually went to bat for me to get the Oxygen Tank covered by my insurance which is on the way to my door as I type this.

So far it has been about 5 days on NO meds of any kind and the results are as follows:

Frequency: The Same
Pain : 50% reduction hovering at k4-k5
Duration: 50% increase in battle time
Verdict: I'll take it. Starting to feel like my old self again in the times I'm not actually suffering with a h/a. BP is back to normal, my MRI came out fine, and got a little bounce in my step that has been missing for nearly 5 years.

Added bonus: On the way out the door today I asked the doc hypothetically that if he were a doctor, knowing what he knows now and living c.1800 and was presented with 2 chronic cluster sufferers in his village, how would go about treating them?

Without missing a beat he responded "well there were no lawyers then so I'd take a big rock and pound it over both their heads and get them out of my misery!"

Had to laugh at the probably accurate response but what puzzled me was the last part stating out of my misery. Hmmm, your misery? It was not a misspeak by any means but a straight from the gut utterance.

Further, my take on my (our) condition is that we as a group are unable to take a passive interest in our condition since in most cases it has devastated our lives. As a result, not only are we not passive but instead hyper-vigilant about the treatment. I for one know I'm a doctor's worst nightmare patient. And that's just tough.