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        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Hi, neurontin 
        
(Message started by: no-one on Feb 6^th, 2004, 4:45pm)

Title: Hi, neurontin
Post by no-one on Feb 6^th, 2004, 4:45pm

I am also new to this site, I've had migraine since I was a kid, I've only had clusters for the last 6 years. But I've been in a chronic cycle. My offical label is CH, migraines, and CDH.

I've tried all the different meds and ( changed Dr.s twice I am working with my third one now) now I am starting over again on that list. I can't handle bp meds as my bp is low to start with, and I kept passing out.

My question is has any one had any luck with neurontin ?

I've been taking 2700 mg a day of neurontin with 75mg effexor and 3mg of melatonin in the pm. I use DHE inj. ( which seems to work better for my migraines, doesn't to much for the clusters) I can't use imitex (which from what I've been reading is better for ch) I had a bad reaction to it. I also have zyprexa to take to knock me out on the other 5 days. But I can't take that a drive or go to work.

I don't see much impovement, I still get up aleast 2 times a night and I am having 3-4 more attacks a day. Today must be my day off even thought I was up twice last night. What is so hard about it is that on a daily level I am at a 6-7 so when I get an attack it goes right to a 9-10.

I will be seeing my Dr next week and I want to be armed with some good ideas on how to handle my meds.

I also what to thank everyone here for all the info, I have learned over the past few months that I have been lurking.

Thanks, I am sorry this post is so long.

no-one

Title: Re: Hi, neurontin
Post by ave on Feb 6^th, 2004, 5:15pm

Sorry, don't know about neurontin. If you need to know fast, try the search facility, I know people have posted about it before.

Do you take O2? It does help a goodly number of people.

luck!

Title: Re: Hi, neurontin
Post by UN_SOLVED on Feb 6^th, 2004, 5:28pm

I took Neurotin for awhile but it didn't do any good, so I stopped taking it. Your on a low dose of Meletonin. I took 12 mg a night for awhile. Don't know much about the Effexor. DHE injections are supposed to be used as an abortive. You shouldn't use this everyday. It constricts all the blood vessels and may cause problems with circulation after repeated use. Watch for whitening in the fingers and toes or pain in the legs. I guess you already know about these meds since you take them. Xyprexa ... I take 2 in the morning and 1 at night now. Zyprexa does not "knock me out".

My advice to you is:
If the Neurotin is not working...tell your doc so you can get off of it and try something else that might work. Why continue taking a med that is not working? There are plenty of meds out there to try.

Goodluck,
UNSOLVED (http://cluster.home.insightbb.com)

Title: Re: Hi, neurontin
Post by t_h_b on Feb 6^th, 2004, 6:29pm

Took Neurontin for something else before I had CH after being unable to tolerate amitriptyline. Neither one is pleasant. I agree with UN_SOLVED that if you have given it an adequate trial and tried different dosing you should stop taking it after discussing it with your MD. Then try another combination.

BTW, your post is short compared to most of mine, and welcome aboard. There've been a lot of new posters lately and that's great. Also join OUCH--see the yellow button at left. ClusterHeads need to stick together.

You might use the search function to find the other posters who have migraines as well as clusters. Maybe they have some experiences unique to having both to share with you.

Title: Re: Hi, neurontin
Post by no-one on Feb 7^th, 2004, 12:28am

Hi,

Thank you for your replys, I haven't tried O2 yet that was suppose to be talked about at my next visit. I have to agree with you about changing meds since this isn't working, I just hate to start over again and go thru all the side effects till I get use to a new med. The side effects are some times as bad as the pain.

I only use the DHE 2 times a week, but I haven't figured out what to do the other 5 days for the pain. I keep getting told that we need to find a preventive that works. That just makes me nuts, because he doesn't have to deal with the pain.

I did join OUCH last week, I love how everyone here cares and suppports one another, it makes you feel like you have come home.

Thanks again for your help

no-one

Title: Re: Hi, neurontin
Post by ave on Feb 7^th, 2004, 10:25am

Talked to Ree just last night (you'll find her mainly on the General board or the supporters'). Her husband takes neurontin and is happier with it.
You could ask her, if you still needed more info.

I can imagine your wanting to quit now. What does not work, doe snot work, all there's to it.

If you ask for O2 take all the information under the button left with you! Know it by heart anyway, but some dopcumentation goes a long way.

luck!

Title: Re: Hi, neurontin
Post by kim on Feb 8^th, 2004, 7:02pm

Neurontin is an anti seizure med -- lots of neuros prescribe these types of meds as preventatives for clusters. Neurontin seems to be latest of the latest. I find that enormous doses are being prescribed with mixed results.

I took it last cycle. I did not go to an extreme dose (only 900mg perday). I have mixed feelings about it. I feel it performed somewhat as a preventative, but i also experienced side effects that i really did not like. It messed up my short-term memory, as well as some other annoying crap (lol).

Some folks really seem to get relief (however, they are taking enormous doses).....

Pay attention and keep in contact with doc. You'll know if it's working -- gotta weigh it all out.

Best luck.

Title: Re: Hi, neurontin
Post by bobkip on Feb 11^th, 2004, 12:06pm

I started neurontin (900mg/day) last week for a ch unrelated disorder and haven't bin hit by the beast since. Some shadows tho but the only sides so far are drowziness and a whopping big appetite. But my bro-in-law was on it 'til he started getting paranoid and sis-in-law said enough.
Kip