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        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Frova after the fact!!
        
(Message started by: jeepman on Feb 3^rd, 2004, 9:04pm)

Title: Frova after the fact!!
Post by jeepman on Feb 3^rd, 2004, 9:04pm

Hi all, spoke to soon after a 2 year sabatical from clusters, my neuro tried me on Frova 2.5 x 2 daily, 7 days...to hopefully end this cycle..after completeting 7 day of dosing, (pain free during dosing and 2 nights follwing) seems THEIR BACK and I'm back on nasal imitrex at start-up of noctural attacks...Go figure I was just so sure this would end this cycle..what a disappointment...hoping tonight is PF and maybe last night was just a tease CH... :-X

Title: Re: Frova after the fact!!
Post by henzey on Feb 5^th, 2004, 1:12pm

Thanks for letting us know. This may be one of my options as I am entering a longer than usual episode and Topamax was working but killing me otherwise. Did you find that it was any easier to sleep with Flova that Imitrex or other triptans?

Title: Re: Frova after the fact!!
Post by jeepman on Feb 6^th, 2004, 9:12pm

didnt have any ill-effect from the Frova, other than it's effeccts were not as FAR REACHING as i had hoped, in the grand scheme of things..After an imitrex snort, I'm pretty exhausted, but my attacks are usually around
2AMish..so I'm awakened from a sleep, snort, wait, a back to sleep, to get up at 6:40 am...until this cycle passes...GL all, PF night and says

Title: Re: Frova after the fact!!
Post by TxBasslady on Feb 7^th, 2004, 2:40am

Guess my instructions for taking the Frova was different from yours.

Seems you were taking it 2x's a day, for 7 days. My doc told me to take it at onset of the headache. Of course, when I was in cycle, my hits came at 2:30 - 3:30 a.m. Kinda hard to take it at onset....when that bastard woke me out of dead sleep! [smiley=huh.gif]

However.....it NEVER prevented me from getting the ha's. It just shortened the time of the ha.

Your wife was nice enough to send me an email. I have not answered her....and I apologize. I have been out of town since Monday.

Sorry to hear that your good luck ran out. Have you tried a Prednisone taper?? Not everyone has luck with it. But it stopped my CH in it's tracks. Today is 151 days pf for me. Alot of sufferers here had bad side effects from it....but other than an anxiety attack at the end of taper...all went well for me.

PF vibes.....and best wishes

Jean

Title: Re: Frova after the fact!!
Post by dodie on Feb 11^th, 2004, 3:31pm

My dr. put me on it today. goddess, I hope I have better luck than you guys have had.
He told me to take 1 a day as preventative.
I will keep in touch and let you know how it works out.
took one this am so far nothing not even a tingle.
dodie

Title: Re: Frova after the fact!!
Post by jeepman on Feb 13^th, 2004, 10:42pm

Me again,

Well this cycle is over, I have to RANK THE FROVA as overall successful as it did keep the headaches away for 9 night, and the return was shortlived, so yes, i raise my beer mug to FROVA as resonably successful with my nasal imitrex as backup. SHORTEST cycle EVER

Good luck to all and PF days and night