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        New Message Board Archives >> Medications, Treatments, Therapies 2004 >> Too good to be true?
        
(Message started by: Stevieray on Jan 18^th, 2004, 2:51pm)

Title: Too good to be true?
Post by Stevieray on Jan 18^th, 2004, 2:51pm

Well here it is , day five without a CH! I even had a beer to celebrate and still no headache!! Being that I am episodic I am wondering if this is just a break in the pattern or has it gone into hibernation again, The last time I had them they lasted for 3 months and then disappeared for 10 years. I can only hope this is the case this time. I have been on Verapamil 120mg x3 since the beginning of December and then Lithium 300mgx3 for 2 weeks and Imitrex nasal spray for the ones I get during sleeep and tablets for the ones during the day if I can get to it soon enough. I am also taking mega doses of Vitamin B (B100) and Vitamin E. The only problems I am having at present is the feeling of being "not quite with-it" after taking the Lithium and Verapamil. I am not sure if it is the combo or one or the other that gives me the spaced out feeling but it is much easier to deal with then the headaches. I am hoping that this is the end of the cycle and it doesn't come back again, EVER!! But if it does I am so glad to have found this web site and to know that I am not alone in my suffering. Good health to yoou all and as Monty Python says... Always look at the bright side of life. Cheers, Stevieray

Title: Re: Too good to be true?
Post by Edski_1 on Jan 18^th, 2004, 6:28pm

Guess we never really know, do we? I'm working today on 3 days PF out of 4 and feeling pretty good... :) The last time I hd about a year of headaches and a 13 year remission...it's been about 3 months now, but I've been on topamax for about 12 days now...I up the dose to 100 mg tomorrow.

good luck, keep posting here! :D

Title: Re: Too good to be true?
Post by TxBasslady on Jan 19^th, 2004, 12:40am

Hi Stevie........... ;)

That is great news!!!!!!!!!

The pf stories are the best :-*

Glad you're getting some quality pf time

Best wishes to ya, sweetie

Jean

Title: Re: Too good to be true?
Post by Stevieray on Jan 20^th, 2004, 9:46pm

HEY! I celebrated day 7 with 2 glassed of Cabernet Sauvignon. Still no sign of the beast, WOO HOO!!

Title: Re: Too good to be true?
Post by brad267 on Jan 20^th, 2004, 10:44pm

Congrats Stevie Ray,

Any chance you're from Austin??? We pray to the SRV statue down here.....

Brad

Title: Re: Too good to be true?
Post by Stevieray on Jan 21^st, 2004, 9:11pm

Sorry but I am not from Austin but SRV is one of my idols. I'm actually from British Columbia, Canada, about as far away from Austin as one could get and our weather is about as foreign too. It's great if you like to snow ski or snowmobile but we do get fabulous summers here and I live on a lake and do a lot of boating in the summer. On another note , I am still headache free. I went to the doc for a checkup today and she is keeping me on Verapamil for another month or so just in case and I will be on the Lithium for a month too. I am glad this medication is working for me. If it were only this easy for every one else.

Title: Re: Too good to be true?
Post by jminmilwaukee on Jan 22^nd, 2004, 4:19am

Once you find what works for you then you have a true reason to celabrate. Problem is what works now may not later. BUT.....Hope this holds for you.

Jmin

Title: Re: Too good to be true?
Post by Stevieray on Jan 22^nd, 2004, 8:51pm

Ten years ago it was Lithium, Prednisone and for the realy bad ones, Demerol with Percocet for the lesser ones. This time it is Lithium, Verapamil and Imitrex nasal spray and if all goe well I only had them for a month this time.

Title: Re: Too good to be true?
Post by Charlie on Jan 22^nd, 2004, 9:04pm

AH.......always nice to read.

Never count on them returning. Nothing is a bigger waste of time.

Can't beat this kind of thing for coolness. 8)

Charlie

Title: Re: Too good to be true?
Post by Stevieray on Jan 25^th, 2004, 2:25am

12 days PF and counting.......

Title: Re: Too good to be true?
Post by Zonie on Jan 31^st, 2004, 11:22pm

So good to read all this good news about "PFDs" and "SRVs". I am so happy for all of you guys and hope that it's contageous cause I could sure use a little relief right now. And reading about your good turn of events is the next best thing to experiencing it for myself.... keeps my hopes alive. Keep up the good work and keep those good reports coming.

Title: Re: Too good to be true?
Post by jmorgan52 on Feb 1^st, 2004, 12:35pm

I had 4 pints of draught Guiness last night. It was sheer luxury and I enjoyed every last drop. Glad my cycle has finished and hope to have another year of beer drinking ahead before the next cycle starts again!

Cheers!
John

Title: Re: Too good to be true?
Post by Stevieray on Feb 1^st, 2004, 3:37pm

Well here it is , day # 17!!! and still no headaches! I even went on a bit af a bender last night (3 beer and 1- 1/2 bottles of red wine) and I don't even have so much as a hangover! Ya gotta love that! I'm keeping my fingers crossed hoping that I have defeated the beast. I'll keep y'all informed. SR.