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Title: More shroom stuff.... Post by Roxy on Dec 15th, 2003, 2:30pm I've been dosing pretty regularly, but this week I'm going med free. I've been off the verap for about two weeks now, and going off the imitrex this week. I'm breaking out in cold chills at the thought, but I know I have to do it. Took dramamine last night, so I made it through the night without trex. Going to dose tonight, and although I know I haven't been long enough without the trex, I'm hoping that the dosing might help me through the week. Wish me luck guys......and if I'm not around very much.....well, you'll know why..... :-/. One interesting thing. I dosed last Sunday night (hoping it would help me make it through the week in New Orleans), and I started getting hit as I was making the tea. You've never seen anybody try to make tea that fast...LOL. I just downed it quick, and it totally aborted my hit. Amazing.... ;;D. I've never actually dosed in the middle of a hit, and I really wasn't expecting such a quick abort. A very pleasant surprise. Now for the whine.......I don't want to go without trex, I don't want to go without trex, I don't want to go without trex....... :'(. But I know I gotta. PFDAN, Tracey |
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Title: Re: More shroom stuff.... Post by thomas on Dec 15th, 2003, 2:37pm Good luck Roxy - You can make it without the trex - I'm sending you all the trex independence vibes I can. |
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Title: Re: More shroom stuff.... Post by eyes_afire on Dec 15th, 2003, 2:46pm Hey Tracey, Quote:
One time that happened to me too. It aborted shortly after takeoff. Ended with about 15 to 20 seconds of sharp jabs and then 'poof, gone'. Good luck. I hope things get better for you. --- Steve |
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Title: Re: More shroom stuff.... Post by BlueMeanie on Dec 15th, 2003, 3:00pm GOOD LUCK TRACEY. I'm still a holdout, but eventually i've gotta give it a try. Please keep posting on your results. |
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Title: .Re: More shroom stuff.... Post by Mikey on Dec 15th, 2003, 3:27pm I'm dosing now myself Tracey!! So far, it's made my HAs a little worse, but other than that, not much change :-/. I'm so glad that you are getting some kind of relief Tracey, you've needed it, and is well deserved!!! Wishing you all the luck with it!!!! And please wish me luck!! Mikey, ;;D |
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Title: Re: More shroom stuff.... Post by hdbngr on Dec 15th, 2003, 5:03pm Hang in there, we're all thinking of you! And watching closely... V |
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Title: Re: More shroom stuff.... Post by Pinkfloyd on Dec 15th, 2003, 8:01pm Ok, so you guys had to start your own thread!!! LOL Fine...we can watch two at the same time!!! ;) Jos and Hannah let us get a little extra sleep last night so.....we're ready... and we'll be here for ya! Good luck! PF |
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Title: Re: More shroom stuff.... Post by KandyKane on Dec 15th, 2003, 9:17pm Didn't want to interrupt the other thread, so will ask here. Should all meds be stopped prior, or just Imitrex? What about standard anti-inflammatories? |
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Title: Re: More shroom stuff.... Post by jminmilwaukee on Dec 15th, 2003, 9:54pm I'd say that the evidence points to NO TREX for sure. Even within earlier studies this has been a common theme. Trex seems to hose up the works in such a way that the treatment cannot grab hold. I do not know about anti inflams but would assume (I stress assume) that they do not react with the receptors in the same manner as trex and some of the other meds do. Someone with experience really needs to respond to that. As for the abort thing, some have reported success by placing a small piece under the tounge (sputnik for those who remember) or chewing one like a pice of gum when getting hit. I heard of a guy who looks like me and has a name similar to mine who had a friend who knew someone who would keep a jar of premade tea in the fridge to abort an attack by swigging down a few gulps and hitting the 02. Heard it worked quite well :) jmin |
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Title: Re: More shroom stuff.... Post by Mastifflvr28 on Dec 15th, 2003, 9:57pm Bigass shroomy vibes going up to you Roxy. I wish you the best of luck, I know you've been keeping up on the shrooms real good, you are a good fighter!! Take care Mast |
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Title: Re: More shroom stuff.... Post by Flash on Dec 16th, 2003, 9:13am The following MUST be ceased prior to shrooms: triptans such as Imitrex methysergide (Sansert) ergotamine predisone lithium would also caution against beta-blockers |
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Title: Re: More shroom stuff.... Post by HannahFroukje on Dec 16th, 2003, 2:44pm Hi all Just know that I'll be here to cheer you along in thoughts as well as in writing. And )))))))))))VIBES((((((((( ofcourse ;;D. I'm sure other cycles could be (much) easier broken than Jos' cycle, he seems to have a very stubborn one. We've made probably a mistake or two, or perhaps just bad luck ... and his cycle is very violent, so I would not expect the same problems with everyone. It's a FACT that it works, that's important. Good luck to you all, who are going to try. Perhaps one day we can all have a picknick, have a beer and serve chocolate-mushrooms, mushroom egg-roll, mushroom-tea (the famous recipee) and stuffed mushrooms as desert ;;D . AND BEER! |
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Title: Re: More shroom stuff.... Post by jminmilwaukee on Dec 16th, 2003, 3:49pm Just let me know when Hannah! We will have to have the get together in a park near you so we all don't end up with a picnic in prison :)of the world. BTW - I have always wanted to visit your part of the world. jmin |
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Title: Re: More shroom stuff.... Post by TxBasslady on Dec 17th, 2003, 12:19am I've been thinking about you, Tracey. Wondering if you were doing ok. Damn, I hope all goes well for you. BTW, I enjoyed the hell outta that visit with you Saturday. You are such a sweetie! If your ears were burning, it's because Elaine and I were talking about ya! Let me know, sweetie, if I can do anything for ya. Love ya.........Jean |
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Title: Re: More shroom stuff.... Post by Roxy on Dec 17th, 2003, 12:53pm on 12/15/03 at 21:54:23, jminmilwaukee wrote:
Now this interests me......I tried the under the tongue thing...didn't work real well. Maybe the premade tea will do better. Mikey......all the best, I'm thinking of you and wishing you great success. This chronic shit really stinks...... :-/ Thanks for the good wishes everyone....I appreciate it. |
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Title: Re: More shroom stuff.... Post by Flounder on Dec 17th, 2003, 5:46pm (((((((((((((Good Vibes)))))))))))) to you Tracey!!!!! Have you been able to go without the Trex? We share the same neurologist. I was curious if you have discussed shrooms with him and if so what his reaction was. I haven't seen Dr.Mathews in almost four years since starting this treatment. I have wanted to contact him and let him know about it and how well it's worked for me. Hope things are going well |
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Title: Re: More shroom stuff.... Post by Roxy on Dec 19th, 2003, 10:44am Flounder, I haven't mentioned shrooms to him yet. He's a very ch aware doctor, but he didn't even like it when I suggested changing from the extended release verap. He basically told me in a nice way.....that I didn't know what the heck I was talking about. So.....I've learned to just smile, and keep that trex prescription going.... ;;D I need to get a little better result going for myself before I bring it up to him too. I know the treatment is helping me, I'm not at 10-12 hits a day.....but, I'm afraid he might not see it that way. T |
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Title: Re: More shroom stuff.... Post by Cluster_head on Dec 19th, 2003, 10:58am I had a very frank discussion with my neuro about this treatment. At first, he didn't want to hear anything about it. After pressing a bit he did say that he wouldn't be surprised if it could help, but since it was outside the parameters of western medicine, he would never recommend such a course. Said there were plenty of docs writing scrips for medical canibis, but he isn't one of them. He left it at that. I threw away the prescriptions for pred and indocin on my way out the door. I actually have a follow-up appointment this am that I won't be attending. Its been about a month since my last attack. Its shrooms for me from now on. I have no need for a neurologist anymore. Never did much for me anyway. |
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Title: Re: More shroom stuff.... Post by Elaine on Dec 20th, 2003, 9:22am Good Luck Roxy! If I did not have this baby I would give it a try myself. I am sending prayers your way and fingers crossed for ya! |
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Title: Re: More shroom stuff.... Post by HannahFroukje on Dec 20th, 2003, 11:05am I second that ;;D. Let us know how you are doing! Best of luck Hannah and Jos from Holland (not the A-team but the C-team) [smiley=laugh.gif] |
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Title: Re: More shroom stuff.... Post by jminmilwaukee on Dec 20th, 2003, 2:42pm Clusterhead, ice to be free yes?.....enjoy! jmin |
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Title: Re: More shroom stuff.... Post by Flounder on Dec 21st, 2003, 1:07am Tracey, He does think of himself as the premier headache specialist in the country. He definitely has a big ego. He helped me years ago. After many visits to all kinds of quacks and there idiotic diagnoses, he new right off the bat what was going on with me. But thank God I don't need him anymore. I wish the same for you!!!!!!!!! Or should I say thank Flash, Pinksharkmark and while I'm thanking people Ueli and Pinkfloyd as well. Also all the clusterbusters and all that have shared their experiences with this treatment. It really is an amazing thing. |
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Title: Re: More shroom stuff.... Post by Pinkfloyd on Dec 21st, 2003, 4:35pm on 12/17/03 at 17:46:41, Flounder wrote:
I saw Dr. Matthews a few years ago and spent some time in Houston. He was willing to do the RF for me but not until I went through his IV DHE therapy first. Knowing the poor results on IV DHE and the usual recurrence of the cycle, I declined his offer. It was a couple months after that, that I went the psilocybin route. I guess I owe him a thanks. Good luck and some Merry Christmas vibes coming your way, Tracey. PF |
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Title: Re: More shroom stuff.... Post by CJohnson on Dec 22nd, 2003, 2:15pm Why do you suggest stopping prednisone before employing the "therapy"? PFDANs -Curtis |
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Title: Re: More shroom stuff.... Post by Roxy on Dec 22nd, 2003, 5:38pm Thanks for all the good wishes. Wish I had better news from here. I haven't done real well with the 'no trex' attempt. I can handle the hits during the day, but I'm getting slammed pretty hard most nights, Saturday night it was seven shots, last night was pretty easy....only three. Last Christmas was a real high cycle for me, so it might not be the best time to try doing without the trex. It might just be one of those high cycle times. Must be Murphy's Law....trying to go without, I end up having to use more than I have in months..... :-/. Ho Ho Ho.....I hope my stocking is full of trex. :) |
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Title: Re: More shroom stuff.... Post by Flash on Dec 23rd, 2003, 6:11am Everyone that has used pred inconjunction with shrooms has failed to break the cycle. So I have concluded that pred fucks things up. Also it appears that pred, verapamill, and imitrex are especially good at prolonging epsides (surprise). The ideal scenario for the pharmaceutical companies is something that appears to reduce the frequency of attacks, or abort the odd attack whilst dragging the whole thing out for as long as possible. Keep the money rolling in folks! Flash |
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Title: Re: More shroom stuff.... Post by HannahFroukje on Dec 23rd, 2003, 6:15am As for this last thing, I can´t escape from the thought that money DOES play a big part in this. Pretty indigestable to me, but perhaps nevertheless not less true (???). The thought alone makes me pretty ANGRY. |
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Title: Re: More shroom stuff.... Post by hootchdom on Dec 23rd, 2003, 7:47am Amazing my wife and I also had a long discussion with regards the drug companies. With as much money as they are making off the triptans why in the hell would they want a cure. Not so much with cluster headaches, to minor, but when you look at migraines now we are talking big business. It makes you wonder why in the hell the drug companies would let sansert (Methysergide), one of the most effective for treating headachces, be taken off the market. Sure you see the big lawsuit drugs being pulled (phen-phen or whatever the hell it was) but as far as I remember there weren’t a hell of a lot of people rushing to sue the drug companies over sansert. Always follow the money !!!!!!!!!!!!!! Hootchdom |
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Title: Re: More shroom stuff.... Post by jminmilwaukee on Dec 23rd, 2003, 8:39am Damn Roxy, sorry to hear about the nastiness of your cycle. I am sure you have tried everything but is there anything at all you can do to avoid all of those shots? Thats gotta be hell on your system. :( Let us know if there is anything at all we can do for you. Even if its just a phone call in the middle of the night, let us know. jmin |
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Title: Re: More shroom stuff.... Post by CJohnson on Dec 23rd, 2003, 9:13am I looked around and found some anecdotal evidence which supports the idea that prednisone should be ceased prior to the treatment. Got this from the medical info button. "The remarkable efficacy of corticosteroids in this syndrome is not easily explained. McEwen et al, (1986) have reviewed the many potent actions of the corticosteroids on the CNS, but these are just beginning to be defined. De Kloet et al (1986) studied the relationship of corticosteroids to the serotonergic projection from the dorsal raphe nucleus to the hippocampus in rat brain; they found that corticosteroids exerted tonic control on serotonergic neurotransmission in this system." The molecules which are active during the treatment will not be able to have a predictable and efficacious action on the disrupted serotonergic neurotransmission of a cluster headache sufferer when those molecules are competing with corticosteroid molecules for action on the same system. The Psilocin is trying to "tune" the system in one direction, when the corticosteroid is already "tuning" the system in another direction. PFDANs -Curtis |
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Title: Re: More shroom stuff.... Post by Roxy on Dec 26th, 2003, 5:04pm I managed almost 48 hours without trex before dosing last Tuesday night......(38 hrs. to be exact). Dosed in the middle of being hit again, and once more...it aborted almost immediately. Got hit three or four times Christmas eve, but since then it has knocked me back down to one or two a night.....so, pretty much PF. This time, it hasn't seemed to make the 02 work much better for me, but I'm hoping that will change. I was going to dose again this Sunday night. But I have a 26 hour drive to make this weekend, and without 02 in the car.....I'll have to use the trex. Don't think I could fight through the hits while stuck in a truck on the road..... :o. Sometimes it's the circumstances that defeat me too.....lol. PFDAN, T Hope everyone had a great Christmas...... ;;D |
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Title: Re: More shroom stuff.... Post by Roxy on Dec 30th, 2003, 7:06pm aaarrrrrrgggggghhhhhh I don't know what I'm doing wrong....but I need some help here. This is just sucking!! :'( |
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Title: Re: More shroom stuff.... Post by 9erfan on Dec 30th, 2003, 8:07pm I hate to hear this Trace... I wish I knew how to help you but hopefully one of the experts here will get in touch with you. Meanwhile, I'm saying a prayer for some relief for you! Virginia |
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Title: Re: More shroom stuff.... Post by Not4Hire on Dec 30th, 2003, 10:23pm KWITHCHER DAMN WHININ'....YA MEEGRAINER! [smiley=bloos.gif] [smiley=bloos.gif] [smiley=smug.gif] |
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Title: Re: More shroom stuff.... Post by Roxy on Dec 31st, 2003, 12:00am ROTFLMAO.........bite me, Steve........ ;;D |
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Title: Re: More shroom stuff.... Post by Pinkfloyd on Dec 31st, 2003, 12:35am What can we do to help Tracey? need an update on whats going on, what's *been* going on and exactly what you're taking...everything. PF |
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Title: Re: More shroom stuff.... Post by stevegeebe on Dec 31st, 2003, 5:57am The best I have Tracey. Keep the quarter..okay? I know..I know.."bite me Steve." Steve G |
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Title: Re: More shroom stuff.... Post by Roxy on Dec 31st, 2003, 11:02am on 12/31/03 at 00:35:53, Pinkfloyd wrote:
Hey Pink! I'm just kinda in the same place I've been for awhile, except the ch breakthroughs are growing. I'm taking nothing but trex (as little as possible). When I dosed last week, I had been off the trex for around 36 or 38 hrs. When I dosed this week, I woke up at 4am, and used the trex before I was fully awake....didn't realize what I had done till it was already over.... :-/. The shrooms are still working...I'm not back into my usual 8-10 hits a day, but I'm up to 3-4. This addiction to trex is just hard to beat....but I am working on it. I think I just need to shake my head up, but I'm not sure what to do? Any advice would be greatly appreciated..... ;;D btw: yeah......bite me Steve.....LOL |
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Title: Re: More shroom stuff.... Post by Pinkfloyd on Dec 31st, 2003, 12:01pm OK Rox... Let me know exactly what you've been taking over say, the last month as far as medications/abortive measures..melatonin? 02? etc...and if they work at all. I understand the lure of the trex when its sitting there and you're getting hit so often. Any info will help. PF |
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Title: Re: More shroom stuff.... Post by Roxy on Dec 31st, 2003, 7:25pm on 12/31/03 at 12:01:10, Pinkfloyd wrote:
In the last month, the only two abortives I've used are trex and 02. The trex always works (but, it does seem to be taking a little longer at times), the 02 will work really well right after I dose, but then loses its abortive ability after a day or so. It will knock a ch back a little, but if I rely on only the 02, I usually just spend all evening on the mask. I've tried melatonin before, and it didn't work. PFDAN, Tracey |
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Title: Re: More shroom stuff.... Post by MillieMoer on Jan 1st, 2004, 3:11pm can someone fill me in on the "shrooms" treatment....maybe its listed somewhere??? dont know...thanks Millie |
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Title: Re: More shroom stuff.... Post by tommyD on Jan 1st, 2004, 5:40pm The "shrooms treatment" is the use of a few to several small doses of psilocybin from "magic mushrooms" or "shrooms" to end or prevent entire cycles of cluster headache attacks. Psilocybin is not legal in most places, and this treatment is not for everyone, but it works very well. For details on this treatment and on growing your own psilocybe mushrooms, see: www.clusterbusters.com Also check some of the threads here on the "medications, treatments and therapies" board, especially the "Updates on psilocybin research??" thread below - this is the tale of four people trying this treatment, and three of them finding significant if not complete relief. You will see this treatment is not always easy for those with tough cases of chronic CH, but persistance pays off. For others, the treatment can seem like magic. A few very mild "trips" (getting as high as one would on a couple beers) over the course of a few weekends, and folks find themselves pain free for months. It's not magic, of course, but neurochemistry -- there's much to be learneed but it seems to have to do with serotonin receptors in the brain and the shape of the psilocybin/psilocin molecule. Check out clusterbusters.com and the "shrooms" threads here, and ask lots of questions. Be careful not to take too much and avoid this treatment if you have a history of schizophrenia, paranoia or mental instability. -tommyD |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 3rd, 2004, 6:30pm OMG.......SOMEONE HELP ME PLEASE!!!!!!! |
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Title: Re: More shroom stuff.... Post by Flounder on Jan 3rd, 2004, 8:23pm What's going on Tracey? [smiley=huh.gif] I'll help if I can! |
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Title: Re: More shroom stuff.... Post by HannahFroukje on Jan 4th, 2004, 4:52am Please tell what the problem is, or PM Pinkfloyd or other "pro's" on mushrooms. Hannah |
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Title: Re: More shroom stuff.... Post by Pinkfloyd on Jan 4th, 2004, 12:40pm on 01/03/04 at 18:30:57, Roxy wrote:
Ok Rox.....lets break this damn cycle, shall we? I'm sorry I've been away a couple days. I threw my back out and it's difficult sitting in front of a screen. Well, its just difficult "sitting".... First, let's forget what has or hasn't worked for you in the past and start off as if some things may help, even if just a little bit. Battling through a #8 will be easier than a #10 and get us closer to where we want to be. We also know that in different combinations, things ma help that hadn't in the past. Just as 02 works better for you after dosing (for a while anyways) other things that may have failed previously may work to some extent if used in conjunction with others. Let me suggest... Add 9mg of melatonin to your night time med schedule. (last broken cycle, not yet documented here, used melatonin without blocking any mushroom activity) Add 200 to 400mg of vit. B2 (multi is ok but make sure you get at least 200mg of B2) Add magnesium...again, 200 to 400mg. I know, at this point in a cycle such as yours, how every attack is devastating due to your level of exhaustion and frustration. IF there are any attacks that don't reach that #10 level and you know when they come, (sometimes we have a feeling like, "this one won't be as bad but I just can't take ANY of them anymore") try to get thrrough it without any meds. Suck on the 02. Hopefully with the added B2, mag, and melatonin, the 02 will increase slightly in effectiveness also. I know how you've tried desparately to get off the trex. For now, just try to use as little as possible. Don't beat yourself up for using it when you need to. Start right now with a positive attitude that this IS going to work. If you have an adequate supply, replace some of the trex doses with a cap or stem under your tongue at the first sign of an attack. If they're extremely well timed attacks and you know you'll be getting one at 1:00pm, eat a stem at 12:45. We're going to replace the trex with psilocybin. The quicker the better but don't get discouraged if it takes a while. If you haven't yet tried keeping tea in the fridge.....try that instead of the stems etc. Depending on how strong you make it, you should only drink the equivalent of probably one shroom. (i'm educatedly (is that a word) guessing here....depends on the strength of the tea...the shrooms used, etc.) There are some other things you can do to try to mitigate the attacks. Reread this thread, especially Hannah's posts with regards to what things Jos tried to get through attacks. I'll also send you a list as soon as I'm able to walk, or crawl down stairs to my other pc. Try ice....it reduces swelling. Freeze a couple bags of peas. They work great and the bag will conform to your head. Do your best to eat properly and get whatever rest you can. Even if it's in 15 minute rests. You need to build up some physical stamina if at all possible. I am a firm believer in this. I know how the attacks will sap you of not only your mental strength, but your physical strength and this all just makes the cycles spiral downward even further. You need some strength to win this war. Eat a steak,,eat a peach....just eat!!! When you're feeling better in between attacks....instead of trying to catch up on the chores etc that you're behind on..(I know all about the guilt)...this is the time to take care of yourself...not the dirty clothes in the hamper. Get yourself up, (grab that piece of fruit) and take a short, easy walk outside in the fresh air. When you get back...drink some water or gatorade. Rest your eyes. No reading..no tv. Concentrate on long deep diaphragmatic breathing. (breath like a dog breaths when at rest. long slow deep breaths where your belly moves but not your chest.) Don't fall asleep at that point....that will slow your breathing and reduce your 02 intake. Start a log of your attacks....time of each attack, length of each attack and kip level. If you use something to abort an attack..whether it works or not...log it. Keep track of every psilocybin dose you take. It would help if you have someone to do this for you. If not, just jot down the notes on post-its and pile em up until you have time to organize them. Stay positive... Stay positive... Did I mention...Stay positive???? *hug* PF (P.S. to everyone reading this...This method of taking psilocybin in small amounts in between the regular size doses is NOT the recommended way to do this treatment. The best way is to stop the imitrex completely and wait for 5 days. Dose with psilocybin and wait five more days before dosing again. Then stay off the imitrex. Some people are in such bad cyles that its impossible to stop the imitrex cold turkey. This method will add to the length of time needed to break the cycle, but its better than.....well, its still better than anything else I can think of.) |
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Title: Re: More shroom stuff.... Post by Woobie on Jan 4th, 2004, 2:54pm OK - I just came in the medicine section here... I never come in here - because quite frankly - I dont know ANYThing and normally have nothing to say here. I dont know why I came here.. but I'm glad I did. Tracey - I didn't know you were going thru a bad time right now, and I'm really sorry! :'( I'm huggin you - can you feel me? [smiley=hug.gif] I hope that things get better for you! And PinkFloyd - I am in awe of you - your kindness, your knowledge, and your willingness to help! The post above was the nicest post - I wish you were coming to Davenport......... Tracey - feel better! I'm so sorry you're going thru this again! Bob - take care of your back !!!! hoep it feels better!! tina [smiley=heart.gif] |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 4th, 2004, 5:24pm woobs....thanks sweetie. Pink, I'm sorry, I know beter than to come and post during a bad time. Didn't mean to whine, but I want to thank you from the bottom of my heart for your answer. Sounds like you need to be taking care of that back instead of sitting in front of the computer....I hope it gets better for you. I started a journal, and went out and bought the supplements, hopefully they, plus the melatonin will help. I plan to dose tomorrow night again, I'll be 38 hrs. w/out trex at that point. I know it's not long enough. I think I can make it this week without the trex, but with the trip to Iowa this weekend, I know I'll use the trex. Social situations like that.....I just can't fight through the hits....it's embarrasing enough as it is. I want to use the caps under the tongue tonight, but I don't know whether it will do anything, considering I used three shots last night. I do have a supply in stock, but I've shared....so I'm a little low. My jars are in day 4 right now, so it'll be a few weeks wait till harvest. I know the shrooms are still helping me, or I wouldn't be getting just 4-5 hits a night. I would be back up in a really high cycle. I just want to thank ya'll again for answering me....I seem to be hanging on to the end of the rope right now, and I think my husband is ready to kill me. Tracey |
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Title: Re: More shroom stuff.... Post by Mastifflvr28 on Jan 4th, 2004, 8:03pm Awwww Rox, PF vibes goin up to ya!!! Good luck with the new list of stuff to do. Keep positive, it'll work! Documented proof ya know :) and Bob, PF back vibes going up to you. Hope you heal up real soon. Mast |
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Title: Re: More shroom stuff.... Post by Pinkfloyd on Jan 5th, 2004, 1:23am on 01/04/04 at 14:54:00, Woobie wrote:
OK, a couple of quick notes and its back to the ice packs...just nice that I need them for my back again and not my head. First of all, Tina, I think that EVERYONE should visit this side of the board. People can flame me if they want (it's useless BTW) but you ( and Ramon) certainly aren't going to find a "cure" on the other side unless someone links you here. It isn't just about being able to supply new information about treatments. I can't understand how people are willing to spend hours online in the "general chat" area and never stop in here to see if there is anything new that could help them. I know there are people there complaining that nothing is new and there is nothing out there that will ever help them. They have given in to the notion that they will live with clusters, all their life, with no hope of a better treatment. We may all be dead and gone before a true cure is found, but it may be tomorrow that someone posts something here that will dramatically improve their lives. The discussions here by people that explain their cycles, their symptoms, how they react (or don't react) to different meds is ESSENTIAL to finding out the origin of clusters. I'm sure you've heard the old saying..."and a child shall lead them".....for people to do proper research,,,,,they need data!!! I'm not directing this to (or at) you Tina as I know you are very active...everywhere. It bothers me to know there are people that are happy to fill out every poll there is about football teams, songs, the size of their....monitors, and haven't stopped by this side for months....years??....to see the research that is being posted here almost every day. And...I'm not just speaking about shrooms. I see that there are people now that don't even want to look at what other's have to suffer through. Well, I hope that someone else they love or care about doesn't come down with clusters while their heads are stuck in the sand. There is NO good time to give up. There is no such thing as not being able to contribute. Every "that didn't work for me" is just as important (or more so) as every "that did work for me!" When cluster patients give up looking,,,they do a great disservice to the "cause" as a whole and to themselves individually. Their doctors keep getting requests for the same medications, thinking that they are happy with reducing thier attacks to three a day. Or, they disappear from sight and that doctor thinks...hey, the lihtium works...he's probably getting it from his GP. All that does is reinforce in the medical community thatther are adequate treatments available for all cluster sufferers. There aren't, as you know. It's ok to come to terms with the condition and how it may affect your life. It's ok to devise a plan to make as much of a life as possible. We should all do that. It's not necessary to stop looking for something better. It pushes the medical community to find something for everyone. Giving up on yourself is like giving up on all of us, which includes future generations in their own families. If you've tried all the meds and they either don't work or make things worse......there are many "other" remedies that are being looked at. Finding out that Vitamin "Z" cuts down on the pain for thousands of cluster sufferers will not be found by someone that has given up looking. Sorry to tack this onto the reply to your post Tina. You just reminded me of this subject. It's sort of a call to arms to everyone, and not directed towards you or Ramon. now...on to roxi..... :o PF |
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Title: Re: More shroom stuff.... Post by Pinkfloyd on Jan 5th, 2004, 1:37am on 01/04/04 at 17:24:56, Roxy wrote:
well, know this....it's the "bad times" we need to hear about the most. K? When you're able to post....post! on 01/04/04 at 17:24:56, Roxy wrote:
Don't give up before you even try. Looking ahead at needing it will only become a self fulfilling prophecy. Maybe I forgot to mention......stay positive!! Anyone going to Davenport that's willing to help Tracey?? ;) on 01/04/04 at 17:24:56, Roxy wrote:
keep us posted on this. on 01/04/04 at 17:24:56, Roxy wrote:
don't look now but there are a lot of people helping you hold the rope. Before I offer any help with that other problem.....exactly how big IS your husband??? ;;D Good luck.... PF |
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Title: Re: More shroom stuff.... Post by ave on Jan 5th, 2004, 5:03am Tracey, he would not kill anybody with gorgeous legs like yours. How I envy them! |
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Title: Re: More shroom stuff.... Post by Mastifflvr28 on Jan 5th, 2004, 10:02am Quote:
Do I have a CHOICE?? I'm her roomie, and she got me the plane ticket, so she's stuck with ME :) As she knows, I'm a good rocker, and I'll get another chance to yell at her to BREATHE! :) Mast |
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Title: Re: More shroom stuff.... Post by Mikey on Jan 5th, 2004, 11:16am Tracey, i'm in the same boat as you are right now, so i'm just sitting here soaking up the info, and wiping tears, blowing the nose, and hurtin like hell........boy that trex looks good!!!!!...My problem now is, i'm completely out of shrooms now, and i guess trex is my only option right now. :( I'm praying and sending vibes to ya Tracey!!!! Mikey... ;;D |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 5th, 2004, 11:48am on 01/05/04 at 01:37:15, Pinkfloyd wrote:
This is the one thing that keeps me going. For all my whining, I know I have some damn good supporters. Nice enough to hold my hand when I need it, but also mean enough to kick my ass when needed..... :) on 01/05/04 at 01:37:15, Pinkfloyd wrote:
He's big......but easy....trust me...... ;) I took my melatonin last night, along with two dramamine. Must have been an off night for the meds. I'm just glad that my head is good during the day, it never gets wound up till evening. Here is my little journal from last night. 6:23pm - 02 for 30 minutes. 7:43pm - 02 for 30 minutes 9:15pm - 02 for 30 minutes 10:10pm - 02 for 45 minutes 12:05am - 02 for 30 minutes 12:50am - 02 for 30 minutes 2:02am - 02 for 30 minutes, shot of trex after the 02. I always get the chance to rest and recuperate during the day, that is one thing I think the dosing does for me. But, it was still a long night last night...the 02 never really aborted it all the way, it just took it back to a place that was bearable. Using the trex was actually more for my husbands sake last night. Where we are staying in Virginia Beach is so small, it can't help but keep him awake, and he actually has to get up and go to work. I don't want him worn down because of me. Since I ended up using trex last night, should I even try to dose tonight? Or just give it another day or two? Thank you pink....a lot. Mast...you sweetie....love ya..... :) ave, thank you, but I'd trade these legs for your lovely accent anyday. |
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Title: Re: More shroom stuff.... Post by Paigelle on Jan 5th, 2004, 12:28pm Geez Tracey, please feel better. I want you to get some relief. I read these post and I feel bad for you right now. |
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Title: Re: More shroom stuff.... Post by 9erfan on Jan 5th, 2004, 3:29pm This sucks! I'm sorry it's still so bad for you right now. Your package went in the mail (priority) on Saturday. I wish you didn't need it. Keeping you in my prayers. Love you, V. |
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Title: Re: More shroom stuff.... Post by Mastifflvr28 on Jan 5th, 2004, 3:54pm Vibes goin up to Mikey too, Mikey, best start farmin SOOON bro, so's ya don't run out, give this treatment a chance. Mast |
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Title: Re: More shroom stuff.... Post by Flash on Jan 5th, 2004, 3:58pm I'd wait till the trex is out of your system. Dosing now might only prolong things. Flash |
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Title: Re: More shroom stuff.... Post by Pinkfloyd on Jan 5th, 2004, 4:16pm Why did you do the trex instead of some tea? Agreed (with flash) about holding off on the shrooms tonite. You need to stop with the trex. Basically doing them both at the same time has probably left your brain feeling as if it's been in a bar fight. try...to go as long as you can without both,,,and then start the shroom treatment as we discussed. Hopefully the other additions may start helping a bit soon. It sounds more like your night attack(s) were one long attack that just kept coming back because it just never fulfulled its mission. You need to try to completely break or end it.(I know you'd love to but it doesn't cooperate).. After the first 20 or 30 minutes, take a five minute break from the 02 and then try the 02 again to finish off the attack so it goes away completely. Packing it with ice will reduce swelling so that might help cool it off and allow you to end it completely. Even if it hurts to begin with.....try the ice for a while. good luck...hope you have a better night. PF |
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Title: Re: More shroom stuff.... Post by Woobie on Jan 6th, 2004, 4:38am WOW Bob - again - you phukin amaze me. You are SO right. I didnt' realize, when i read it in the general section, that it was in response to what I said. SORRY! I said that I didn't come to the medicine section because I didn't have anything to add. What I meant..was that I dont take cluster meds, so I have no input. I cant post - I can read and learn, but as far as input - I will have none... know what I mean? I guess, as a supporter, I should be in there, learning. And you're right. But - Ramon needs to get over there and learn himself too - I cant do EVERYTHING for hiM! LOL What should we do for Tracey in Davenport... keep her off the trex?? Is that what you mean? Are you sure you cant come to Davenport? Las Vegas will ALWAYS be there - we are meeting ONCE. Know what I mean? tina |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 6th, 2004, 10:27am Not sure if my head knows that we are trying to mess with it.....or if it was just being kind and gave me a night off. After the early morning hits yesterday......I never got hit again..... ;;D. Of course, my husband kept looking at me all night like I was a time bomb waiting to go off. He would open his mouth, and start to say, "You're not getting hit"...and then he would just close it and look at me....LOLOL. I made my tea to keep in the fridge. Mast helped me on that....neither one of us could slog back through that long shroom thread to find exactly how to make it. So I just made two cups of tea, added two grams of ground up shrooms, and stuck it in the fridge. First hit came at 2:15 this morning. I took three big swallows of tea, hit the 02, and it aborted within 15 minutes. Second hit, I woke up with it at 8:20, and I almost never get hit in the mornings, but same thing....three swallows and the 02, gone in ten minutes. I had also taken dramamine at midnight last night, guess I need to give up on it for awhile.....doesn't seem to be working right now. ....but....I'll be go to hell........NO FRIGGIN' TREX......YES!! Not sure what is going on....but, I like it so far..... :-* |
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Title: Re: More shroom stuff.... Post by Mastifflvr28 on Jan 6th, 2004, 10:36am wow wow wow!! I think yer onto sumpthin roxter!! Keep up the good work. You are going to dose tonite, right?? Maybe you won't NEED TREX in Davenport, whooo hoooo!!! Trying for the positive here :) Ok, wish me luck gettin to work and gettin home through this snowy CRAP :) Mast |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 6th, 2004, 10:44am Mast....don't get your ass stuck! At least you'll get rid of your cabin fever. Can't say I'm on to something......I'm just following some damn good advice. ;;D |
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Title: Re: More shroom stuff.... Post by HannahFroukje on Jan 6th, 2004, 3:15pm Roxy , am not sure if anyone ever told you this or if you ever tried it, and no time to read through all threads, so I'll just spit it out. Jos has the WORST CH-attacks you can imagine, and a lot of stuff that is (luckily) helpful to others didn't do much or nothing for him (pepper, blue cheese, ginger ... that stuff, I'm not saying it doesn't help, I'm only saying it didn't help HIM). What did help him and sometimes even aborted an attack was: * Running up and down the stairs. Not on mild attacks, but when it was really REALLY severe, and he started running up and down, he kinda took the "top of it", and it became bearable. I think because the bloodflow is altered. It also helped to hit the oxygen AFTER the running, while it didn't help BEFORE. * Drinking ICY water, I mean half water/half ice. I needed to remind him though to try and drink at least a cup as soon as the attack started, he tended towards taking a sip, then wait , take another sip ... then wait, but that doesn't help enough. But to use it as an abortive, he had to try and drink a few good gulps, and then his pain lessened. I know this hurts in your mouth and throat but that's the point I think, it gives you a kind of "shock" because it's just TOO cold, and your body will react to that "crisis" and do something about it. It really helped him, which was amazing, because it helped even better on him then O2 sometimes. I hope this helps you out a bit too to stay of the trex. It sure helped him to sit them out while on mushroom (though he couldn't make it a few times too). We also tried the sips of mushroom, did help us out a bit too. Succes on trying! Hang in there, there are a lot of people thinking of you. |
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Title: Re: More shroom stuff.... Post by ave on Jan 6th, 2004, 5:11pm Pulling for you over here, Tracey! Pain Free Davenport and Nights... Lol |
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Title: Re: More shroom stuff.... Post by tommyD on Jan 6th, 2004, 5:16pm Hannah - The icy water trick works for someone besides me! I posted it here a few times in the past, but few others ever said this worked for them... I have found that gulping down a full liter (quart) of cold water as quickly as possible at the first sign of an attack could stop two out of three attacks in less than 10 minutes. But my CH is mild compared to most, and I never guessed this would work for a tough case like Jos's. I don't put ice in the water, makes it harder to drink quickly. I keep 2-liter plastic soda bottles of spring water in the refrigerator, and chug at least half of a bottle down within about a minute as soon as I feel the Beast coming on. I got the idea by error - I misread the water X3 treatrment (button on the left). I upped my water intake, and somehow got the idea I could use cold water as an abortive as well. I was wrong, but dammed if it didn't work! If folks have no other abortive around, this is worth a try. It won't hurt you, though it may stretch your bladder a bit, and you can't beat the price. Don't know why it works - it could be forcing your body to redirect blood flow to the stomach, or perhaps it chills the carotid artery (which runs very close to the esophagus) and causes it to contract. -tommyD |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 6th, 2004, 6:19pm Thanks for the good thoughts ya'll.....appreciate it! Hannah, yes, I've tried probably every 'natural' remedy that has been posted on the board. Some help a little, some do nothing. The water has never worked for me, but I still do it sometimes....just in case it wants to change its mind and work. The exercise will sometimes help if I catch it early, and so will sex. But, they do nothing for those middle of the night hits. I do have a question about dosing tonight. Since I took somewhere around of gram of shrooms last night, can I go ahead and dose tonight? Or will it just be a wasted dose? Can I use the tea again tonight? I'm not real sure where to go from here. ;;D |
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Title: Re: More shroom stuff.... Post by ave on Jan 6th, 2004, 6:41pm Floyd and Pink and Flash say no, but then again, Hannah and-Jos dosed much more often than in the laid down rules. |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 6th, 2004, 8:41pm Yeah, you're right ave. Just took another big swallow of the tea. Not much left of the two grams, so I know I can't dose. Just a little disappointed. Wanted to use the tea again tonight. |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 6th, 2004, 10:53pm I'm sorry guys. I fucked up. Greg used the trex on me. I was curled up in the corner of the kitchen floor, and he just injected me....he said he couldn't stand it any longer. :'( |
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Title: Re: More shroom stuff.... Post by Mastifflvr28 on Jan 6th, 2004, 11:00pm Awww Rox, it's ok, it's just a set back. You got hit hard and fast. No one would blame you OR Greg for THAT! Keep on keepin on, you'll do it!! Mast |
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Title: Re: More shroom stuff.... Post by Pinkfloyd on Jan 7th, 2004, 12:23am on 01/06/04 at 22:53:49, Roxy wrote:
Just imagine.....if you posted this on any other site.......well, anyway, I think I saw this on HBO the other night!!! Don't worry Rox, we aren't deducting points and we aren't going to leave you hanging. Just try to remember.....and ask....does your husband want to see you curled up on the floor ( I assume you had an 02 mask on while you were on the floor? ;-) for a few days, without imitrex or curled up on the floor for months....with imitrex? No promises but thats the way you're going to have to look at this to give it the best chance of working. (I know you know that...just starting the support) Be good or I'll have to call in the "bad cop"....(flash? LOL) be well PF |
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Title: Re: More shroom stuff.... Post by HannahFroukje on Jan 7th, 2004, 10:30am on 01/06/04 at 18:19:24, Roxy wrote:
Jeezz Roxy I feel for ya´, this must be terrible. I understtand your husband too though, it´s so hard to have to watch the agony, you don't wanna see your partner scream and cry, it´s just unbearable ... Ok, so you have tried the lot ... even sex (and it worked on you, lucky .... it´s a trigger for others ... get my point? :-[. I know how annoying it can be to really have tried EVERYTHING and nothing helps. The exercise works with you differently then, Jos couldn´t use it on mild attacks, because THEN it would be a trigger! Weird huh? Melatonine doesn´t work either? I'm gonna try and think if I can come up with something else .... In the meantime goooood vibesssss (sorry, all I can do now). Hannah |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 7th, 2004, 8:01pm on 01/07/04 at 00:23:22, Pinkfloyd wrote:
Well, I did phrase that bad....LOL....I was feeling a little ragged when I wrote it. Since I've been in Virginia Beach, and not at home, I've had a little 02 problem, and I ran out of it last night. At home, I have 4 large welding tanks, but just a smaller one here....that they made me buy. After Greg gave me the shot, I got hit four more times....I think the last one was around 7am this morning. I got the 02 tank filled as quickly as I could this morning, but it didn't help for last night. It was just one of those long nights. If I had been capable of laughing, I would have laughed at the look on Greg's face when the bag of frozen peas broke in the bed around 3am..... :o. I've already been hit once tonight, but I might get lucky....and that might be it for the night..... ;;D. I made up some tea....just in case. PFDAN, Tracey |
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Title: Re: More shroom stuff.... Post by catlind on Jan 7th, 2004, 9:25pm Umm just a thought as to why things haven't been going as well as normal for you with the shrooms, you have been flip flopping time zones. Surely that would have an effect on your circadian rhythms and could mess with the balancing act that you are battling? Any input?? Cat |
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Title: Re: More shroom stuff.... Post by Woobie on Jan 7th, 2004, 11:55pm Well, Cat, If that's the case, I'm glad that Davenport is in the same time zone - ..... ;;D Tracey = I hope get some relief this weekend, so you can have some fun --- can you bring the tea on the flight so you have some with you????? See you soon! tina |
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Title: Re: More shroom stuff.... Post by Pinkfloyd on Jan 8th, 2004, 12:56am on 01/07/04 at 23:55:31, Woobie wrote:
Airline flights (time zones) were always triggers for me. traveling by itself adds to not staying in a regular sleep pattern. Between the tea, the melatonin, and the traveling, etc, your hypothalamus may not know what week it is let alone what time of day it is. <sigh> hang in there Tracey and try to stay with the program the best you can. Hopefully tonite will be better and you've solved the 02 problem. have a better night PF |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 8th, 2004, 10:14am This may be totally off the wall, but I'm thinking it is what is helping to mess with my head. I know melatonin is helping a lot of people. But, since I've been taking it, my night time hits are more numerous. My head never keeps to a set schedule, but there is a kind of screwed up rhythm to it. Every night that I have been taking the melatonin, I get hit within the hour, and hit hard. My head (after the early hits) was doing good last night. Not a shadow to be seen. I took the melatonin at around 11pm, and by midnight....there it was. That is weird for me. Maybe I'm just imagining things, but it sure feels like it's triggering something. |
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Title: Re: More shroom stuff.... Post by 9erfan on Jan 8th, 2004, 12:14pm I don't think it sounds weird at all. I've been taking the Melatonin for about a week and eversince my head has been all screwed up and I haven't gotten a good night's sleep at all. I'm very tempted to just stop taking it. |
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Title: Re: More shroom stuff.... Post by CJohnson on Jan 8th, 2004, 12:52pm Roxy, 9erfan, how did you guys sleep before melatonin? Were you like me, big sleepyheads? I wonder if the people who respond to melatonin are the people who stay up late and get up early and have trouble sleeping when they are in cycle, and the people, like me, who sleep fine, and hate their stupid alarm clock, and would sleep all day if they could get away with it, in and out of cycle, would not benefit from melatonin. I wonder if there is some relationship there between sleeping habits and how melatonin would affect your clusters? PFDANs -Curtis |
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Title: Re: More shroom stuff.... Post by 9erfan on Jan 8th, 2004, 2:17pm Since going chronic I never get a good night's sleep. But for the past few months I am usually only getting up 1 time a night. This past week with the melatonin, I have been up several times throughout the night mostly shadowing! |
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Title: Re: More shroom stuff.... Post by eyes_afire on Jan 8th, 2004, 8:34pm Tracey, I hope things get better for you. I don't know what to say. I was ultimately able to stretch it out to about 7 days between doses, but it wasn't easy and I took a several thumpings in between. I'm with you Curtis, however I wouldn't say that I sleep fine, because my brainwaves are somewhat abnormal. No problem falling asleep (staying asleep is another story). I can dream within 10 minutes of hitting the pillow all by myself. Melatonin never did a damn thing for me. I don't know, maybe I didn't try hard enuff (used 3 mg or tea, never 9 mg). Too afraid 9 mg would put me in a coma... it's hard enuff waking up in the mornings without stimulants and then surviving past 10 am. I gotta work ya know. LOL, I really just can't imagine 9 mg. --- Steve BTW, I'm a bit squeamish about the 'natural' melatonin which is derived from animal brains. In light of current events, that can't be a good thing. |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 8th, 2004, 8:45pm Curtis, my sleep patterns are all over the place. One night I may be up till 4am reading, and the next night midnight. Very seldom am I ever in bed before midnight though. I am a true night owl. I wake up when Greg gets up at 6am, and then usually go back to sleep for a few hours. Once I go to sleep, you can send a marching band through the bedroom.....won't bother me a bit. Only the ch's get through, and I'm usually exhausted after a hit, and fall right back to sleep. Normally, after I go to sleep, I only get that one REM hit. Most of mine come during late afternoon and evening. Or maybe I stay up so late....there's only time for one hit...... ;) V....hang in there. I'm sorry it's so bad for you right now. Thanks for the nice words eyes. EWWWWWWWW....I didn't know that's what melatonin was made from...... :P. |
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Title: Re: More shroom stuff.... Post by eyes_afire on Jan 8th, 2004, 10:12pm Yup, the 'natural' stuff. In fact, there is some pretty good info here. Anybody thinking about melatonin should read this link. It has lots of interesting info: http://sleepdisorders.about.com/cs/melatonin/a/melatonin.htm 'Natural melatonin, made from the extracts of the pineal glands of animals, usually sheep, is not necessarily of a better quality. It could contain impurities such as those that caused tryptophan supplements to be taken off the market several years ago.' Read the whole link. It's interesting. Especially the prolactin part... geesh.... it's rather emasculating... --- Steve |
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Title: Re: More shroom stuff.... Post by Flash on Jan 9th, 2004, 6:03am Please be aware that giving humans an extract of growth hotmone from the brain of dead humans, and I think that also came from the pineal gland, caused CJD several years later in a lot of cases so a synthetic substitute was introduced. Given that sheep are know to suffer from scrapie, CJD for the wollie masses and not a millions miles from BSE in cattle, there is no fuckin way I would take anything extracted from their brains. Mind you I'm sure CJD would cure CH, probably sooner and with lesser side effects than pred. Flash |
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Title: Re: More shroom stuff.... Post by Roxy on Jan 18th, 2004, 8:14pm Right now, I'm at 24 hours PF.....something is working!! ;;D ;;D ;;D ;;D ;;D ;;D |
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Title: Re: More shroom stuff.... Post by jminmilwaukee on Jan 19th, 2004, 12:50am ;;D ;) 8) jmin |
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Title: Re: More shroom stuff.... Post by 1MajorPain on Feb 3rd, 2004, 10:29pm Hi Gang, as you can see I'm new here, but not new to clusters for sure. I've suffered for over 30 years and 10 since I even found a doctor that knew anything about them. I also now take the Imitrex (tried tons of other stuff from the doctor) but would love another way to go this time, I'm over fifty and have slightly high (controlled) bloodpressure, smoke, overweight and not sure if my heart can stand the number of shots I took last time. I've been PF for 5 years almost to the date but before that I had 4 month sessions yearly usually starting about this time of year. This session is just getting started, 3 clusters since the weekend and starting to ramp up <sigh>. I usually have 4 to 6 a day until the session gets to full strength, then it's almost non stop for 5 to six weeks of number 9 kips (if I'm lucky) then the taper starts. I'm currently not taking anything but o2 at this time and will see my neuro next week, but I know the drill from him. I'm looking local for some mushrooms but seems it's the wrong time of year for them here to grow wild and nobody has any interest in helping an old guy out (I wonder why....lol). I've looked into the spores route but know it'll be to late to help me this session. I've really enjoyed the post's here and have spent the last 3 days just reading the ones about the mushrooms. I feel I have suffered with you and felt great pleasure when I have seen a breakthru from any of you. Well enough from me, just wanted to let you all know you have my blessings and prayers and I'm glad I stumbled onto this site. Keep on Posting. MP |
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Title: Re: More shroom stuff.... Post by henzey on Feb 5th, 2004, 7:04pm on 01/08/04 at 10:14:52, Roxy wrote:
It sounds like maybe you don't really need the melatonin....or you are taking too much?? Maybe the shrooms are helping you enough that you need to either cut back or cut out the melatonin....I'd give it a shot. |
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Title: Re: More shroom stuff.... Post by 1MajorPain on Feb 6th, 2004, 5:47pm Anybody have any information on Amanita Muscari mushrooms? and will they work for a cluster? Thanks, MP |
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Title: Re: More shroom stuff.... Post by tommyD on Feb 6th, 2004, 6:50pm Erowid has info on amanita muscaria at: http://www.erowid.org/plants/amanitas/amanitas.shtml But no, they probably won't do anything for clusters. The active ingredients are Ibotenic Acid and Muscimol. Neither have the indole ring structure of psilocybin. And the wrong species of Aminita can be deadly. -tommyD |
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Title: Re: More shroom stuff.... Post by 1MajorPain on Feb 6th, 2004, 8:46pm Thanks TommyD, My search continues. :-/ MP |
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Title: Re: More shroom stuff.... Post by tabbs on Feb 10th, 2004, 8:26am Hi, I'm new to this site and would like to know more about 'shrooms'. I am 36, have been getting cluster headaches since 20 which last for 3 months and then always go away for 3 years inbetween. I am 3 weeks into my current cycle and I take imitrex 50mg tablets twice a day (one before I go to bed and one again 5 hours later) which stops me getting night time attacks (which means I get to sleep without the attacks at least). From the posts I have read, I gather shrooms are some kind of mushroom or tea with mushrooms in? How do I buy some of this and what do I do with it/ how to prepare it? Any information would be apreciated. Tabbs |
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Title: Re: More shroom stuff.... Post by 1MajorPain on Feb 10th, 2004, 9:46am Tabbs...theres plenty of information at the O.U.C.H. at the left, I read for days! Theres also links as to where to buy spores to raise your own (not legal everywhere)....good luck! Major |
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Title: Re: More shroom stuff.... Post by ave on Feb 10th, 2004, 1:57pm tabbs, the proper information about shrooms and how to... you'll find here: www.clusterbusters.com good luck |
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