|
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by thomas on Dec 10th, 2003, 8:57am Works for some, Hot sauce up the old nose. During this last cylce I put some Melinda's XXX special reserve habanero sauce up my nose during a couple of ch's, ended up with a ch and a burning nose. p.s. It's not a good idea to have your first post be a link to somewhere selling a product. (It can really piss some people off.) [smiley=twocents.gif] |
||||
Title: Wayne Perry!! Post by floridian on Dec 10th, 2003, 9:08am Yo, Wayne! There has been lots of discussion about capsicum here - some people report some success, many say that the pain and drainage were aweful, and the pepper didn't really help. So how is sinusbuster any better? Is this your Press Release on PR Wire? How can you claim "All the sinus busting power of pepper without the burn" when the active ingredient (capsaicin) is measured in terms of scoville heat units - if it doesn't burn, it isn't capsaicin (and doesn't deplete the pain transmitting Substance P from the nerves). People here are willing to give 100% to help each other out, but have an amazingly low tolerance of anything that hints of hucksterism. I'm not saying that you are a huckster, but any one that pumps up a product for profit the way sinusbuster.com does is going to fall under a lot of suspicion. Quote:
|
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by floridian on Dec 10th, 2003, 9:22am Your press release seems to use the terms cluster and migraine interchangeably. Clusters, Migraines, Sinus, PMS and Menopause ... Is there any type of headache your spray doesn't cure? Quote:
|
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by floridian on Dec 10th, 2003, 9:29am Quote:
OK, I'll call this one Hucksterism!! |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by thomas on Dec 10th, 2003, 9:31am Yo! Floridian, think he'll be back? [smiley=laugh.gif] |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by floridian on Dec 10th, 2003, 9:34am I wouldn't be surprised at all if he came back. We may need some assistance from Jonny and Ueli. :o |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by thomas on Dec 10th, 2003, 9:36am I tried to warn him in a nice way - as you did(but you did a much bettery job). Cant wait to see the not so nice warnings. [smiley=laugh.gif] |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by Paigelle on Dec 10th, 2003, 12:43pm Okay, now this dude expects us to believe the Sinus Buster even helps menopausal women! Does he think we are stupid or something? |
||||
Title: More Fraud ?? Post by floridian on Dec 10th, 2003, 12:59pm On the website, he also claims to have been a frequent guest of Oprah Winfrey. No mention of him on Oprah.com, though. Maybe getting tickets to be in the studio audience qualifies him as a guest. Quote:
Quote:
|
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by Paigelle on Dec 10th, 2003, 1:04pm Maybe they should put us on Oprah! Now that would be an interesting show. All of us with anywhere from a KIP 7 to a KIP 10. Talk about reality TV! |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by t_h_b on Dec 11th, 2003, 12:11am The website also has this statement: "For the past 15 years I’ve suffered from a severe form of migraine known as a “cluster headache”." This is not very helpful. We all know people who have migraines and we all know CH is not a type of migraine. This joker apparently doesn't. |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by Ree on Dec 11th, 2003, 2:21pm I heard it cures jock itch too... because your little winky is on fire so it no longer itches.......... Now I know why I don t come to the medicine corner in this place............ its like going to the mall of cures... ree |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by wetdog2 on Dec 11th, 2003, 3:16pm During my last cluster, I was involved in a clinical trial for pepper spray at the California Headache Clinic with Dr. David Kudrow (a second generation CH specialist, and, coincidentally, Lisa Kudrow's brother). The spray was like taking mace in the nostrils, but it was a more welcome pain than a CH and eventually tolerable. Anyhow, the trial did seem to help. It was, by far, the shortest cluster I've had (3 1/2 weeks) and the headaches were not nearly as intense. In fact, this is my first post because I was looking to find a way to get pepper spray since I'm starting a new cluster and am no longer eligible for the trial (you can only do it once). That said, this product that is being offered is NOT the one that I was taking and sounds iffy. I will look elsewhere for a remedy. For more info on the trial I was involved with, check this government site here: http://www.clinicaltrials.gov/ct/show/NCT00069082?order=1 In sum, this guy sounds like a salesman and after checking the site, the product sounds bogus, but don't completely dismiss pepper spray as a therapy. I am incredibly grateful to have been involved in the study. Marty |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by Paigelle on Dec 11th, 2003, 3:33pm Wow Wetdog, it is nice when someone can share something that they are not attempting to sell. I don't know where you can get any pepper spray, but I am willing to try anything, except for this crap people come in here attempting to sell. |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by wetdog2 on Dec 11th, 2003, 3:53pm Thanks for the nice reply. This is my first time on this site (after 13 years of suffering) and after reading some posts, I really want to try this mushroom business! And not for the recreational side effects, of course. I want to kick this hulking oxygen tank and these syringes to the curb! Verapamil didn't do much for me except constipate me. Predisone's side effects worry me. Ergotomine made me sick. Maybe the shroom and pepper spray combo is the all-natural, effective way to go. Hm. Will have to look into this... |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by jflynn on Dec 11th, 2003, 3:53pm My old man suffers sinus headaches (not CH) and swears by serrano peppers eaten before bedtime. |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by Paigelle on Dec 11th, 2003, 4:04pm The mushies are working great for some people. Read all of those posts on it and you will get alot of useful information. Let me know if you find pepper spray for your nose, that isn't a cure for everything. |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by wetdog2 on Dec 11th, 2003, 10:23pm All right, boys and girls: I went to Cost Plus and bought an ounce of ground cayenne pepper, which is a fairly common capsaicin source. I boiled it in about a half a cup of water in a small saucepan for five to ten minutes (it reduces by 1/3 or so), added 1/4 teaspoon of salt in an attempt to make it isotonic, then filtered it through a coffee filter. I then emptied a saline nasal spray bottle (Target, $1.79) and then sucked up the pepper extract into the bottle and squirted a brief spray in each nostril. In the trial, we were to do one spray in each nostril per day. While I don't know how close my recipe was to the Civamide I used in the trial, the searing, biting sting in my sinuses was identical. I will post my progress with this homemade treatment as it goes on. I make no promises other than it hurts like hell the first few days. Marty |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by notseinfeld on Dec 11th, 2003, 10:43pm Excellent Wetdog, keep us posted. |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by Flounder on Dec 11th, 2003, 11:01pm Oh, Now I get it! You work for Cost Plus and Target. Ok, what's your website that you sell these little saline bottles on. Snake oil salesman. hehe. [smiley=laugh.gif] You got balls trying that. Let us know your results. |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by Paigelle on Dec 12th, 2003, 8:06am Let us know what happens Wetdog! It is okay if you selling little bottles for Target. Maybe we can get a discount on them. j/k [smiley=laugh.gif] |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by sinbuster on Dec 12th, 2003, 7:30pm I am sorry. The post was not from Wayne Perry. I am a local customer and friend who thought he was helping the sinus buster cause, but wayne was pissed at me when I told him I posted this. I make nothing off the product. I'm just an idiot. I was wrong, but only out of stupidity. The stuff really does help my headaches. Anyway wayne was very upset with me, and he told me to post this apology. He also said the first 10 people to email him referring to this message board and giving their mailing address can have a free sample sent to them. This way ten of you can evaluate the spray. He doesn't want any of you thinking he's a huckster. He also said he'd like his web address taken off my post which I will do if I can. If you guys want to try it let me know with your posts. Otherwise i won't publish his email address because it's based at his website which I will not promote again. i am sorry truly "as one cluster victim to another" please forgive me. Once again I'm sorry for my first post, but I was just excited to see something I was involved in early on finally start getting marketed. I wasn't making any money off it. I swear. |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by forgetfulnot on Dec 12th, 2003, 10:18pm Hmmmmmmmmm, I think snake oil sounds better at this point, I did the hot pepper deal once, used up all the bun dusters in the house, had no effect on my clusters. Your credibility around here is, well, very hard to measure. (you can also use it to kill bugs on your tomatoe plants) .........Lee |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by wetdog2 on Dec 14th, 2003, 2:56pm You know, I've read that vascular headache sufferers are supposed to be more intelligent. Do you think they just say that to make us feel better about ourselves? So the combination of mushrooms and hot peppers has not yielded the miraculous results I had hoped for. Yesterday, within four hours of taking the mushrooms, I had a mild headache (a 3, maybe?). Last night I woke up four times with headaches, but nothing more than a 5 - not enough pain for an injection but enough frequency to go through 1/3 tank of oxygen. I'm still going to continue the pepper treatment - the headaches over the past couple days have been milder in intensity. Maybe it's because of the capsaicin, but it's tough to say definitively. It's only been four days of pepper treatment and it's supposed to take a week before effects are seen, so we'll see what happens. For those interested, here's some research that was done 10 years ago that supports my previous experience (of milder headaches) with capsaicin spray: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=8495452&dopt=Abstract Anyhow, am looking forward to a good night's sleep soon. If anything good happens from the pepper spray, I'll report it. Thanks to all for their supportive messages. I really appreciate this site. My Target stock just went up .05% just from the sale of nasal spray bottles. Marty |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by t_h_b on Dec 14th, 2003, 3:13pm When I started taking melatonin, I still had some mild headaches for a couple of weeks. For a while, I even kept waking up at 2:30 a.m. (my night-time CH appointment) with that funny thick-headed feeling I get when my headaches start, but without any pain at all. Maybe some other people who have found successful prophylactic medication have had the same experience with the CH tapering off in intensity and then frequency rather than just disappearing? I hope the pepper spray works for you! |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by wetdog2 on Dec 16th, 2003, 1:28pm I'm pretty happy, people. I'm going on 40 pain-free hours and my first night of uninterrupted sleep and even the 40 previous hours had only very mild headaches. I've had a couple shadows but thankfully, nothing's blown into a full-on attack. Who knows whether it's because of the mushrooms and their seratonin level effects, the pepper spray and its trigeminal nerve-desensitizing effect, or just a placebo effect. Whatever it is, while it doesn't feel like this cluster is over, I definitely don't feel all beat up in the head for once. I'm functional - knock on wood. I think the pepper spray may be the agent helping with the pain. Sunday evening I went to a play and felt a shadow come on. I felt no pain, but my eye started gushing just as if I were having a full on headache. I know my wacky treatment isn't going to work for everyone, but it's cheaper than injections and the side effects are minimal. One more thing: I store my homemade pepper spray in the fridge since there aren't preservatives in it. Marty |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by Paigelle on Dec 16th, 2003, 4:16pm Wetdog, I am going to make some damn pepper spray. If it doesn't work for my headaches, I can spray muggers with it. But I am going to give it a try! Thanks for the little recipe! |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by vig on Dec 20th, 2003, 2:12pm Alright, here's my $.02. Capsaicin is an analgesic. I got pure pepper oil in my eye during a particularly wet CH attack and I could feel the oil covering my eye and hitting the sore trigeminal nerve and quickly calming it. The sensation moved back down the eye and within about 10 minutes, there was a warm sensation and no pain. I've now done this three times with the same limited results. It did nothing to stop the headache, but made it feel better. The affected nerve is the one in your eye, not the one in your nose. So I think all nasal approaches are misguided. Maybe a VERY dilute eye drop would be a better delivery system. |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by wetdog2 on Dec 20th, 2003, 2:49pm Actually, the trigeminal nerve (the nerve that spasms during a CH) passes through the sinuses. As all of the studies I've on capsaicin and CHs deliver the pepper spray nasally and as I have had dramatically reduced pain levels from the nasal spray, I would recommend this treatment before putting it in your eye. In fact, I wouldn't recommend putting it in your eye at all. |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by BlueMeanie on Dec 20th, 2003, 3:24pm on 12/20/03 at 14:12:05, vig wrote:
How about the pepper spray cops use to fight off the bad guys ? Just Kidding. LOL |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by hdbngr on Dec 29th, 2003, 5:19pm You can buy a tube of capascin (pepper) cream in a tube at almost any drugstore, but they usually keep it behind the counter, so you have to ask for it by name. You can dab it in the ol' nose or buy some saline nose spray (Afrin makes it) and mix it into that then spray it up there. Pro - clears the sinuses Con - YEEOWW! You can rub this stuff on your neck and the back of your head if you have accompanying pain in those regions. It doesn't seem to stop a CH attack but the sensation of having lava up your nose does distract from the regular pain a bit.... |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by wetdog2 on Dec 29th, 2003, 7:10pm My experience during this cluster: A few days into this cluster, I made my own pepper spray. See previous entry on recipe. After four days of treatment (a couple sprays in each nostril, once a day), the intensity of my CHs subsided to barely noticable. During these past three weeks, I haven't touched my Imitrex nor have I used my oxygen, though I am still technically in my cluster. There are times when I can feel a headache coming on, but there is no pain - at most I've had a "3" headache one time. I've also been able to sleep without interruption. To be fair, I've also tried the shroom treatment for the first time, so that may be contributing to my painlessness, too. Is painlessness a word? Three notes about pepper spray: 1) the effects take days of treatment to kick in. Stick with it for a week before passing judgment on it. 2) you really have to spray so it gets in your sinuses where the trigeminal nerve is and then rub your nose a bit. You don't want to spray so much that it's running all over the place, but you have to feel it hitting back there. You will sneeze, snot and cry. It sucks but it does get more bearable. 3) After three weeks of treatment, I'm stopping. When I did the treatment study before, we only sprayed for two weeks. I think that long term usage can be rough on your nose and after stopping the pain didn't increase again. Many of you will say that my pain-free experience was due to the mushrooms, which may be true. But I also know from past experience that the pepper spray has helped me. I just know that in the future, I will be using this combined therapy since it is inexpensive, super-effective and the side effects are minimal. I'd be interested in other people's experience. |
||||
Title: Re: Hot Pepper Extract Stopped My Clusters Post by thomas on Dec 30th, 2003, 2:49pm Glad to hear that you are pain free. AWESOME! |
||||
Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1! YaBB © 2000-2003. All Rights Reserved. |