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        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> how bad does yours hurt?
        
(Message started by: sleepy2 on Nov 3^rd, 2003, 10:00pm)

Title: how bad does yours hurt?
Post by sleepy2 on Nov 3^rd, 2003, 10:00pm

Just wanted to take a quick pole to see the average severity of of fellow sufferers attacks. use the kip scale (I'm new, i think thats what you call it). How many 10's have you had? Is it normal to have 9's all the time? Just interested in some feedback.....
Thanks to all who respond

Title: Re: how bad does yours hurt?
Post by Yos on Nov 3^rd, 2003, 11:02pm

Mine are all over the place. They usually start out at the beginning of a cycle with 2's and 3's. Within a week they are up to 4's and 5's. Then I have a few weeks where 6's to 8's are the norm. Then I usualy have 2 to 4 days where 9's are hitting every few hours.

Then the cycle starts back down, and its a few 4's and 5's and ends with a few 2's and 3's, which is thankfully, where I am now.

Yos

Title: Re: how bad does yours hurt?
Post by Prense on Nov 3^rd, 2003, 11:40pm

About 4 "10's" and 6 or so "9's" a month...chronically.

What is your impression of a 10? I cannot describe anything similar, but a bruised rib sits about a 4 and a "brain freeze" HA is roughly a 5 on the pain scale. When I get to 6, I start to become debilitated.

Chris

Title: Re: how bad does yours hurt?
Post by Unsolved on Nov 4^th, 2003, 12:50am

Unfortunately, the norm for me are "Kip 9's". Each and everyone feels 'devestating' at the time and last for 15-20 minutes providing I get the Imitrex injection quickly.
Bob described it nicely on his news video (http://pahlow.net/ch/movies.htm) that's on his website. "Two Red-Hot Screwdrivers" sounds pretty accurate to me :(

~ Unsolved ~

Title: Re: how bad does yours hurt?
Post by jflynn on Nov 4^th, 2003, 10:57am

Generally 5-7 with an occasional 8. I guess I'm lucky (haha). Only went to hospital once with a 10 not knowing what it was, I thought it was a bad sinus infection. They also were clueless.

My 1:30am wakeup call tends to be a 6 or 7 and hot showers help.

Title: Re: how bad does yours hurt?
Post by Cooked Brain on Nov 4^th, 2003, 11:02am

at the top of the cycle 5 or 6 a day all 9's and 10's and between 1,5 and 2,5 hours.

Title: Re: how bad does yours hurt?
Post by thomas on Nov 4^th, 2003, 12:13pm

When in cycle 2 9-10's per day with lots of 2-5's [smiley=bash.gif] [smiley=bash.gif]

Title: Re: how bad does yours hurt?
Post by Karla on Nov 4^th, 2003, 12:32pm

Before I found a preventative that worked I would get hit with kip 10's all day long. That is 8 ha a day each 1 1/2 hours long. It sucks being chronic.

Title: Re: how bad does yours hurt?
Post by Cooked Brain on Nov 4^th, 2003, 4:28pm

on 11/04/03 at 12:13:24, thomas wrote:

with lots of 2-5's [smiley=bash.gif] [smiley=bash.gif]

were we counting those too? ;D

Title: Re: how bad does yours hurt?
Post by thomas on Nov 4^th, 2003, 5:15pm

Just trying to give as much info as possible. :-*

Title: Re: how bad does yours hurt?
Post by Tiannia on Nov 4^th, 2003, 6:16pm

This cycle - I pretty much when they start it is 3-4 and if I do not get to it right then, It goes to an 9 really quick. (I still have not talked my doctor into getting me on O2, plan on handing him a ream of paper showing that there HAVE BEEN CLINICAL STUDIES that PROVE it is EFFECTIVE) but if I can get to the imitrex I normall hit a 6-7 about 2-3 times a day.

Title: Re: how bad does yours hurt?
Post by tsayswhy on Nov 4^th, 2003, 6:45pm

first week a 2-3 kip
second week a 4-6
third week a 8-9 this
then taper back down
only had 10's the first 2 years started cluster and i say that because they were behind the eye now they are in the tempo area nothing beats behind the eye pain :'(

Title: Re: how bad does yours hurt?
Post by sandie99 on Nov 5^th, 2003, 7:31am

Good poll...

in my case, the pain varies a lot during a day.
My attacks are usually from 5 to 9.
Luckily for me, I haven't had a 10 in a long time... :)

Best wishes & PFdays,
sandie99

Title: Re: how bad does yours hurt?
Post by M.Laun on Nov 6^th, 2003, 10:30am

my CH's are rare but hefty. I can't recall any attack being less then KIP 8. usualy i get 9-10's.

Title: Re: how bad does yours hurt?
Post by ckelly181 on Nov 10^th, 2003, 10:18pm

Very first one is usually a 10 - sends me to the ER, makes me puke from pain and slam my head against something.

week 1-3: Two 5-6's during day, one 7-9 at night.

week 4- 6: all over the board, 2 - a few 10s.

week 7 and on: one 6-8 during the AM, one at night.

I'm on my 3rd month of this cycle. Longest one I've ever had. I get one 6-8 between 10-11 AM, and one 6-8 at about 1:30 AM.

sigh...

Chris

Title: Re: how bad does yours hurt?
Post by BUBBADOG on Nov 11^th, 2003, 7:45am

first week of my cycle 4-6 on kip scale
second week 8
third week 9 mostly 10
my wake up call with these starts at 4am write now i am in a BADDDD CYCLE 4-8 CH A DAY I WANT TO PUT MY HEAD RIGHT THROUGH THE WALL OR FLOOR
I AM A CHRONIC ALSO .....

Title: Re: how bad does yours hurt?
Post by Lampropeltis on Nov 13^th, 2003, 3:34pm

Before I began serious preventive meds, I started getting bad clusters (kip 9 and 10) daily for about 10 - 11 months out of the year about 6 months after I turned 27. Fortunately, by the time I turned 29 I had some decent meds. It was the worst thing; I couldn't even go to sleep with a cluster - in fact, if I was in a deep sleep and a cluster came on it WOKE me up!! :o

Those are the worst because your brain is trying to give you the warning signs, but by the time you wake up you have about 5 minutes before your on the floor screaming and flailing like a little kid. I had to begin setting my alarm clock to go off every 4 hours so I could wake up and take aspirin.
One other time I tried to take two valiums in an effort to knock myself out; no luck there - I was just drowsy - but still in pain and couldn't go to sleep. That one was bad. Of course after the things were over I would be so wiped out that I couldn't move for about a half hour or so - my body was physically tired after dealing with the pain. That was very surprising given that I am a 180 lb. guy with a decent build and a fairly healthy body. Cluster headaches are nuts - I would rather break my wrist or nose again over and over than deal with those damn things! :-[