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        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> panic
        
(Message started by: jai on Oct 23^rd, 2003, 7:45pm)

Title: panic
Post by jai on Oct 23^rd, 2003, 7:45pm

20 years ago the cluster headaches began, and I suffered them for 12 years. When they ceased 8 years ago I felt as if a miracle occurred.

Now they have returned last week.

I cannot go through this again. I am defeated. An axe to the back of my neck is appealing.

does anyone have the name of a doctor, in Manhattan, who knows how to treat cluster headaches?

Title: Re: panic
Post by LasVegas on Oct 24^th, 2003, 12:10am

Go to "where we live" screen and look up those who live near you. Email them. Good luck.
Gregg in Las Vegas

Title: Re: panic
Post by thomas on Oct 24^th, 2003, 8:46am

Hang in there. You can make it. We've all wanted to end it, but you've got to stay strong. The pain free times are worth hanging on for. We are all here for you.

Title: Re: panic
Post by solly on Oct 24^th, 2003, 10:40am

I too suffer with the beast, Dr Mauskop, 212-794-3550. located on 30 E 76st. He is great and will work with you.
Contact me anytime if you need additional information. Good luck

Title: Re: panic
Post by forgetfulnot on Oct 24^th, 2003, 10:44am

Go here http://www.clusterheadaches.org/doctors.htm scroll way down the page. Good luck!

Lee

Title: Re: panic
Post by t_h_b on Oct 26^th, 2003, 1:40pm

Mauskop is definitely the way to go, and I have only seen him once. I didn't have to ask him any questions or to write any scrips--he answered all my questions, wrote scrips for what I needed, even increased the dose of a med I was already on (which I had planned to ask him to do): all spontaneously. He had reviewed my history and knew it when he saw me. Also, his office staff is very helpful with pre-authorizations, etc. He really is wonderful. I cannot recommend him enough. Seeing him has even relieved some of my feelings of anxiety and helplessness.

Title: Re: panic
Post by jai on Oct 29^th, 2003, 7:37pm

I'd like to thank those people that reached out to my first message. It's amazing to hear from other people that suffer from this misery. But I've also been re-experiencing the additional misery brought inadvertantly about by "regular" people who have zero knowledge of cluster headache but a lot of opinions. Everybody has an opinion about "headaches", and an opinion about how strangely I behave during an attack. I have started wishing that I could give them one of my attacks so they would understand. Damn this thing to hell. And damn me as I wait three weeks to see a specialist, and am reduced to crying on the street while walking to work because the pain is so ------ unbearable, and all I want is to bang my head against the side of a building to make it stop.

Sorry for the rant folks. But that's just the tip of my frustration, and anger, and misery, and fear of the next attack.

Title: Re: panic
Post by samurai on Oct 29^th, 2003, 9:52pm

Jai,
WE UNDERSTAND. I am new to this site, but I've had these headaches for years and the worst part for me is those who do not understand. I wouldn't wish this pain on anyone, but I wish there was some sort of evidence I could show my boss. Something which would demonstrate the intensity of an attack.
Most important, find a place inside your own head where you can go during an attack. If necessary make one, use visualization and concentration, and try your absolute best not to take it out on the rest of your body. Before I found this site I just took thousands of mgs of Tylenol and endured for up to four hours sometimes. I had to find a way to make it, and there is a way. Be stronger than the headaches. Don't focus on the pain, try to set your body in a pattern, like pacing the floor or rocking in a chair with your hand on your head and concentrate on something else. Whatever you have to do, keep fighting through, and we'll be here waiting for you.
Jason

Title: Re: panic
Post by Prense on Oct 29^th, 2003, 10:05pm

I had to wait a total of 3 months to see a specialist...could have been worse. Hang in there!

Title: Re: panic
Post by Cooked Brain on Oct 31^st, 2003, 11:26am

cheers to dr Mauskop! [smiley=me&mb.gif]

hang in there jai, be tough!

Title: Re: panic
Post by thomas on Oct 31^st, 2003, 11:32am

Try melatonin at night, it's cheap and just may help.

Title: Re: panic
Post by jflynn on Oct 31^st, 2003, 10:58pm

You are not alone, and that is a comfort to many of us here. I also agree: try the melatonin, it works very well for those it is effective with, and if it doesn't work at least it's cheap to try.

Instead of getting exasperated with well-meaning but ignorant people who advise you how to treat "bad headaches" either come here or visit with a headache specialist versed in cluster. Hopefully by working together we can help defeat this stupid affliction for the next generation!

Title: Re: panic
Post by gwen on Nov 6^th, 2003, 4:31pm

jai if any body ask's what your headache is like tell them it's like someone stabbing you in head and neck with a red hot poker if they are a male and if its a female tell them its worst than being in labour permenantly, i think they will get some idea. hope you get pf very soon,

take care
gwen

Title: Re: panic
Post by thomas on Nov 6^th, 2003, 4:54pm

I usually tell people I would rather have them saw my leg off with a chainsaw very slowly than to have these headaches. :)