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        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> me and my head
        
(Message started by: Antoinette on Oct 6^th, 2003, 6:47pm)

Title: me and my head
Post by Antoinette on Oct 6^th, 2003, 6:47pm

Hi everyone! I am very relieved that you are all out there as I feel very alone. I have been a sufferer since age 14 .It seems each and every session I get even sicker than the last, I am now at a weight loss of a pound a day, no strenght etc.,etc. You all know how I feel. I'm so curious how you all manage your jobs as I always end up losing them because people don't understand. I have a fabulous family,(my husband is a saint and my night in shining armor for 17 years, my little girl (15) is my guiding angel she gives me my strenght to move on to the next level. I have tried soooo many meds that I have resorted to drugging myself with narcotics that do little to anything. My best results with treatment is with a Orthomolecular Biochemist. This man is my hero and I only hope when I get to him this time I'll get the same result. If anyone is interested I will do my best to find as many around as possible. thanks for hearing me.

Title: Re: me and my head
Post by UnsolvedEquation on Oct 6^th, 2003, 11:50pm

Have you been diagnosed with CH and tried CH meds mentioned here on this site ? Usually narcotics will do little or nothing to stop the pain of CH.
And you said it best ... family often keeps us all going! Hang in there cause there's gotta be something that helps you, you just haven't found it yet I suppose.
Have you tried Imitrex, Prednisone, Verapamil, or O² ?
Goodluck
~ Unsolved ~

Title: Re: me and my head
Post by thomas on Oct 10^th, 2003, 7:25am

Are you chronic or do your headaches come in cycles? I think it's a lot easier to hold a job if it comes in cycles and your have the right combination of preventive and abortive meds - this takes lots of trial and error. This is a great place to look for ideas to share and try with your doc. Hang in there.

Title: Re: me and my head
Post by Antoinette on Oct 13^th, 2003, 6:42am

Thanks to those of you who replied. I am a cycle sufferer and I've tried many meds. I am not giving up yet. I am now using O2 and have not ever heard of the other type of headaches. I will be seeing my doctor hopefully this week to try new meds and hopefully get some results, as you all know life goes on whether you are with it or not especially with teenagers, I also have a wonderful 23 year old trying to plan a wedding that I am at this point totally useless to. My husband has made copies of info to bring with us to the Drs. so maybe it will all be useful. The jobs, people jusst don't get it . they say take a pill!!! Thanks again for all the info.

Title: Re: me and my head
Post by BobG on Oct 13^th, 2003, 7:02pm

Antoinette

Click on the blue line. It's a letter you can take to your employer and/or employees.

http://www.ouch-uk.org/ch/note_colleagues.cfm
Simon’s (OUCH/UK) letter to employers and colleages

Title: Re: me and my head
Post by Antoinette on Oct 14^th, 2003, 5:33pm

Hi and Thank you! Today is my first day free and if I only had the energy to do what my brain wanted to, but I will not complain, pain free!!!!TODAY I am going to give the letter to a few people that I am working with in hopes to give them the insight they need. It is so true especially the comments not to make. How many times have we all heard them in one day? Just a happy note for all of you who read this...my daughter lives in Maryland 23 yrs. old and I had mentioned not being any help during her wedding plans, she decided to send me flowers today to help me feel better and thank me for at least being able to listen. Just when you wanna give up something pulls you back. I'm also grateful for a free day as my youngest is under the weather so we kinda took care of eachother her illness easier than mine. Good thing!!! Thanks again and I'm glad you're all here with me.

Title: Re: me and my head
Post by spanky on Oct 14^th, 2003, 8:19pm

Glad to hear that you're having a PF day and here's wishing you plenty more. High-five to your husband for his support. Nothing like an understanding spouse to help keep the beast at bay!!! :D

Title: Re: me and my head
Post by HypnoticFreddy on Oct 16^th, 2003, 8:00am

Do not drug yourself with narcotics. >:( Believe me.