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        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> SANSERT
        
(Message started by: tsayswhy on Sep 13^th, 2003, 10:46pm)

Title: SANSERT
Post by tsayswhy on Sep 13^th, 2003, 10:46pm

I am from Canada so the drug sansert if still prescribed could someone tell me why it is off the marked in the U.S. Someone answer my post and said if was not on the marked anymore. I couldn't find out why anywhere! thanks

Title: Re: SANSERT
Post by UnsolvedEquation on Sep 13^th, 2003, 11:29pm

I was just offered it again last month but I turned it down because I've already tried it with no success. Therefor, I believe it's still available in the US. Most pharmacies don't carry it though...it has to be specially ordered.

Title: Re: SANSERT
Post by tsayswhy on Sep 14^th, 2003, 9:43am

thanks Micheal when i was order the drug they too had to order it in. I was on it for 3 days before i had pf but i was so close to the end of my 5th week that they could have been at the end anyways. I guess i will have to wait until next year to find out if it will help or not .tari

Title: Re: SANSERT
Post by wayner57 on Sep 15^th, 2003, 9:39am

on 09/13/03 at 23:29:03, UnsolvedEquation wrote:

Hi, I'm new here, but noticed sansert doesn't work for you, I hope you have found something that does.
I have been using sansert for many years, I am a episodic CH sufferer. Sansert hasn't always worked for me and my neuroligist has prescribed a prednisone regiment at the same time, somehow it helps the sansert work. Both drugs together have worked for me. During this CH period (now) I am on sansert only and its working for me so far, the odd CH comes through but is manageable. Thank God! Just offering my .02 worth!

Title: Re: SANSERT
Post by eyes_afire on Sep 15^th, 2003, 5:45pm

Hi Tsayswhy. I don't know for certain the answer to your question, but I think Sansert was pulled off the U.S. market mainly because of the horrific long term side effects and the lack of demand for the drug.

Someone please correct me if I'm wrong.

--- Steve

Title: Re: SANSERT
Post by Ueli on Sep 15^th, 2003, 10:02pm

The ergot compounds are, like the triptans, 5-HT agonists. But unlike the triptans they are completely undiscriminating, constricting tiny peripheral capillaries and vessels in the heart too; with the consequent danger of very nasty side effects.

In the European community all ergot derivatives have been phased out this year. For meegraines, where they were used as abortives, the triptans are a better solution. Some clusterheads used methysergide with success as preventatives, despite the potential side effects. They are now left standing in the rain. But who does expect that politicians and bean counters know something about CH ???

PFNADs
Ueli

Title: Re: SANSERT
Post by wayner57 on Sep 16^th, 2003, 8:08am

As far as I know sansert is still available in Canada, I just got a prescription filled, although it was short 10 pills, I was assured they would be available on Sept. 19 with enough to do my refill. Americans are getting it through Canadian Internet pharmacies.
The long term side effects of sansert have always been known, but sansert is not supposed to be taken long term. I think 6 months max. I have never had a CH period that lasted for 6 months. I am an episodic CH sufferer. This drug has helped me imensely, when I first starting using it many moons ago, I was suffering several kip 9-10 CH a day, everyday. This drug broke the cycle and helped. I am not trying to sell it or endorse it, just relate my personal experieances.
When I suffered a kip 9-10 CH, I would do anything to make it stop, anything. sansert helped.

Title: Re: SANSERT
Post by bh205 on Sep 16^th, 2003, 7:15pm

i was prescribed sansert when i was first diagnosed with Ch's. it worked the first year but when i tried it again the next year it didnt work. i have been prescribed verapamil since and it seems to work for me. but the demon is rearing its head once more and we will see if the verapamil will work this time. good luck to all, i feel your pain.

Title: Re: SANSERT
Post by tsayswhy on Sep 17^th, 2003, 9:22am

Thanks all i was only on sansert for 4 days and was pain free told to stay on for 1 more week and taper off but i was also at the end of my cycle so i am now off the drug and just wanted to make sure it was safe to take but you are right wayner57 you will do anything to stop it.

Title: Re: SANSERT
Post by LasVegas on Sep 18^th, 2003, 6:10pm

I was prescribed Sansert by a neurologist for a cycle in November 2000. Says take 1 tablet (2mg) orally 4 X daily. This stuff worked and nothing else did, for preventative. I stopped taking it after a few weeks to see if my cycle/episodes were over, thank God they were/Sansert worked. Now, three years later, I have this bottle of Sansert that is almost full. the expiration is 2/2002. Will it still work or has the effectiveness truly expired? Anybody knowledgeable about Sansert/medications expiring, please reply.

Title: Re: SANSERT
Post by wayner57 on Sep 19^th, 2003, 7:58am

My pharmacist told me sansert has a shelf life of over 5 years, then they only start to loose effectivness slowly, keep them in the dark and at room temp., hang on to them, you never know!

Title: Re: SANSERT
Post by Seiji on Sep 19^th, 2003, 9:51am

I too have used Sansert for many years till they took it off the market here in the USA with excellent results.
on my last attack I used something else called Methergine it works for me. Check into it, here is a web site http://www.upstate.edu/neurology/haas/hpclrx.htm

Title: Re: SANSERT
Post by wayner57 on Sep 19^th, 2003, 3:05pm

on 09/19/03 at 09:51:59, Seiji wrote:

I used something else called Methergine it works for me. Check into it, here is a web site http://www.upstate.edu/neurology/haas/hpclrx.htm

Thanks for the link, its very informative!

Title: Re: SANSERT
Post by LasVegas on Sep 29^th, 2003, 3:02pm

Well, it's past the 19th of September when some of you were waiting on a "backorder" of Sansert. What's the story? Is it still available in the US pharmacies? This is the only preventative I have tried that has worked and I now suffer a cycle from Hell.

Title: Re: SANSERT
Post by wayner57 on Sep 29^th, 2003, 3:11pm

on 09/29/03 at 15:02:31, LasVegas wrote:

I am in Canada, and have no problem getting it! It can be ordered by Americans through Canadian Internet Pharmacies, just do a search on the net for them. I live in a Province that has allot of them, and they will ship to you no problem. Bonus 1US doller = $1.25 Canadian dollers. email me direct if you need help locating a Canadian Internet Pharmacie.
While waiting why not try Imitrex?

Just trying to help.

Title: Re: SANSERT
Post by Seiji on Sep 30^th, 2003, 3:05pm

http://www.fdanews.com/pub/did/1_58/markets/

fda news on sansert

Title: Re: SANSERT
Post by UnsolvedEquation on Sep 30^th, 2003, 11:27pm

I read the last link saying that Sansert was no longer being made. But again ... I was offered it just recently. IT IS STILL AVAILABLE here in Indiana !

Title: Re: SANSERT
Post by Zonie on Oct 5^th, 2003, 10:51pm

Early on, during my episodic clusters many years ago, I was prescribed Sansert and it was a real wonder drug for me. It was given in conjunction with Prednisone, but stopped my pain in it's tracks. I had used it for several episodes, but about the third time that I used it, I had some nasty side effects. Numbness and pain in my right hand, rendering it useless. When checked by my dr., he could get no pulse in that arm and refered me to a cardiologist for a doppler of both arms. Upon completion of these tests the cardiologist told me to "never" take another Sansert. I, too had heard since that it had been taken off the market.

I don't know the relationship between Sansert and many of the other meds that we are administered, but I've not had a problem with any of them until now. I am presently on Cafergot and am having some major edema in both feet and am beginning a new thread about this if I cannot find any answers that I am looking for in any of the other threads.

Title: Re: SANSERT
Post by Seiji on Oct 7^th, 2003, 4:54pm

It may be available right now in Indiana but for how long till the supplier runs out.
your doc may not know it has been discontinued
plain and simple fact is it is not being made here in the USA.