Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> Topamax....
        
(Message started by: taraann on Aug 17^th, 2003, 11:10am)

Title: Topamax....
Post by taraann on Aug 17^th, 2003, 11:10am

Just doing my research for my docs appt tomorrow...I have Prednisone, verapamil and imitrex at the top of my list.......

But i want to be informed on the other drugs out there too i was reading up on Topamax.......
These were a few side affects that would concern me if the doc should suggest this med......anyone have any of these side affects?
· confusion, difficulty concentrating or decreased memory;
· speech or language difficulties; or
***· changes in behavior, depression, nervousness, or agitation.

THanks in advance!

Title: Re: Topamax....
Post by Prense on Aug 17^th, 2003, 2:29pm

Yes, I had pretty much all those sides...you can also add change in the way things taste and EXTREME sleepiness to that list of fun stuff. Needless to say, I came off that med due to side effects after being on it for 2 weeks. The side effects lasted about 1 month.

Chris

Title: Re: Topamax....
Post by Lori on Aug 17^th, 2003, 6:40pm

I started at 25mg daily for one week, 50 mg for one week to 100mg daily until the end of the cycle. It was like Alhzeimers in a bottle. I also became severly depressed. I had weird tingling in my mouth and eye problems. BUT, after about 3 weeks the side effects (except for eye problems, eyes got worse) did subside for the most part. I still was a bit fatigued though. I must say, I didn't like the effects of topomax except it and verapamil did stop my HAs almost completely. I never had such an easy cycle, ever. I only hope and pray to be so fortunate again next time. I don't have to work fulltime though. I work part time from home and homeschool, so for me I could stay on it and deal with the effects. Someone who must drive alot or work fulltime..I think they could have a hard time if they must concentrate alot or if safety is a concern. I'm not even sure if I will use topomax next time or try something else. It's a tough call because it really does help some of us.

Title: Re: Topamax....
Post by FrankF on Aug 17^th, 2003, 7:12pm

I had the same "Alzheimer's" side effects and couldn't do my job (Electrical Engineer) worth a shit. Topomax also makes beer, Coke, and Pepsi tatse very bad.

Title: Re: Topamax....
Post by taraann on Aug 17^th, 2003, 7:56pm

oooh I dont like the sounds of any of that.....that will be a last resort drug if the doc wants to try it....all set with feeling any more depressed and I'm forgetfull enough as it is....etc. etc.

I've got a whole list of meds to take with me to the docs tomorrow. Abortives annd preventatives.... JIC he doesn't know where to start, I know he is going on last years notes from the nuero BUT I was very limited on what I could take last year due to other meds I was on....this time I am not limited at all.

Thanks 4 the info