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        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> Shroom update
        
(Message started by: Henk on Aug 14^th, 2003, 1:01pm)

Title: Shroom update
Post by Henk on Aug 14^th, 2003, 1:01pm

Hi everybody,

Since I promised to update you every once in a while: here is one....

I've been chronic for 6 years, started shrooms every 2 weeks in july '01. Did that for about half a year, stopped in jan 2002 and didn't take *any* meds ( nor shrooms) since.
No more attacks, CH is completely gone, except from an occasional shadow max once per month. So either I'm episodic, or it's competely gone.... Anyway 2 years with no attacks is like a godsend.......

PFDAN's to you all,

Henk

Title: Re: Shroom update
Post by jminmilwaukee on Aug 14^th, 2003, 3:15pm

The good news just keeps coming in!!!!

Happy to hear about your success. We really should start keeping tabs on this.

jmin

Title: Re: Shroom update
Post by Mitch on Aug 14^th, 2003, 9:44pm

Henk,

That's great to hear. I think there are more stories like yours that don't get reported. Once the CH's are gone some people don't come back to the board. Thanks for the update.

Since you are still getting shadows, I would take a preventative dose every six months. I think this would insure your continued success.

I love to see these kinds of stories. Especially from someone who was chronic.

Please keep us updated,
Mitch

Title: Re: Shroom update
Post by 5-string on Aug 15^th, 2003, 8:55am

So let me get this straight, if I were to eat mushrooms,(the kind that grow under cow shit,the kind I used to eat to trip) every oh I don't know 4-6 months,there is a chance that my clusters will stay away next time?
I know this is pretty basic info for alot of you at this point but I' m new here and was'nt expecting this. hell,I'm game.
this current cycle is now entering week 5. I'm getting larger windows of pain free time now but they keep commin'.

Mark.

Title: Re: Shroom update
Post by forgetfulnot on Aug 15^th, 2003, 10:10am

5-string, go here http://home.comcast.net/~rwold350/index.html
Should answer all your ?s

Lee

Title: Re: Shroom update
Post by 5-string on Aug 15^th, 2003, 11:04am

thanks alot forgetfulnot, I appreciate it.
Mark

Title: Re: Shroom update
Post by tommyD on Aug 15^th, 2003, 1:42pm

5-string -

Here's a better address for shroom info. It includes the faq and a whole website full of info. Check out the archives while you're there - a great collection of discussions on the topic from years gone by.

http://www.clusterbusters.com

-tommyD

Title: Re: Shroom update
Post by Norm on Aug 16^th, 2003, 9:10pm

HENK POASTING Shrooms up date on 14 Aug 2003, by Henk> I read your good report, and would greatly appreciate your giving me the details of what the treatment is. I'm new to this site this week, and a cronic suffer of CH for the past 7 years. Been on Prednisone, but everyone seems to say get off it. Alternate with Indocine. Please help, your success sounds so great.....Anyone else with shrooms success??Thanks. ndmec@earthlink.net

Title: Re: Shroom update
Post by BillyJ. on Aug 16^th, 2003, 10:32pm

start reading here- http://home.comcast.net/~rwold350/
and feel free to ask questions if there is something you
don't understand.Lots of people have had great success
with this treatment.
PF2U,
Billy

Title: Re: Shroom update
Post by firebrix on Aug 17^th, 2003, 5:15am

This is great news Henk!
We are very happy for you!
Thanks for the updates and keep in touch.
firebrix

Title: Re: Shroom update
Post by Flash on Aug 18^th, 2003, 10:46am

In a nutshell:

Yes eating a small dose of magic mushrooms every 6 months between episodes will prevent the episodes in most cases.

The mushrooms can also be used to abort current episodes but this may take anything from a single dose (as in my case for the last decade I've used this treatment) to a weekly dose for 6 months like Henk.

The secret is to take the shrooms at regular 6 month intervals between episodes.

Flash

Title: Re: Shroom update
Post by judyw on Aug 19^th, 2003, 5:54am

Great results Henk...I did my first dose in Feb 2002...two doses a week apart...then, averaging about every six months since...Chronic since 76, Inderal controlled since 88...but had to come off steroid due to asthma complications...still have shadows when overtired, but livable and so thankful to be rid of the steroid...have even managed to lose weight...PPP
judyw

Title: Re: Shroom update
Post by Flash on Aug 19^th, 2003, 6:01am

Inderal is a beta blocker not a steroid. It does cause complications with asthma. It also slows your heart rate so you get tired faster.

It's not a good drug for CH because one of the side effects of a bad CH attack is trachycardia (slow and irregular heartbeat). Believe me that betblocker and trachycardia no mix. My heart rate dropped to 30bps, thought I was toast. Glad you are off it!

Flash