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Title: decrease in CH Post by clusterhead99 on Jul 21st, 2003, 9:06pm Anyone else have their headaches decrease in frequency and pain levels of their clusters? I just started a cycle and used to have one every day with intense pain and now i'm getting one every couple of days with manageable pain. Same type of pain in the eye with Horner's pre syndrome, but pain is less intense than usual and less frequent. I'm a little concerned i'm becoming chronic. |
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Title: Re: decrease in CH Post by BobG on Jul 22nd, 2003, 7:43am You say you just started a cluster cycle. Did you also just start a medicine cycle, such as starting verapamil a week or so ago? The meds sometimes take a week -10 days to build up in the body to an amont that will fight the pain. Or maybe, it will be a very short cycle and you're on the way out of it already. I hope that's the reason. |
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Title: Re: decrease in CH Post by Bob_Johnson on Jul 22nd, 2003, 12:08pm "I'm a little concerned i'm becoming chronic. " Please don't waste your emotional energy with attempts to forecast the future. If you become chronic, you will be the first one to know it! Variation in our experience of cluster is quite common--time, location, intensity, etc. One of the biggest mistakes you find on ch.com is the notion that cluster is fixed/final/always the same for everyone: this leads to confusion and needless concern. Medical descriptions--the diagnosis--is the expression of an ideal model. No diagnosis can take into account the many subtle variations which patients will experience. |
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Title: Re: decrease in CH Post by clusterhead99 on Jul 23rd, 2003, 1:08am thanks bobs for the replies I've just started taking Amerge. It's been pretty effective. I've been travelling quite a bit for my job and everytime i fly in a cycle i get a CH. With the Amerge i've been able to fly PF. How is vermapil? My doctor has never suggested that as a treatment. I used to just nasal imitrex and naproxene. Hopefully, the cycle is ending ;) As for the chronic stuff, I guess you are right, if it happens, there is relatively nothing i can do about it. |
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Title: Re: decrease in CH Post by Nimbus on Jul 23rd, 2003, 8:09am Hey clusterhead99! Verapamil work really great for me. No major side effects and unlike imitrex, wich is use to treat a CH attack, verapamil does prevent the crisis, often leaving me with just a little shadow. Sure didn't work all the time but five weeks ago I was ready to shoot myself and now I'm pretty well. The only downside of verapamil I can see is the dose (480mg per day for me) wich leave me tired the first week and constipated like a rock most of the time (hum... fiber). Oh, and it take about five days for a full effect. Of course verapamil is working great but my great doctor (wich I'm pretty sure, is doing voodoo on spare time) also gave me injection in the back of the head. Well, I'm feeling better now. Don't be alarmed, I'm also concerned about beign chronic but my wife is there to reassure me that each cycle, after a four week, It's always the same fear that come back and yet the pain disapear. This year it was particularly bad for me (4 CH a day triggered by, seemingly, beign alive ). Before I was tacking 240mg verapamil and worked pretty well. Now I'm at 480 mg and it's working pretty great. Are you anxious or depressive sometime? If I ask that it is because I get kind of anxious when in the middle of a cycle and that's where the fear of beign chronic usually appears. ;) Take care. |
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Title: Re: decrease in CH Post by Prense on Jul 24th, 2003, 6:42pm As a chronic, I "normally" get 5-6 hits a month. Sometimes I can get that in a day though although that is not the norm. Been that way for ummmmmm...11 years now. Although I was not diagnosed until 2000 for them. Prense |
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