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        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> cronic chs and disability
        
(Message started by: Nathan on Jun 28^th, 2003, 5:35pm)

Title: cronic chs and disability
Post by Nathan on Jun 28^th, 2003, 5:35pm

hey everybody,
i probably should have put this on the general post page but this is where i post most of the time and have a feeling of closness to all of you. if someone picks it up and sticks it on the general page, be my guest.

i just wanted to let all the cronic sufferers that have chs so bad they are unemployed and cant find work and mat have applied for disability there IS hope. i just got the letter in the mail that i am approved for benifits and have been found "signifigantly disabled". now granted, this was a 3 year battle for me but in the end i won the war. there is hope for us yet! we may not find a magic pill or a cure of ANY kind, but at least we can have the comfort of knowing that we are still providing for our families and are NOT completely useless. i consider this a victory for ALL chs sufferes!! yeah, the gov is paying our (my) bills now but goddamn it, when we wake up at 2 am beating our head against the wall in pain at least we know our kids will have food on the table, clothes on their back and the pain we endure we deserve a little gratuitity. as i tell everyone i know, i earned every dime of this money every other day for the past 3 and a half years. no price can be put on the pain we go through!!!
well i guess ive said my piece, if anyone wants to know anything more ill always be here lurking around (unless they find that magic pill then im posting it on here and youll never hear from ALOT of us again!! LOL!!) thanks for listening and heres to everybody staying pain free. ---N

Title: Re: cronic chs and disability
Post by forgetfulnot on Jun 28^th, 2003, 6:07pm

Great news man, how the hell did you do it? They turn me down like I'v got a fucking nosebleed. Best news I'v seen for chronic C-heads in a while. Now that you have been without a check for three fucking years you can adjust to less than half of what you were making before.
Better than nuttin.

Title: Re: cronic chs and disability
Post by Karla on Jun 28^th, 2003, 7:15pm

Way to go Nathan!! I am so happy you were able to achieve this victory.

Title: Re: cronic chs and disability
Post by BobG on Jun 28^th, 2003, 7:54pm

Hey forgetfulnot.........go over to the OUCH website and click on the Cluster Help button. There's some info on sites that you may be interested in.

Title: Re: cronic chs and disability
Post by Nathan on Jun 28^th, 2003, 8:10pm

i looked, but didnt see what you were refering to. can ya fill me in??

Title: Re: cronic chs and disability
Post by BobG on Jun 28^th, 2003, 9:20pm

On the left side of your screen, click the 'OUCH website' button. Then, at the OUCH site click

Cluster Help
Cluster resources
Disability claims
Then click on any of the logos.

Or click on these blue lines:
SS disability benefits site.
http://www.ssa.gov/pubs/Part%202

Carl D (2-2-01, advice on disability benefits
http://clusterheadaches.com./wwwboard/messages/80406.html

Trip 6-30-01 document on current disability laws (from Migraine Awarness Network)
http://www.migraines.org/disability/disabcdl.htm

Links to imformation to get help
http://www.chhelp.org/index.html

Bob Johnson 9-4-01 ADA: job interviews and chronic illness. Your rights....
http://66.154.42.184/wwwboard/messages2/109659.html

discussion string about disability and using a lawyer July 24, 2001
http://www.clusterheadaches.com/wwwboard/messages2/102349.html

Title: Re: cronic chs and disability
Post by Marc on Jun 28^th, 2003, 9:43pm

Bob,

Could you please be a little more specific? ;D

Marc

Title: Re: cronic chs and disability
Post by Nathan on Jun 28^th, 2003, 10:12pm

ok, i know what your talking about now. i didnt go back to the website, i have seen it all before. there are several links to ssa's website related to disability determination and how they decide one is "disabled". let me tell ya, its all pretty much black and white as far as ssa's version of disabled. there is however, a grey area and thats where i (and every other cronic i assume) fall. they look at the rulebook for disability, then look at what your condition is, how bad, can you still preform the type of work you used to, can you do any type of new work, and most importantly, how your condition effects your daily life. trust me, i have been dealing with this shit for 3 years, the ssa website and its rules and regs are not the holy grail of disability. (for gods sake i know a guy that collects disability just because hes dumb and this idiot went through 2 years of college!! LOL) the links you pointed out are a good refrence point for people applying, but should not be taken as the final word. if youre serious about trying for benifits, get a lawyer. especally one that deals in this field. they get to do all the bullshit work, you just have to sit around and be disabled (which your doing already!) ---N

Title: Re: cronic chs and disability
Post by BobG on Jun 28^th, 2003, 11:00pm

Marc..........LOL :D

Yes I could but I like to make the newbie's work for their disability pay. Then tax them. (I'm a RINO)
Republican-In-Name-Only

Remember when Ronald Reagen, as Gov of Calif, tried to make the able-bodied work for their welfare checks? He got shot down real fast.

Title: Re: cronic chs and disability
Post by jonny on Jun 29^th, 2003, 12:19am

Chronic for 28 years........and to damn proud to take a dime I have not worked for..............sue me!!

..............................jonny

Title: Re: cronic chs and disability
Post by forgetfulnot on Jun 29^th, 2003, 10:15pm

But you did work for it jonny, it is called insurance, you only get paid based on what you paid in. Anyone should be able to figure this deal out, except BobG.

Lee

Title: Re: cronic chs and disability
Post by Marc on Jun 29^th, 2003, 10:49pm

Having a bad day Lee?

Title: Re: cronic chs and disability
Post by Nathan on Jun 29^th, 2003, 11:06pm

i think lee is confusing social security (retirement fund) with supplemental security income.(disability) theres also one called supplemental security disability income. they all get really confusing. to be honest, im not sure which one im on! i do know its not the retirement thing, im only 31 and havent paid into ssa anywhere near enough to get retirement. i guess i just gotta die young!! ---N8

Title: Re: cronic chs and disability
Post by forgetfulnot on Jun 29^th, 2003, 11:46pm

Marc, bad day? Try bad twenty fucking years. Ya I'm in a good mood.

Title: Re: cronic chs and disability
Post by forgetfulnot on Jun 30^th, 2003, 12:10am

This is the reply I got from a recient e-mail...................

oh i forgot, if you have yahoo or msn messenger you can add me and we can live chat so i dont screw up and repeat myself about your questions (im on some serious meds) my yahoo id is beafraid3847 or ufo_guy1 but i use beafraid more often. on msn its beafraid3847@hotmail.com
OR.... lol if you have icq my num is 71382454 take care! ---N

Take some more drugs!

Title: Re: cronic chs and disability
Post by Nathan on Jun 30^th, 2003, 1:12am

yep, that my yahoo, msn, and icq. anyone that wants to feel free to add me and say hi sometime. im a nice guy (MOST of the time LOL) and like it says in the e-mail im on some serious meds; as some of you already know, so if you add me and i have no idea who you are, dont take it personally. half the time i dont know who my wife is!! pain free people, pain free!!!-----N

Title: Re: chronic chs and disability
Post by iJun G4 on Jul 1^st, 2003, 5:47am

Chronic folks interested in disability--

There is a post called "OUCH emergency med funding" now in "general topics" where Don (pres. of OUCH) is talking about uses of OUCH funds to help sufferers.

http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=general;action=display;num=1056940618

I put up a post supporting action to get Chronic CH universally recognized by the government as a disability condition. Don seems to be open to this idea.

If you have ideas or suggestions regarding disability, please post them over there and let Don know!

Jun

(I'm an episodic and don't know anything about disability, but I think this is something that's really needed!)

Title: Re: cronic chs and disability
Post by Nathan on Jul 2^nd, 2003, 5:07pm

i may be wrong, but dont you have to be a member (paying member) of o.u.c.h. to submit anything?

Title: Re: cronic chs and disability
Post by Danielle on Jul 2^nd, 2003, 6:24pm

Congrats to you...I am also a chronic sufferer and wanted to let the other Canadians know that I too, was able to receive disability this year. I didn't stay on it fully, but you can also mix benefits so that you can work and have enhanced medical coverage which will pay for your scripts(that's what I am doing) cause you know the amount of meds is what's goin to break ya.

Title: Re: cronic chs and disability
Post by Marc on Jul 2^nd, 2003, 6:56pm

Nathan,

Membership in OUCH is free - check out the web site.

Marc

Title: Re: cronic chs and disability
Post by Nathan on Jul 3^rd, 2003, 12:19pm

thanks marc!
i went to ouch and became a member. i also posted a message to don on the link ijun provided, so hopefully it will help or at least give some insight.---N

Title: Re: cronic chs and disability
Post by hdbngr on Jul 7^th, 2003, 10:39am

Nathan:

That's wondeful news! We had a converstaion awhile back on how to work/interview with CH and the difficulties that caused. I'm so happy that this went through and that it will reduce worry about that area. Way to go for sticking with it.

Vanasa

Title: Re: cronic chs and disability
Post by Nathan on Jul 7^th, 2003, 10:09pm

thanks! i would say it was worth it, but in some ways its not. disability is really a last resort for us unfortunatly, there are alot of us at that point so in that aspect, it was worth it to stick it out and not give up. i advise anyone currently trying for disability with clusters... dont give up, sooner or later your going to find someone in the systen that understands the pain we go through and will finally stamp that huge file of yours "approved"!!