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Title: Where is everyone from? Post by Koda on Jun 25th, 2003, 2:31am I was just wondering where the "regulars" are from. I'm in St. Peters, just outside of St. Louis, MO. I visit here when I'm in my cycle (support) and every once in a while otherwise. Has anyone ever tried to get a local support group together? Would be interested in knowing my "kin", and wondering in anyone has had success with this type of organization. Thanks! Koda |
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Title: Re: Where is everyone from? Post by ave on Jun 25th, 2003, 7:58am Hello, check out "where we live" under the buttons. |
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Title: Re: Where is everyone from? Post by Karla on Jun 26th, 2003, 7:38am There has been no local support group started in the midwest as of yet. There was a rumor of one in the idea stage. |
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Title: Re: Where is everyone from? Post by Brian_Y on Jun 27th, 2003, 10:33am South Carolina. The only state. One still should be suspcious of anyone having STATE patriotism. |
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Title: Re: Where is everyone from? Post by Irma on Jun 27th, 2003, 3:38pm Go to the convention & meet some "kin" It's July 18,19 & 20th I believe so you better hurry. I |
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Title: Re: Where is everyone from? Post by Nathan on Jul 7th, 2003, 10:18pm i know this is a support page and were all here to help each other through the tough times, offer advice, ect... but to me a face to face support meeting would feel too much like an A.A. meeting. everyone sharing their "war stories", hugging, crying, sucking on o2 masks LOL!! im sorry, but ive never been a fan of the aa meeting thing, been there, done that, then went home and got drunk. finally sobered up on my own with no help from anyone besides my wife. i know chs and alcoholism are 2 completely different things but the whole support group "feeling" would be the same. or maybe im just anti-social! ----N btw, i live in wisconsin but am from peoria, illinois. i lived there from birth untill age 26, so im not a cheese head, i just married one!! |
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Title: Re: Where is everyone from? Post by Danielle on Jul 8th, 2003, 5:33pm Hi Koda, Not sure what ya have to do to be a regular.... About 2 years ago I grabbed the email address of CH sufferers from in and around my area, wrote up a short email asking if anyone was interested in getting together with other clusterheads maybe once a month for a coffee or something. I thought it would be wonderful and beneficial to actually meet someone who truly understood what you live with and to be able to develop a local support system to share information about doctors, medications, etc. Like what happens here in many ways just with a bit more personal touch. I guess I need social contact, I have found that being a chronic CH sufferer can be a very isolating condition. Anyhow, I guess I must be wierd cause no one even emailed me back to tell me to go to hell..LOL |
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Title: Re: Where is everyone from? Post by Danielle on Jul 8th, 2003, 5:34pm Oops...oh yeah, I'm from Vancouver, British Columbia |
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Title: Re: Where is everyone from? Post by Koda on Jul 8th, 2003, 5:39pm Hi Danielle- Sorry to hear about your lack of success! I too think it would be very benefitial to meet other "like us"- Nathan doesn't have to participate- LOL- but I think bonding over coffee would be not only helpful, informative, and a relief to see you're not "the only one", but also kinda fun. Nobody understands us more than other like us. Don't give up. I got an email from a guy in my city and we're getting together tomorrow night with our spouses for dinner. I think it will be wonderful for my husband to talk with someone who goes through the other side of it too- witnessing the pain. I can't wait! |
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Title: Re: Where is everyone from? Post by Charlie on Jul 8th, 2003, 5:40pm Chautauqua County, New York. Way way upstate, about 75 miles south of Buffalo. Charlie |
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Title: Re: Where is everyone from? Post by cbolony on Jul 8th, 2003, 6:06pm Charlie lived in bradford PA for a year cold as hell up there.Now live in westchester county near NYC |
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Title: Re: Where is everyone from? Post by Nathan on Jul 8th, 2003, 8:43pm LOL @ koda!! thanks.....i think....lol |
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Title: Re: Where is everyone from? Post by Koda on Jul 8th, 2003, 9:04pm Hey Nathan- Maybe we could come up with our own 12-step program for getting through these damn things: "We admitted we were powerless over cluster headaches, and that our lives had become unmanageable." "Came to believe that a medication greater than us could restore us to sanity" etc. etc.... That sort of thing. LOL- want to participate? Koda |
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Title: Re: Where is everyone from? Post by b.bop on Jul 8th, 2003, 9:23pm Sydney, Australia. I haven't heard anything from anyone else down here tho... :) |
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Title: Re: Where is everyone from? Post by JDH on Jul 8th, 2003, 11:02pm on 07/08/03 at 17:39:20, Koda wrote:
Can't wait either...Clusterheads unite!!! s/b fun ;D Jim |
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Title: Re: Where is everyone from? Post by Nathan on Jul 9th, 2003, 1:36pm no thanks koda, now that i think about it, maybe its the 12 step thing that bugs me about those meetings!! grant me the serenity, blah blah blah..... ---N |
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Title: Re: Where is everyone from? Post by nancyc on Jul 12th, 2003, 12:09am Another SC clusterhead here....yeah SC! shuddup, Bill L., you yankee. LOL..smiles,nancyc |
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Title: Re: Where is everyone from? Post by MarkHW on Jul 13th, 2003, 9:08am Mount Vernon, Ohio (40 minutes north of Columbus) Mark |
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Title: Re: Where is everyone from? Post by splittin_head on Jul 13th, 2003, 3:04pm west by god virginia,,here |
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Title: Re: Where is everyone from? Post by Svenn on Jul 13th, 2003, 6:29pm The land of the vikings here Svenn ;D ;D ;D ;D |
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Title: Re: Where is everyone from? Post by Mark C on Jul 14th, 2003, 1:35am http://www.knoxvillechamber.com/images/knox_us_with_rings.jpg |
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Title: Re: Where is everyone from? Post by stevegeebe on Jul 14th, 2003, 12:35pm I'm from the shrinking "Country of Louisiana". |
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