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        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> Meet the King of Freakish CCH symptoms
        
(Message started by: notseinfeld on Jun 15^th, 2003, 11:29am)

Title: Meet the King of Freakish CCH symptoms
Post by notseinfeld on Jun 15^th, 2003, 11:29am

Chronic CH 2.5 years, ECH prior 2 years.

Haven't watched a full movie (from start to finish) in 2 years. Ditto for television show >1hour. After about 45 minutes of boob tube staring an attack will always occur. Sometimes a break at the 30 minute mark (hit the pause button) will provide some relief but generally if I'm watching I'm a sitting duck.

Haven't had a 'same time' attack in better than a year. It'll strike any old time one day, go away for a day, then chronic shadows all day another.

Usually hit THE VERY SECOND a photon enters my iris upon opening my eyes in the morning. Rapid onset precludes making coffee to drink so it's a roll-over Imitrex sniff, writhing for 20 minutes on the bed, exhaustion, back to sleep===you know the drill.

No hot tubs for me and the little lady either. That vaso-expansion thing is just too much. Sometimes I can dip in my big toe for 5 minutes. Yahoo.

No alcohol---usually even swig will bring on awful shadows.

I'm feeling like a complete freak. Guess I just can't play in all the reindeer games.

Oh, and the Diamond headache clinic wants $3,000.00 US per day. Are they on dope?

nots

Title: Re: Meet the King of Freakish CCH symptoms
Post by kimmyv1966 on Jun 15^th, 2003, 5:44pm

Hang in there nots!

Wishing you PFDANs

Still searching for the cure,
Kim

Title: Re: Meet the King of Freakish CCH symptoms
Post by cathy on Jun 15^th, 2003, 5:57pm

Hi Nots......sorry your having it so rough....sending you PF vibes to keep you hanging in there.... :-/

Cathy