Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> WELCOME - YOUR SCREWED!!!!!!!
        
(Message started by: jimmylaff on Jun 14^th, 2003, 7:43pm)

Title: WELCOME - YOUR SCREWED!!!!!!!
Post by jimmylaff on Jun 14^th, 2003, 7:43pm

THIS IS WHAT IT SHOULD SAY AT THE END OF THE CLUSTER QUIZ IF YOU HAVE CLUSTER HEADACHE. WELCOME - YOUR SCREWED. I KNOW THAT THIS IS A NEGATIVE WAY TO LOOK AT THINGS, HOWEVER, WE HAVE ALOT TO LOOK FORWARD TO. STICKING OURSELVES WITH NEEDLES 4-5 TIMES A DAY. TAKING MEDS THAT IN THE LONG RUN WILL KILL US BEFORE THESE DAM HEADACHES DO. OH DID I LEAVE OUT THE MIDNIGHT WAKINGS. I AM SORRY TO VENT LIKE THIS BUT I AM AT MY WITS END WITH THESE THINGS. AND YES I AM ON ALL THE RIGHT MEDS AND SEEING THE RIGHT DOCS. BASICALLY WERE ALL SCREWED...

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by Mark C on Jun 14^th, 2003, 8:12pm

Dear Jimmy,
Welcome to the board.
You are correct..................... now what?

PFDAN's
Mark

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by Charlie on Jun 15^th, 2003, 3:54am

Jimmy, we know how you feel. You might have some luck with this:

Dr. Wright's Circulatory Technique

This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.

When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.

This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate.

I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.

This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.

When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.

I wish you the best of luck - Charlie Strand

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by cbolony on Jun 15^th, 2003, 7:05am

Quote:

BASICALLY WERE ALL SCREWED...

jimmylaff lucky you found this site so you can vent and we all understand what you are going threw.But one thing i forgot to tell you here on this site the beast never wins no matter how bad it gets.Just keep on venting we are all listen.And get rid of the caps we hear you load and clear. :)

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by tommyD on Jun 15^th, 2003, 8:09am

And verily we read here in the Book of Daniel (also known as DJ's clusterhead web site):

"Be not thou screwed, for verily thou were screwed upon the Sign of the Beast, but here there be Treatments and Remedies which may bring Peace and Pain Free Days and Nights for those who seek them."

"Therefore Read thou here the Messages written by the Faithful, and Click thou upon the Buttons of the Left, and join thou with the Brothers and Sisters of OUCH, for they are your Brothers and Sisters in Pain, and have learned the Truth of the Beast."

"And the Truth shall set you Free."

-tommyD

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by Mark C on Jun 15^th, 2003, 4:25pm

FUCKEHEH TOMMY!
LMAO!

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by BlackDog on Jun 15^th, 2003, 6:29pm

TOMMY!!!
Best thing I ever read. Thank you.
May I quote you, o-wise-one?

Darren :)

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by MarkHW on Jun 18^th, 2003, 10:12am

Yeah... clusters pretty much do suck!

I've had em for 15 years and been chronic for 10.
I got really depressed at one point, but then got really pissed off over the whole thing.

I refuse to give up and let the beast win.
I'm gonna fight it no matter what!

Mark

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by teri on Jun 21^st, 2003, 7:38pm

I AGREE!

We need to Lobby to get someone to try to find a cure for these things.

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by gtar_man on Jun 22^nd, 2003, 8:50am

Jimmy-
I feel your pain, man, but TommyD is right - you can give up or fight, and few of us give up. You've only got one life, and at the end of the rope, you hang on for all you've got.
Some (ahem!) have had pretty good success with shroom therapy (gave up on neuros and traditional meds), and you can get educated if you look through these messages. It takes some effort but it's worth it and the side effects are very short-term as opposed to what the Dr prescribes. Nuff said.
I became a grandfather last week. Life gives us blessings even if it's also given us pain and you have to slog through the shit to get to the flowers.
Hang tough, buddy.
Mike

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by stevegeebe on Jun 22^nd, 2003, 5:08pm

Amen.

Steve G

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by Flash on Jun 23^rd, 2003, 6:44am

I'm new here. How do I get screwed? Can anyone send me some? Does my Doc know that I can get screwed? Do I need a neuro to get screwed? How much does getting screwed cost? What length of remission can I expect if I get screwed? How many of you have been screwed? Is getting screwed painful? Can I get screwed while I'm on my regular scrip of imitrex, MAOI inhibitors, heroin, cocaine, prednisone, verapamil, lidocane, O2, lithium, ST John's wart, 30 gallons of water, and a field of mushrooms?

PS MAY JESUS SAVE ALL YOUR SOULS.

you fuckers.

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by tommyD on Jun 23^rd, 2003, 4:28pm

In which I, being a Saint, attempt to answer Flash’s questions.

I'm new here. How do I get screwed?
Push the buttons on the left and keep your mouth shut.

Can anyone send me some?
No, you have to grow your own.

Does my Doc know that I can get screwed?
Of course. They learn it in medical school.

Do I need a neuro to get screwed?
No, a GP will do. In fact, an insureance company is all it takes.

How much does getting screwed cost?
How much you got?

What length of remission can I expect if I get screwed?
Somewhere between 45 minutes and 18 years.

How many of you have been screwed?
All of us.

Is getting screwed painful?
Yes, but we love it.

Can I get screwed while I'm on my regular scrip of imitrex, MAOI inhibitors, heroin, cocaine, prednisone, verapamil, lidocane, O2, lithium, ST John's wart, 30 gallons of water, and a field of mushrooms?
Yep.

PS MAY JESUS SAVE ALL YOUR SOULS.
gesundheit

you fuckers.
Yes.

-tommyD

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by Marc on Jun 23^rd, 2003, 11:51pm

tommyD,

LOL!!

Marc

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by Flash on Jun 24^th, 2003, 10:36am

You guys are so unfriendly. That was only my first post in the name of JESUS and one person flamed me straight away. Well that guy is going to ROT IN HELL.

You probably aren't even ill. I doubt if you've ever had a headache in your lives. I'm never coming back here you fuckers. May JESUS have mercy on you because only HE can cure you.

And I mean it, I'm never coming back here again!!!!

Ever...

Ever, ever, ever, ever, ever, ever, ever, EVER, EVER, EVER, EVER.

Instead I'm going to scream until I'm sick.

PS That doesn't apply to Margi.

Flash

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by Margi on Jun 24^th, 2003, 1:53pm

I heard that, Flash. Did that damn strap on your safety goggles break AGAIN?? You do sound a might testy today, Mr. Adams. I hate it for you when that happens. Must leave quite a mark.

TommyD - well done. VERY well done, sir. ;)

and, ps to Flash. What? No diflucan/lamasil in your mixture? 40 lashes for you sir.

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by Brian_Y on Jun 27^th, 2003, 10:37am

I wish I could get screwed.

It's Spring and I have not "hit it" in a while....

....sigh

Yours truly,

Dried Up

Title: Re: WELCOME - YOUR SCREWED!!!!!!!
Post by tommyD on Jun 29^th, 2003, 12:05pm

Apologies to jimmylaff. Thinking back on it, I reacted much the same way when I discovered this board and what it was I had.

I have what? And it keeps coming back? And there's no cure?
And it can hurt even worse than this? And you can get hit several times a day? For the rest of your life? And Imitrex costs how much? And I gotta see a brain specialist?

Holy shit! I'm SCREWED!!!

-tommyD (shroomed, not screwed)