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        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> Trigger Article
        
(Message started by: Brian_Y on Jun 2^nd, 2003, 9:10am)

Title: Trigger Article
Post by Brian_Y on Jun 2^nd, 2003, 9:10am

Here is a trigger article I ran across. Not CH specific, but there is some good info. Enjoy, ye scurvy dogs....

http://content.health.msn.com/content/article/46/1826_50691.htm?z=1757_00000_8200_fe_01

Title: Re: Trigger Article
Post by cbolony on Jun 2^nd, 2003, 10:51am

Brian my triggers are Alcohol always in cycle and out of cycle and sometimes when it's very hot outside or a hot room

Title: Re: Trigger Article
Post by Bob P on Jun 2^nd, 2003, 11:53am

Now if you could just find a list of triggers for cluster headaches.

The list you link, unfortunately doesn't apply to us.

Title: Re: Trigger Article
Post by Brian_Y on Jun 2^nd, 2003, 1:18pm

Maybe you need to read it again. Alcohol, MSG like stuff, et al.

It is applicable and the last time I checked, triggers are somewhat arbitrary anyway.

And having the "reasoning" behind WHY some of these trigers act the way they do is important as well.

Title: Re: Trigger Article
Post by oringkid on Jun 2^nd, 2003, 1:31pm

No offense, but PTOOOEY!

There are no REAL triggers for CH except for whatever it is the hypothalamus is doing.

Alcohol will only trigger an unscheduled CH in me. I get them whether I drink or not. Whether I eat or not. You could go without eating and be on a glucose IV and I bet you would still get the attacks.

If we went by those guidelines we would all starve to death. What the hell are you supposed to EAT? Chalk?????

Sorry, but these kinds of lists piss me off.

Sherry

Title: Re: Trigger Article
Post by Bob P on Jun 2^nd, 2003, 1:35pm

MSG and stuff like that are not recognized cluster triggers.

From Doc Goadsby:
"Alcohol, nitroglycerine, exercise and elevated environmental temperature are recognised precipitants of acute cluster attacks."

Title: Re: Trigger Article
Post by Brian_Y on Jun 2^nd, 2003, 2:03pm

But NOTHING else? How odd. I guess all of those posts from everyone else (and I've noticed more than just a few...) listing SOME of the triggers in this article was just rubbish?

And if my doctor says that X or Y is a trigger or if there is an article that's posted in NE Journal of Medicine that says something besides what's listed here is and Goadsby does not, then he is gospel because......why?

That sounds suspiciously like hero worship, sorry...

And why on earth, Sherry, would a list like that upset you? Seems to me this board is rife with misinformation. If that is what I have promulgated here.

Title: Re: Trigger Article
Post by oringkid on Jun 2^nd, 2003, 2:12pm

It pisses me off because they don't really know. Let's say it is what it is...a list that they give to people with migraines. What on earth are they supposed to eat?

How many times have the great "they" said so-and-so causes this! And then 5 or 10 years later they find out well no, it doesn't cause this. They are basically guessing cuz some people said I get this after I eat this. But is that all they did? Does this really cause this or could it be something else.

Did you know that if you eat 20 tubes of lipstick a day for 10 years it will give you cancer?

If you drink 3 bottles of shampoo a day for 15 years you will also get cancer!

People who are suffering take every little thing to heart, whether it makes sense or not, whether proven or not. Tell me, what does that list leave for someone to live on?

Sherry

Title: Re: Trigger Article
Post by Brian_Y on Jun 2^nd, 2003, 2:22pm

Your point is well taken, Sherry. But that type of trial and error is necessary for educated guesses to be effective. I hear you, though. Eggs used to cause cancer too.

But then again, if we as a community had a consensus that there were triggers in food outside of what Goadsby recognizes, then HIS sitting on what's recognized or not is more harmful in my opinion.

Title: Re: Trigger Article
Post by oringkid on Jun 2^nd, 2003, 2:28pm

Well to tell you the truth, I don't agree with all of his! Heat does not seem to trigger mine...neither does exercise from what I can tell.

Living in 110 to 120 degree heat and not being triggered by that even IN cycle, Sherry ;D

I tend to let my common sense and instincts guide me. It's worked for me so far....

Title: Re: Trigger Article
Post by Brian_Y on Jun 2^nd, 2003, 2:37pm

So that gives SOME credence to the article, n'est-ce pas?

If you list ALL the foods, and you see a pattern, maybe it has validity.

You right, I right. Everyone else is wrong.

;)

Title: Re: Trigger Article
Post by cathy on Jun 2^nd, 2003, 3:03pm

on 06/02/03 at 14:12:04, oringkid wrote:

Did you know that if you eat 20 tubes of lipstick a day for 10 years it will give you cancer?

If you drink 3 bottles of shampoo a day for 15 years you will also get cancer!

Sherry

Now Sherry would that be any particular colour of lipstick, me I only eat the red ones...and is it okay if I only drink the small bottles of shampoo.... ;D

All I know is Wes will get CH if he drinks Alcohol for sure, so Dr Goadsby was right about that, but also if he has food containing MSG....and orange juice...so has Dr Goadsby missed something...or maybe if wes didn't have a problem with the hypothalmus he'd get migraines from the same things...who knows... ???

Me I get migraines if I drink Red Wine....I think the list is a guideline, likes been said trial and error....if all are a trigger then chalk sounds like a good idea, not sure how nutritional it'd be though... ;)

Cathy... :)

Title: Re: Trigger Article
Post by Bob P on Jun 2^nd, 2003, 3:15pm

If it hurts, don't do it. It's really just that simple.

Maybe it's because the article is listed in the "Migraine" section that I figured it didn't apply to clusters. Naw, it's because the list is bogus for clusterheads.

Title: Re: Trigger Article
Post by Ueli on Jun 2^nd, 2003, 3:37pm

Oh please not again :o

A clusterhead needs no fucking migreene trigger list to know that alcohol is a trigger for many, and the rest of this list is utterly useless.

Sure, some clusterheads have their own personal trigger, but there is no reason to collect these in a list and recommend everybody to avoid them.

In a recent thread somebody reported to be triggered by gasoline fumes. Is this a reason we all turn Amish and swap our car for horse and buggy? But then some people are triggered by horse shit.....

Title: Re: Trigger Article
Post by BobG on Jun 2^nd, 2003, 3:37pm

Sherry,

That lipstick and shampoo theory is not true. You can eat or drink all you want. All you end up with is a red tongue and bubble on your breath.

Mice in laboratories in Canada are the ones that have to worry.

;D

Title: Re: Trigger Article
Post by cbolony on Jun 2^nd, 2003, 3:49pm

So you are telling me that sometimes when i go into a hot room or car and i'm out of cycle and get a headache on the left side of my face in my left eye and i know for sure its a cluster headache and i take a shot of imitrex to stop the pain and it goes away in 10-15 its not CH then what is it.It feels like the same CH when i'm in cycle
can i be wrong.

Title: Re: Trigger Article
Post by oringkid on Jun 3^rd, 2003, 1:22am

Nope, not saying anything like that. But lists like that cause people to try to avoid ALL that stuff when maybe only one thing is a trigger.

If heat triggers yours, well then heat triggers yours. It doesn't trigger mine. Not saying you don't have CH, just that not everybody has the same. The only trigger I can say for sure is a trigger is Alcohol for me. Mostly cuz I have basically experimented with it enough. I also think that mothballs is a trigger for me, but, it is possible that I was just gonna have a CH then (both times. Can't say positively cuz it was only 2 times that I was in cycle and was exposed to mothball fumes, I say fumes as it was in a store not just someone's house that uses them) but since the CH came on suddenly right after I got a noseful of it and since it did happen the same way both times, I will conclude that for me, mothballs is a trigger.

See what I'm saying? No one else on the board has said mothballs was a trigger, but many have other triggers that do not seem to trigger mine. If we go and try to avoid all the stuff on these "lists" you're probably still going to get hit with CH and you are left with almost nothing to eat or drink!

Sherry

Title: Re: Trigger Article
Post by cbolony on Jun 3^rd, 2003, 5:39am

Brian all they are trying to tell you is there is no list for CH and they are right.If i drink i would get an unscheduled CH like sherry said.When i'm in cycle no matter what i do they still come 3-4 aday.
And i knew your post was going to get Ueli upset ;D ;D
Your are not the first to post that link and i'm sure you are not going to be the last one :) :)

Title: Re: Trigger Article
Post by Brian_Y on Jun 3^rd, 2003, 7:07am

As to "upsetting" someone, here is what I think about that:

Whatever.

If you can discern from what is what and use what little education you may or may not have, then enjoy the article. Maybe if you are that one person who triggers a cluster by eating twinkies, then it has served its purpose. A blanket statement condeming it is nonsense.

WHATEVER.

I am through.

Title: Re: Trigger Article
Post by cbolony on Jun 3^rd, 2003, 10:06am

Brian don't get mad do you know how many times
i got banged around here a lot of times.It's just part
of this happy family we have here of clusterheads.These people here are going to be the first ones to help you when you need them trust me brian :) :)

Title: Re: Trigger Article
Post by Brian_Y on Jun 3^rd, 2003, 11:24am

I am not getting angry, per se, and your point is well taken. I get "frustrated" by a lack of being able to think for oneself. We are all adults.

How many times has someone (at least those of us with correct political views) used the "turn the channel" argument for something you do not like, etc.

It's the same thing here. Attacking me or the article is ridiculous. You can make up your own mind. Use what's useful, discard the rest. As if this board is not overflowing in misinformation..... :P

But good info too....

Thanks, though, cbolony. You have been listened to.

Title: Re: Trigger Article
Post by cbolony on Jun 3^rd, 2003, 2:51pm

Quote:

How many times has someone (at least those of us with correct political views) used the "turn the channel" argument for something you do not like, etc.

You must have read some of my views they upset some people here but we all express our views and that's why everybody gets along so well here.One thing i can tell you there are a lot of very smart people here who know there shit about CH some of them could be fucken Neuro's ;D ;D

Title: Re: Trigger Article
Post by brewcrew on Jun 3^rd, 2003, 8:24pm

This may fall under the "too much information" category, but Viagra triggered one of the worst CH's I've ever had. Supposedly it is a vaso-dialater, which, when in cycle, is one of the worst things you can do to yourself. I learned the hard way (pun unintended).

Come to think of it (another pun unintended), there's no way to discuss this particular drug without making unintended puns.

Bill

Title: Re: Trigger Article
Post by Robert on Jun 5^th, 2003, 8:34am

Caffine was on that list, and thats one thing that help me sometimes. If I need to go somewere for a few hours were I need to be ch free I will load up On Excedrin or nodoz with alot of caffine and it will work most of the time, for at least afew hours
Bob

Title: Re: Trigger Article
Post by ave on Jun 6^th, 2003, 2:13pm

It is useless to do a follow-up. Nobody READS the stuff.
Still: here goes.

A list of possible triggers is a waste of time for clusters. For different people there are different triggers. (Alcohol is one for many of us - but not for me; it even helps deaden the pain).

A list of possible triggers meant for migraines may be a waste of time for migraineurs as well: Dr. Ferrari, the Dutch guru of headaches, said in a recent speech that the much maligned chocolate is NOT a trigger for migraines.
Your body feels a migraine some time in advance and you develop a craving for, in this instance, chocolate, he stated. What we think of as a trigger appears to be a signal!

Brian Y, it IS depressing when you think you have some good info to show people and they won't have it. Don't get angry. Absorb the information that has been gioven to YOU.

Be pf!

Title: Re: Trigger Article
Post by oringkid on Jun 6^th, 2003, 7:48pm

I personally don't care one way or the other whether everyone or some or no one decides to stay away from everything on this list.

I'm not going to quit eating or drinking everything that has taste...

Sorry to have thrown a wrench at your monkey.

Sherry

Title: Re: Trigger Article
Post by Ueli on Jun 6^th, 2003, 8:34pm

Of course, ave, read every post you write. :D

That's interesting what Dr, Ferrari said about the alleged chocolate trigger for meegraines. It is completely in line with what Bob P always says: Clusters cause smoking, not the other way round.

Sherry, if you want to eat chalk, there is a guy a bit further down the board who recommends the finest sort: from corrals. And it even helps against CH. ;D

PFNADs
Ueli

Title: Re: Trigger Article
Post by Nathan on Jun 10^th, 2003, 8:43pm

bottom line folks, if you add up all the supposed triggers from all the different lists and neuro's opinions, all we clusterheads have left to do is just lay down and die. (painfully i might add!!) :-X :-[ :'(

btw, my neuro told me excersice would HELP, not trigger. i guess i can go back to bieng a lazy couch potato now huh? ah well.......

Title: Re: Trigger Article
Post by Charlie on Jun 10^th, 2003, 11:28pm

Triggers?

Who knows? I do know, aside form alcohol, there isn't much evidence for them here. Never triggered mine though.

Maybe Okinawan beach coral calcium is a trigger. Only a buck a pill. Yer a card Ueli 8)

Charlie :)

Title: Re: Trigger Article
Post by NewHeadPLZ on Jun 13^th, 2003, 3:17pm

Just because one thing "triggers" your HA, doesn't mean it'll trigger someone elses. Best clue, if it made ur head hurt, that was a trigger for ya. ;D Alcohol triggers mine, some ppl can drink in a cycle. Add Alcohol to my list. Heat triggers mine, put it on MY list.

Everyone's a little different when it comes to this beast.