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        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> some new idea for us sufferers
        
(Message started by: atwitsend on May 16^th, 2003, 12:00pm)

Title: some new idea for us sufferers
Post by atwitsend on May 16^th, 2003, 12:00pm

[center][/center] ??? I have been suffering for 12 years - this is the longest though - 14 weeks - at least 4-6 a day!! times are tuff - saw a new dr says he wants to try a neurostimulator?? or activa therapy ?? anyone ever hear of this at all/ Please let me know I am scheduled for surgery for June 30th.

write to me asap - please i'm at my wits end!!

kcacrec@attbi.com

Title: Re: some new idea for us sufferers
Post by Ted on May 16^th, 2003, 12:09pm

Is the nerve stimulator the nerve vibrator ;) ? One of the ones giving electrical impulses to the nerve through an implanted device? There should be info on it in the archives and probably at OUCH's site too.

Title: Re: some new idea for us sufferers
Post by BobG on May 16^th, 2003, 12:45pm

Are you talking about Occipital Nerve Stimulation?

Go here: click OUCH button on left side of screen.

OUCH/Cluster Help/Research Library/Surgery

Title: Re: some new idea for us sufferers
Post by cathy on May 16^th, 2003, 1:06pm

Atwitsend....do you have a name....??? sorry don't know anything about the nerve stimulator, just wanted to say HI and WELCOME...sorry your having a rough time at the moment, hang in there, keep us posted and good luck with the surgery...

Cathy :)

Title: Re: some new idea for us sufferers
Post by katethecelt on May 16^th, 2003, 1:45pm

Welcome!!!!

I don't have any info on the treatments you are considering, but you have my support and good, warm, vibes.

I'm new to CH & this MB. I do know that the Beast has wicked effects on how one thinks. Don't give up!! Please keep us updated and vent all you need.

Wishing you PFDAN's, Kate

Title: Re: some new idea for us sufferers
Post by cootie on May 16^th, 2003, 1:56pm

atwitsend........welcome.......hey "maybe" if you start a new thread in the general MB post area nameing it neurostimulator theropy" you'll snag onto some more info from someone there.......I keep forgettin to check in here so maybe more do the same and have some info for you...mite be worth a try. Good luck to you !! Not educated in neo anything Pam

Title: Re: some new idea for us sufferers
Post by Margi on May 16^th, 2003, 2:09pm

here you go, Atwitsend - this is the link Bob was giving you, in case you can't get to the OUCH site (I couldn't for awhile today)...

http://www.clusterheadaches.org/library/surgery/occipital_stim.htm

Title: Re: some new idea for us sufferers
Post by Harvey on May 16^th, 2003, 2:42pm

GOOD LUCK may god be with you please keep us posted they seem to keep us guys full of meds or o2, I personally would like to know if this works for you, I am headed for gamma knife myself....good luck HARVEY

Title: Re: some new idea for us sufferers
Post by CJohnson on May 16^th, 2003, 3:15pm

This is lifted from a presentation on Current Concepts in Pain Management from 1998.

We used to believe that destruction of the pathways of pain transmission could alliviate the pain. This has proven to be wrong. Due to the plasticity of our nervous system, the pain relief achieved by neuroablation is always short lived. In pain management, modulation of pain signal transmission is a far better choice than destruction.

-Curtis

Title: Re: some new idea for us sufferers
Post by OneEyeBlind on May 18^th, 2003, 7:36pm

Hang in there bud. Don't know anything about the tx you want to try, but I am sending you good vibes for some relief !!!!!!!