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        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> I am new here!!
        
(Message started by: Shadow on Mar 26^th, 2003, 9:38am)

Title: I am new here!!
Post by Shadow on Mar 26^th, 2003, 9:38am

I have been told that my head pain I get is a Cluster Headaches. I have been reading threw the board and Mine are different some what. I do not get them at night I get them in the day. I guess that is the only thing that is different right now. I sleep good at night. But I get some during the day that just about drop me to my knees.
Does any one else get them in the day and not at night?

This is a good site and I am learning alot by reading it, I am glad I found it.

Thank you
Shadow

Title: Re: I am new here!!
Post by Karla on Mar 26^th, 2003, 10:09am

Welcome Shadow. I used to get 8 ha every day during my waking hours and sleep fine as well. Now I am on medication that prevents my ha. It is not the norm to get them durring the day but it does happen. You are not alone.

Title: Re: I am new here!!
Post by firebrix on Mar 26^th, 2003, 4:08pm

Welcome Shadow!
Sorry you are suffering but glad you found this site.
There's heaps of info here and on the OUCH site. Get y'self a cuppa and prepare for a long and interesting read.
I cannot help you with your questions - but do wish to offer you my support. E mail or IM me if you need any assistance.
BEAUTIFUL name...........Shadow.
Hope you get a break soon, friend
firebrix

Title: Re: I am new here!!
Post by tommyD on Mar 26^th, 2003, 4:29pm

Shadow -

Welcome. there is a lot to learn here.

Try the cluster quiz button on the left, for a little exercise in self diagnosis.

Most clusterheads are more likely to have attacks at night, particularly a short time after going to sleep, when your brain goes into REM sleep mode. But time of day is not a criteria for disgnosing clusters.

There are two key characteristics for telling clusters from other types of headaces.

One is length of attack. An attack that lasts less than five minutes (without treatment) is probably not a cluster attack - most likely it is CPH chronic paroxymal hemicrania. An attack that lasts more than three hours is probably not clusters -- more likely it is migraine.

And a cluster attack hits only one side of your head at any given time. If both sides of your head hurt, it almost certainly is not cluster headache.

Stick around and ask more questions -- there is plenty of help here.

-tommyD

Title: Re: I am new here!!
Post by michaelc on Mar 26^th, 2003, 10:49pm

Welcome Shadow,
I have clusters and mine are almost always during the day ... between 11am and 3pm. Generally 2 ihr attacks per day during clustertime.
I have occasional CH's at night .... but never during sleep.
~michael

Title: Re: I am new here!!
Post by Shadow on Mar 27^th, 2003, 12:00pm

Well thanks to everyone that posted. I have taken the self test and it did say that yes I fit in to the cluster head group.

I have pain on one side of my head that fells like a lightning bolt hitting my brain. Each lightning bolts last for 30 to 50 secs and stops. Normal they will go on and off for about 4 hours and than I get a break. Where I will not have them for hours or days. When I get them they just hit I never know when I am going to get them.
I have not had them at night And am happy about that after reading about getting them at night. I can get a good night sleep(thank god). I get them mostly during the day, people at work don't know what to think.

It is good to have found this site it is helping me out, I now know what CH's are.

Shadow

Title: Re: I am new here!!
Post by clavers on Mar 27^th, 2003, 12:06pm

Welcome Shadow, when I first began having CH l9 years ago they mostly occurred during the day, but as time passed they began to happen more at night, even though I have them during the day also. Just hope that you do not become chronic, which is what happened to me five years ago.

Title: Re: I am new here!!
Post by amber on Mar 27^th, 2003, 1:29pm

hey shadow and welcome :)

50 seconds at a time huh...have you looked into chronic paraxymal hemicrania??? it's a subset of clusters and is easily treated. It acts somewhat like what you are describing....just a thought, but I don't want to give you false hope for a cure as I don't know the rest of your symptoms....

if it is cph, it can be easily helped with a drug called indomethacin. take a browse for it :)

Amber

Title: Re: I am new here!!
Post by amber on Mar 27^th, 2003, 1:30pm

i didn't mean cure, I meant treatment...before I get harped on ;)

Amber

Title: Re: I am new here!!
Post by cathy on Mar 27^th, 2003, 5:53pm

:) Hi Shadow and Welcome, my husband Wes only got hit during the day the first year he had CH, this is his 4th year and he now gets hit day and night when in cycle, which is generally twice a year with each cycle lasting between 6 - 12 weeks.

Cathy ....wishing you all PFDAN's

Title: Re: I am new here!!
Post by Mikey on Mar 27^th, 2003, 11:30pm

Hi ya Shadow, and welcome to our little humble abode.

First, have you seen a Neurologist yet?

What kind of meds did the doc that diagnosed you put you on? Just wondering. Sometimes its hard to get a correct diagnoses, for some of us, it took years to find out what the problem was.

Get a good Neuro that has experience with CH, beleive it or not some don't all that much, and hopefully you'll get some relief with some good meds that hopefully work for you.

Wishing you the best of luck

Mikey, ;D

Title: Re: I am new here!!
Post by Shadow on Apr 3^rd, 2003, 8:56am

Well thanks again to everyone, I have been doing alot of reading and trying to get all the info I can, I am than going to go see my Doctor again with all the info and tell him the meds he gave me are not doing alot. I am going to take him the info That I have found (thanks to all of you) that read the way I fell. Hopefully he can start working with me on this before it get worse. I have not had a MRI or a Cat done yet but I am going to push to have them done in a few weeks.

Thanks again, I will keep everyone informed.

Shadow

Title: Re: I am new here!!
Post by Linda T on Apr 3^rd, 2003, 7:55pm

Hi Shadow and welcome. Just wanted to ditto a few things for you. During my first two cycles I got hit at roughly 7:30 p.m. each night. Each hit could last anywhere from 30 minutes (the good ones) to 3 hours. This one hit per day last roughly 3-4 months. Always got a good night sleep. Did have shadows during the day though.

Third cycle - only during the night and it woke me up at least 2x during the night. Fourth cycle - day and night.

Go figure.

Good luck - Linda T

Title: Re: I am new here!!
Post by Frank on Apr 3^rd, 2003, 10:09pm

I have been haveing them day and night lately. Last week my boss walked into my office about 10am while I was breathing the O2. I was polite and offered him some. :)

Title: Re: I am new here!!
Post by Shadow on Apr 4^th, 2003, 9:24am

A few of you have asked what meds, I am taking will I remember to bring in the bottle an I am taking Naproxen Sod 550mg. They do not fell like they are doing anything. I am plaing on going back to the doctor in a few weeks I am getting as much info as I can On CHP, After doing some read and looking it up (thanks to some great people on this site) I think that is more in line with what I have. They have not gone away but not have been as painfully eather. I hope the doctor will help me more this time around. I am going to ask him for an MRI this time around.

Thanks again.
Chad

Title: Re: I am new here!!
Post by BobG on Apr 4^th, 2003, 9:58am

Hey Chad,
IMHO, I have to agree with amber and your statement that you may be suffering from CHP rather than clusters.