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Title: This WORKS, No Drugs, No Doctors, No Shrooms Post by terrylch on Feb 11th, 2003, 1:37am I have spent many hours reading the posts and replies on this website. I have come to the conclusion: old timers give anyone who claims to be able to prevent them, a very bad time. The board regulars seem to be experts on drugs and mushrooms. I can understand why there are no (cured) sufferers among you. Any one who has figured out how to prevent the headaches, doesn't return to this site, after being ridiculed and told they don't have CH?? I have decided to post this (one time only) for the new readers and for the readers who have an open mind, which eliminates most of you. The following will NOT cost you a dime. No doctors. No drugs. Takes 3-5 minutes. You can do it driving down the road. This works for me and a few others I have talked to. It might not work for everyone, but you should at least give it a try. Don't badmouth it till you try it !! If it doesn't work you haven't lost anything. The following is what I have done for over 42 years. It stops them before they get started in each cycle. When you can stop the first attack of the cycle the remainder are less severe or do not happen. My headaches are on the right side. I am not sure what I would do if they were on the left side. But I sure would try the same method, on the other side of my neck. I have learned to control them (prevent them) by using pressure on the back of my neck (see added statement below) at the first sign (I strongly repeat) AT THE FIRST SIGN of one coming on. I hold the pressure with the tips of my fingers until it dissapears. This usually takes 3 minutes. I have recently learned another version of this from reading the archived posts. I now use a combination of the two. I tip my head to the side opposite the pain side. This stretches the muscles, nerves, blood vessel, and whatever else runs up that side of my neck. While stretching I turn my head from side to side while rubbing and putting pressure on the (not sure what) which runs up the back side of my neck ( the side that is being stretched). In most cases the headache should dissappear as fast as it came on. I believe the most important part of this is to do it immediately upon any sign of the beast. I would appreciate not getting badmouthed for trying to help. If you try this faithfully and do not get any relief, feel free to say so, but don't knock it till you have tried it. All of you who work for the drug companies can stick your foul comments up your ass. Good luck to those who it might help. sincerely, terry Added 2/21/03 To clear up the question of what is under the area I put the pressure on?? I really have no idea. From the books and internet pictures I have found, there are small blood vessels and lots of nerves. There is a good chance it is the nerves as the spot is near my spinal column. I am not a doctor and have never worried about what was there as long as it worked. The area is a lump which I have always assumed is a muscle that starts at the side of my spinal column and runs up benind my ear. I put the pressure on the lower portion of this lump (just above my shoulder). It seems to help to massage this same spot while tipping my head the opposite direction to stretch whatever is there. If you try it, do so at the first indication of the headache. Do not wait until it is full blown. I hope this helps. terry |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Karla on Feb 11th, 2003, 8:29am Terry I have tried this and have found it to temporarily relieve the pain but not to abort a headache. It is also a very dangerous technique to master. You risk passing out and cutting blood flow off to the brain if you don't do it correctly. It has been mentioned here before by a couple other people as being a helpfull way to deal with ch. |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Bob P on Feb 11th, 2003, 9:08am Quote:
Very interesting, especially since the carotid and jugular run up the side of the neck and there are no veins in the back of the neck. http://www.ama-assn.org/ama/pub/category/7152.html |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Marc on Feb 11th, 2003, 12:35pm I wonder if Terry is describing putting pressure on the Trigeminal nerve bundle. - Many of us get a lump there - I apply ice to that location - I have found that I turn my head to stretch my neck before an attack - my wife usually spots me doing it before I even realize it. I've never tried pressing there before the pain ramps up, but I know it hurts like hell during one. Marc |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by jmorgan52 on Feb 13th, 2003, 2:50am Hey Terry Stick around. While I agree with you that most non-drug or mushroom related therapies get a bad press around here, at least the board readers get to see the alternative ideas and theories and can take or leave them as they require, and the flamers can feel free to climb in and attack and try and presuade the readers you are talking absolute crap. Just aquire a thick skin. 8) I am hoping that my own personal "cure" therapy works long term. It has had stacks of bad press here, and lots of flaming, but I have had a few personal messages posted from people who were committed enough and tried it out with some success. But I am sticking around just in case it is not the answer ;) I too am sick of taking drugs for this affliction. To those followers here of Doc Goadsby and his hypothalmus theories, well you are entitled to your opinion and may well be proven correct in the fullness of time, but IMHO no-one on this planet yet has a definitive proof of the cause of CH, let alone a cure. Keep looking. In the last 30 years I have tried pressing and massaging every concievable part of my head, neck, and back to stop a CH. I have tried the ice packs, hot packs, vigourous exercise, jumping into a freezing cold swimming pool, you name it. None of this really helped me. Only thing ever to bring relief was the imigran injection. But go figure, this does not work for lots of guys, and stuff guys swear by here like Maxalt does nothing for me. So horses for courses. I'm really glad your method works for you. I am seeking a drug free method to PREVENT the CH cycles, and think I may have the answer. I am sure you guys all know what that is, so I won't bother repeating it here. :-X John |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Flash on Feb 16th, 2003, 2:46pm If something like that worked for us all then we'd have found it by now. I have rubbed, pressed, massaged, banged head etc and none of it ever did me any good. I'm glad it works for you, but doubt if it's the way forward for the rest of us. Flash |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by das on Feb 17th, 2003, 9:45am Every time I've tried something that has worked for me, I have always naively thought that finally I had been cured! At this point, I am not sure if that is possible. The best I can hope for now is temporary relief of 1 or 2 years at a time. I have come to realize that CH has a mind of its own and it can eventually find its way around preventative measures. That's just my opinion. Just by reading posts on this board, it is evident that everybody's individual body chemistry has different ways of reacting to all the different treatments that are available. How else can you expalin the facts that some people get hit on the left, other on the right. What works for one person doesn't for another. etc. etc. etc........ Recently I posted asking people about stress as a trigger, expecting (naively again) that many people would reply that like me it was. Of course, more people said that stress was almost helpful(?) and that when they had gone through a stressful situation, the CH would hit them only after the situation had ended. All I am saying is that the puspose of this board to me is just to be among people that can empathize with you not cure you. No one here has the cure becuase if they did, the board would not exist. We would all be cured. |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by jmorgan52 on Feb 18th, 2003, 12:45am Hi Das I agree with you whole heartedly. As I said I currently believe I have the answer to preventing CH but only many years will tell. I have been posting my method on and off for the past year. I am really hoping iy is a "cure" (for me at least), but the hard part is getting people to buy into the method, which for me is to do a total liver detoxification every 3 months to elliminate toxins. It is not easy and requires immense will power and a change in life style. This is probably the main reason most are unwilling to give it a try and would rather look to the pharmaceutical industry for the answer. John |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Bob P on Feb 18th, 2003, 9:09am Quote:
I think the main reason is that they believe that CH is a genetic condition related to the hypothalamus and detoxing has nothing to do with CH. If they thought a lifestyle change would help stop the pain, I'm sure they would do it. |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by jmorgan52 on Feb 18th, 2003, 9:38am So Bob - its all about beliefs and what people think then. You are almost certainly right there. My own beliefs on this subject have changed over time. I have tried to be more open minded about alternatives to drugs. Right now I don't buy into the hypothalmus "theory" and it being "genetic". God bless Goadsby and co for fighting for the cause though, and they may well be absolutely correct. IMHO what they are seeing in the hypothalmus may well be just the symptom, not the cause of CH. I have also been very grateful for Imigran Injections these past 9 years, as I had to just ride out every single CH before they were around, but I feel there has to be a better, simpler, less dangerous (and much cheaper) way. I do know for a fact that I am currently enjoying exeptionally good health for longer than I can remember having done in the past. I don't feel stressed, but am constanlty under the same pressures as I have always been, I sleep better and wake refreshed when I used to be tired in the morning. My blood pressure is just about back to normal and I have not had so much as a even a cold, let alone a headache for the past 10 months now, while all around had been hit by bugs. I have also lost quite a bit of weight (still a bit overweight though ;D ) so I reckon I must be doing something right (for me). It is all about believing I am right until proven otherwise. I have offered to eat humble pie big time to this board if my theory fails me in the next few years, but at least I have some hope right now and have been willing to give it a shot. I have nothing to lose (except for the effort required) and everything to gain. John |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Bob P on Feb 18th, 2003, 11:24am John, I sure can't say anything against living a clean and healthy lifestyle. It can only help. I'm sure the psychological well being that comes from it can only help also. I'm not poo pooing your beliefs. I respect the fact that you are entitled to them just as you respect others right to not believe in them. It's really all about acceptance. You've found something that you believe works for you. You've shared that belief with the others here. It's up to them to embrace that belief or discard it. Either way it should be no skin off your nose. You've done your part. I hope your sytem continues to work for you. No pain is everyones gain. |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by terrylch on Feb 18th, 2003, 7:53pm John, I am sure your method will make anyone healthier and feel better but CH seem to be associated with one side of hte head or the other (not both at the same time). I believe the cause of CH is something that affects the nerves, blood vessels, node vessels, or whatever that just serve the one side of the head. I wish you well with your plan. I also appreciate hearing it is working. Sometimes one needs to have faith in their beliefs for them to work. I think this site should be more appreciative of any idea that might help or that is working for anyone. terry |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by gtar_man on Feb 20th, 2003, 8:10am Yo, John - how does one go about doing a total liver detox? I'll try ANYTHING, once, conventional OR bizzarro... Mike |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by jmorgan52 on Feb 20th, 2003, 8:33am Mike I am sending you an email to try and explain what I do. I have posted several times on this previously and do not really want more flaming right now. John |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by deadheadrob on Feb 20th, 2003, 7:11pm Excellent! I'm right sided and learned that massaging the large artery in my neck would lessen the pain and length of attacks. Only would delay them until night time though when it's nearly impossible to abort them. I like to keep the worst attack for when I'm awake and could do something about it. That meant staying up all nite, but doing computer work it was possible. For the last 2-1/2 years i've been virtually ha free due to the correct use of LSD. Was 20 years chronic til that point. Now if I feel a twinge or a shadowy feeling I just massage that artery and good-bye. Sometimes I do have to use a cafergot due to sensitivity to chemicals-BUT NO CYCLES AT ALL- thanx for the reinforcement of natural relief methods. I've found all kinds of natural triggers also though- high altitude, low pressure systems, light cycles(i.e: too much light or dark) and sleep patterns. Oh!- be careful if you mention to your doc you get relief from massaging your neck- he might suggest a lidocaine injection or nerve block in your neck. I have to go to the VA and don't want to be a guinea pig any longer. |
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Title: Re: Change in wording Post by terrylch on Feb 21st, 2003, 5:53am To all, After further study, it appears there are no major veins in the area I put the pressure on. There are a lot of nerves there though. I have added a paragraph to the original post, to try to clear up the location of the pressure point. I am thinking, this method has not worked for many of the people that claim to have tried it, because they waited till they had a full blown cluster before applying the pressure. (maybe) again, just trying to be helpful, terry |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Pinkfloyd on Feb 21st, 2003, 6:40pm on 02/18/03 at 19:53:02, terrylch wrote:
This is the basis for all "placebo effect" temporary "cures." Anything under a 20-30% effective rate for a group can usually attributed to a mind over matter, placebo effect. I hope your method continues to give you and anyone that gives it a legitimate try, continued success. Success in "life with clusters" isn't necessarily measured in cure rate but in bringing someone enough pain free time, and hope, to go on living. on 02/18/03 at 19:53:02, terrylch wrote:
It would be nice but...this is reality ya know, and not a fantasy site. I think most ideas are accepted but in reality, people here have been trying *anything* for YEARS, and in many cases have tried every idea put forth with negative results. This will lead to negative remarks. many people have experienced the placebo effect first hand and have settled into what they have the best success with and will rely upon that method until medical science comes up with something better and can *prove* it. OTOH, don't feel too bad.....707 people to date have tried the "water" method, acheiving no help at all,and that has its own button! 8) If enough people give your method a try and 10% of them show some relief, you (and mr. morgan) too may get a button. :P |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Pinkfloyd on Feb 21st, 2003, 6:55pm on 02/18/03 at 09:09:19, Bob P wrote:
Not necessarily Bob. 77% haven't tried quitting smoking. 59% haven't tried changing their diet. 56% haven't even tried stopping drinking. I think we (at least some of us) search just as hard sometimes to find a reason *not* to change our lifestyle. It probably has something to do with not wanting to give in any more than we already have, to this destructive disease. BobW |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by jmorgan52 on Feb 22nd, 2003, 5:28am nice stats BobW Is this some sign of encouragement for me and my method? ;D Some big sacrifices may well be needed to beat this bastard. John |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by terrylch on Mar 7th, 2003, 3:48am To all, It looks like you were right. :o Evidently my pressure idea hasn't helped anyone but me. I apologize for taking up space on your board. I had good intentions and the price of the treatment was right. This doesn't mean I am going to stop using my "placebo" method. I will just do it in silence from now on (maybe another 40 years). :-X I wish you all well, and may God be with you, terry |
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Title: BobW Post by Bob P on Mar 7th, 2003, 9:42am Where did those stats come from? And, of those who did try quitting smoking, drinking, changing diet - how many did it help? |
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Title: Re: BobW Post by Ted on Mar 7th, 2003, 10:14am on 03/07/03 at 09:42:20, Bob P wrote:
73% of us can't figure out where those stats come from either. |
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Title: Re: BobW Post by Dave_W on Mar 7th, 2003, 1:04pm on 03/07/03 at 10:14:38, Ted wrote:
93.451% of all statistics are made up on the spot. ;D ;D Thanks for the chuckle, Ted-ola! I needed one just now. To Terrylch (is that Russian?), hang in there, bro. Thanks for the post -- it's not for me but hey, neither is a hot chicken-broth enema.... Pain Free Days, Dudes and Dudettes of the ClusterBoard!!!!! Your Old Decrepit Friend |
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Title: Re: BobW Post by Pinkfloyd on Mar 7th, 2003, 3:20pm on 03/07/03 at 09:42:20, Bob P wrote:
I dug very deep into the bowels of the WWW using my "boggle" search engine and found them in a very obscure site..... ;D http://www.clusterheadaches.com/cgi-bin/meds.cgi You can find the answers to your followup questions there also. Its a little confusing (not to complain or anything) because the percentages listed are skewed by including all the people that *didn't* try each medication/treatment listed. So, when it shows that something helped 10% of the respondents, it's very misleading IMHO. You need to subtract all the people that didn't try it and come up with the correct percentage of people that were helped, that actually *tried* something. Four out of five dentists agree, that 63% of the people reading this will disagree with me, but I've been told that 100% of the people that don't read this *would* agree, if only they knew. BobW |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Bob P on Mar 7th, 2003, 5:33pm And, the ones who said they were helped by these treatments, be they small in number, are probably meegrainers who are here under the misconception that they have CPH. |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by eggie on Mar 10th, 2003, 10:10pm ;)well if his cure dose not work. i got one and it's works every time %100 Get a bubber hammer . guess what you do with it. only a ture cluster head would know :o |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Pinkfloyd on Mar 11th, 2003, 12:54am on 03/10/03 at 22:10:44, eggie wrote:
Guess I don't have clusters then but I wish I did so I could cure them with a bubber hammer. You clusterheads are so lucky to have a cure! Damn. BobW |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Flash on Mar 12th, 2003, 12:10pm I shoved my bubbler hammer up my MD's arse and guess what no clusters for over 40 years... Can I join the club now? Interestingly I have been getting 1-2 shadows a week (always in the early hours) for the past month. Still drinking like a fish though - lots of red wine. It's about 19-20 months since I last dosed so that is fuckin incredible going. The last actual episode that I suffered was Oct 2000 (I think - it's so long ago I'd have to check up my posts from way back). That one only lasted about a week before I aborted it but it was REALLY sore. Last time I was in this condition I shadowed infrequently for over 6 months before the bastard finally broke through. I personally believe that streching the time between shroom doses may be a way of artificially extending the gaps between episodes. Doubt if that's a permanent effect though... I'm sure that if I ceased dosing then I'd eventually get hit for 1 month in 6 again. FYI I heard that they are using similar techniques for dealing with HIV. They are putting patients on vacations from the drugs in order to get their immune system more conditioned to the disease. Anyhow I've figured out what's going to happen. Poor old TerryLCH is gone from this board another 40 years, and then some scientist proves that CH is caused by lack of neck massaging... If only we'd listened. Doh. In support of this, several emminet clusterheads have previously reported that fondling the genital area at least provides a small drop in intensity until... hmm better not go there or Margi will join the thread - I know that she's also a firm advocate of that technique :) The other problem is it's making me go blind because I keep forgetting to don the safety goggles. Also I'm such a lousy lay that even my own hand goes to sleep on me. Enough! Time to go home. Flash |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by terrylch on Mar 12th, 2003, 2:15pm Flash, Seeking JESUS might do you more good than jerking off or shrooms. |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by Flash on Mar 13th, 2003, 5:14am Why - will he lend a helping hand? Flash |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by terrylch on May 13th, 2003, 5:53am bump (for the newby's) Hello all, The board looks like it has calmed down a bit since I last visited. I was pleased to see the post by Debby titled "I Strangle Myself" terry |
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Title: Re: This WORKS, No Drugs, No Doctors, No Shrooms Post by jdownes on May 13th, 2003, 8:51am terry I have gotten some pain relief from massaging my neck on same side as headache pain. I have not done everything as you described, so will try next time(stretching neck, etc.). the pain relief i get is a couple of kip levels - if i am at 10 and doing O2, my wife will do the massaging so I can hold onto mask, an it'll drop to an 8 (almost immediately). i have yet to try at early warnings, but am willing to try anything that is meds free. thanks for posting what works for you. jeff |
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