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Title: Very important research... Post by Riccardo on Jan 16th, 2003, 2:55am In Turin (my home) a DNA research on the CHers has been started . This research is in collaboration with the Neuroscience Tanz Institute, Università of Toronto, Canada. They are seeking CH patients to do genetic researchs and (perhaps...next year) to lay the CH genetics characteristics on the complete human genome. This is doing also by Doc. Goadsby with the Leicester University (another one study). May be that, in the near future, we can define if our children will suffer from CH or not, to adjust the meds taken, and more far..... to find an "universal" cure for the CH. Our OUCH Italia people are "scheduled" for a blood test here in Turin, to lay out the DNA characteristics. I will update you as soon as possible Ciao friends |
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Title: Re: Very important research... Post by Karla on Jan 16th, 2003, 8:55am Thank you so much Ricardo for the wonderful news. This is very exciting. Be sure to thank OUCH Italia members for helping in this study and paving the way for the rest of us. Hopefully this will lead to some discovery and more information about us. |
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Title: Re: Very important research... Post by Margi on Jan 16th, 2003, 9:58am That's awesome, Riccardo - good for you!! You think they'll find that extra sex drive gene that Davide (or was it Sten?) insists is there? ;) |
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Title: [i][/i] :DRe: Very important research... Post by cleon on Jan 17th, 2003, 9:33am Thats great news - we need it in Aussie too. Wonder how long that will take!? |
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Title: Re: Very important research... Post by Riccardo on Jan 17th, 2003, 9:38am hmmm Cleon... i think that the measurement is in years, but.....better than nothing.... The DNA researches take long time and so much money..... Ciao |
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Title: Re: Very important research... Post by Bob P on Jan 17th, 2003, 11:17am Outstanding! It may take a while to complete this research but I think that when it is finished we will finally be able to say, I have clusters because ...... If you can get any information on this project Riccardo, please send it to me so I can post it on the OUCH Research page. And, thanks for shedding blood for the rest of us clusterheads. |
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Title: Re: Very important research... Post by firebrix on Jan 17th, 2003, 3:49pm This is good news Riccardo! Please keep us updated. Thank you for sharing this and also for taking part. This is a major step in understanding CH. firebrix |
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Title: Re: Very important research... Post by domm on Jan 18th, 2003, 11:31am Riccardo - tremendous undertaking !!! Is something being done in the US? anyone know? I'd be happy to participate. domm |
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Title: Re: Very important research... Post by Margi on Jan 22nd, 2003, 11:37am Riccardo, the following was in our morning paper...is this the same study that you're involved with (only this one is migraine)? "Two Italian scientists have discovered a gene liked to migraines, which could pave the way to banishing all headaches. The research of geneticist Giorgio Casari and neurscientist, Roberto Marconi, appeared yesterday in the online journal Nature Genetics. The gene causes a malfunction of the pump which shifts sodium and potassium through cells. Mutant cells were swollen, leading to the pain, flashing lights and tingling sensation that debilitates "aura" sufferers. "The chromosome is so well researched, it will not be difficult or take long to find a therapy for it," Casari said. This study was done in Milan, Riccardo - but I'm wondering if the two studies are linked. Even though this is for migraine, it's still encouraging from a research point of view for clusterheads. |
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Title: Re: Very important research... Post by Riccardo on Jan 22nd, 2003, 11:52am No, it's not the same and....sadly.... these are news not too correct... The gene has been identified ONLY for a particular, ultra rare kind of headache....... all the rest..... journalists.... For "OUR" research, we have to wait a minimum of a couple of years...... |
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Title: Re: Very important research... Post by Margi on Jan 22nd, 2003, 11:57am Rats. :( I found the connection to the sodium and potassium interesting though. Potassium deficiency has been discussed here before, in relation to clusterheads. And the Water Water Water treatment that Doc Jerry brought us years ago, addressed the possibility of an overabundance of salts in your systems... What do you mean 'ultra rare kind of headaches', Riccardo. Is this study I mentioned NOT about migraines? |
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Title: Re: Very important research... Post by Riccardo on Jan 23rd, 2003, 3:37am Sorry Margi, I made a mistake (In Italy the names migraine and headaches are practically for the same diseases): The exact gene discovered is about hemiplegic familiar migraine. Is, anyway, very very rare. But yes, agree on your WWW (we have a couple of people that do this and get a high relief) sodium and potassium deficiency Ciao Marghee |
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Title: Re: Very important research... Post by ZAIRA on Feb 3rd, 2003, 2:32pm The 31/01 I was in Torino/Turin for a test. I believe very much in this research :) and I hope it brings some good results :D... if not for us I hope for our kids... than I yet don’t have ;D... Ciao, Zaira :-* |
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