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        New Message Board Archives >> Medications, Treatments, Therapies 2003 >> Meds working?
        
(Message started by: tgz23 on Jan 10^th, 2003, 8:48pm)

Title: Meds working?
Post by tgz23 on Jan 10^th, 2003, 8:48pm

I got in to see my neuro (only took a week, there is a normal 2 month wait, lucky me). She took me off of a couple of meds my general practictioner had me on and upped my Verapamil from 240 mg a day to 340. From what I read on the site this is still a little lower than what some of you take. I've had CH's for over 20 years it took about 10 of them years to figure out what I had until I finally saw the right Dr. My question is different things work for different people and I have two CH's a day usually about 5 hours after i wake up or about 5 hours after I go to bed. People on the site will say for example Verapamil works for them do they mean no CH's? Or does it mean like in my case instead of having two daily I would have more. I was at a point where I did have 4 or 5 a day. I hope you understand my rambling. I had a bad morning today. Tim

Title: Re: Meds working?
Post by domm on Jan 10^th, 2003, 10:32pm

Hey tgz - I had to up my vera until the HAs disappeared completely. Adjusting the dosage took an extra few days, but the first totally PFDAN is well worth it.
Glad to hear you're having some success. Keep at it and work the dose up (with consultation from your doc) until the pain is gone. Then, stay there.
Hang tough
domm

Title: Re: Meds working?
Post by Svenn on Jan 11^th, 2003, 6:27am

I just wont to add my medications for breaking out of cycle.But remember that i`m not a doc,just another clusterhead from Norway

Verapamil Retard 120mgX5-7/daily during cycle
Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few secons after that you are almost painfree
Prednisolone in high doze for 10 days 80mg
then over a 3 weeks periode step down like 60-40-30-20-10-5mg /daily

This is the miraclecure for me,but i`m not a doc.just another clusterhead from Norway

Title: Re: Meds working?
Post by K bogo on Jan 11^th, 2003, 8:25am

I was also taking the 240mg of Verapamil - it cut down on the severity and number of Clusters. I still had plenty of shadows and pain up to Kip 5's. Then I went to 300mgs of sustained release, (I too have a 2 month wait for the doc) but by the time this kicked in, my clusters were already going away on their own. It appears many people here are pain free after upping the Verapamil to much higher doses. There are also many people on a combo of treatments. I guess some clusters are more stubborn than others! I am hoping to succeed next season on an upped dose of Verapamil alone.
Kim