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        New Message Board Archives >> Medications, Treatments, Therapies 2002 >> An update to The EA Experience
        
(Message started by: eyes_afire on Sep 23^rd, 2002, 5:15pm)

Title: An update to The EA Experience
Post by eyes_afire on Sep 23^rd, 2002, 5:15pm

This is an update to my previous post 'Shrooms: The EA Experience'

I'm still dosing weekly. Over the past 11 days I have only experienced 2 relatively mild CH attacks. I'm still getting strong shadows, so I don't think the cycle is over but I hope that it is finally diminishing. But I don't want to get my hopes too high only to be disappointed. Previously my cycles were 6 or 7 months, but this one has lasted for a year. Of course, I can't say definitively that shrooms have brought about this turn of events... I have no scientific proof. However, I do believe that the shroom therapy is working, otherwise I would have never survived the past 2 months without any verapamil or imitrex.

Title: Re: An update to The EA Experience
Post by 2late on Sep 23^rd, 2002, 5:39pm

thank's for the update eyes, been wonderin' how that's workin' out, glad your gettin' some relief & with no trex, bonus! good luck eyes! ............2late

Title: Re: An update to The EA Experience
Post by eyes_afire on Oct 4^th, 2002, 8:33pm

My CH situation continues to improve. I haven't had any CH attacks since Sept 23. I still get shadows often, so I think that the shrooms haven't completely ended my cycle, but I think they are supressing the pain. I will now try to stretch out my dosing. I'll be skipping this evening's dose to see what happens.

Title: Re: An update to The EA Experience
Post by Mitch on Oct 5^th, 2002, 11:41pm

Hey Eyes,

Glad to hear your plan of action seems to be paying off.
I hope the shadows will taper off soon.

Shrooms are working for me as well. The last dose I took to try and alleviate the shadows seems to have done the trick. Just a couple of twinges in my temple in the last week. I have a cold right now and I usually get nailed bad when I'm sick.

Take care,
Mitch

Title: Re: An update to The EA Experience
Post by eyes_afire on Oct 6^th, 2002, 8:37pm

Damn. A slight set-back. I spoke too soon ::). Woke up at 3:30 am with my first CH since Sept 23. Had to re-dose. Damn.

Title: Re: An update to The EA Experience
Post by gtar_man on Oct 7^th, 2002, 3:52pm

Eyes - I hear ya. I dosed this past weekend but was on Topamax (yak!) at the time and I think it messed up the benefit. I'm offa that crap, I can tell ya...
It appears that we chronics are just destined to hurt!

Title: Re: An update to The EA Experience
Post by rick on Oct 8^th, 2002, 12:51am

Eyes-

It's been five weeks since I had an attack. I dosed a day after I got hit and have been fine ever since.

I've been able to stretch out my dosing to once a month. And I don't dose until the symptoms return. Hopefully I'll make it until next February or March until I need some "maintenance".

Glad to hear you are improving, brother!

-R