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        New Message Board Archives >> Medications, Treatments, Therapies 2002 >> Nothing is working - Sansert?
        
(Message started by: williamsmh on Jul 30^th, 2002, 3:16pm)

Title: Nothing is working - Sansert?
Post by williamsmh on Jul 30^th, 2002, 3:16pm

Well... I had a DHE infusion last Thursday and the headaches started back on Saturday. I had 3 clusters yesterday... the last one being a scream and roll around on the floor one. I took imitrex nasal spray (because I had already taken 2 injections that day - and I'm trying to conserve). It did nothing... So an hour later I finally injected and it went away. I was fried though... 4 doses of imitrex in one day was a new high for me (3 injections and 1 nasal).

So... Spoke to my neuro today.. they are running out of options... So far prednasone has been the only preventative that has worked, but I was on it for 3 months and he won't put me back on it.

So... the next trial is sansert. I read all the stuff about kidney failure, fibrosis of the lungs, etc. But wanted to get a real life story.

Any one try Sansert? Did it work? What were your side effects? Did you have to go off of it because of kidney issues or fibrosis?

Thanks! Mark

P.S. I am Chronic.

Title: Re: Nothing is working - Sansert?
Post by Slammy on Jul 30^th, 2002, 3:27pm

Mark,

I take it that Verapamil did not work for you? It is the only preventative that seems to work for me. I, too, was on prednisone and Sansert....

The only thing that Sansert did for me was change my outlook on things.... Maybe others had better success with it. I did not. Good Luck!

Slammy 8)

Title: Re: Nothing is working - Sansert?
Post by williamsmh on Jul 30^th, 2002, 3:38pm

Unfortunately Verapamil did not work....

I've tried:
verapamil
neurontin
depacote
paxil
prozac
lithium
celebrex
inderal
prednisone
Bellergal
Elavil
Nimotop
and a whole bunch of others that I can't remember their names!

Prednasone is the only one that has ever worked
And Imitrex injections are the only abortives that really work for me.

Mark

Title: Re: Nothing is working - Sansert?
Post by Svenn on Jul 30^th, 2002, 4:41pm

Verapamil Retard 120mgX5-7/daily during cycle
Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few secons after that you are almost painfree
Prednisolone in high doze for 10 days 80mg
then over a 3 weeks periode step down like 60-40-30-20-10-5mg /daily

This is the miraclecure for me,but i`m not a doc.just another clusterhead from Norway

Take care my friend

Svenn

Title: Re: Nothing is working - Sansert?
Post by Tom on Jul 30^th, 2002, 5:48pm

Hi Mark,

methysergide (Sansert®) is not an option for a chronic at all !

A MD can prescribe it/a patient take it for a maximum of 6 months - after that time heavy side effects will show up earlier or later inevitably.

ATB! Thomas

Title: Re: Nothing is working - Sansert?
Post by williamsmh on Jul 30^th, 2002, 7:50pm

My neuro is saying 6 months on, 2 months off w/ prednasone, 6 months on, etc. etc. etc.

Something has to stop these things!

Mark