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        New Message Board Archives >> Medications, Treatments, Therapies 2002 >> this is insanity
        
(Message started by: kari on Jul 22^nd, 2002, 11:14am)

Title: this is insanity
Post by kari on Jul 22^nd, 2002, 11:14am

attack after attack after attack at the highest levels.
how do we sustain? i dont understand how i keep coming back

Title: Re: this is insanity
Post by NotH20 on Jul 22^nd, 2002, 11:45am

Man oh man Kari - sounds like you are not finding any relief whatsoever! :-/ I'm not sure of the list of meds that you are on, but it sounds like you obviously need some sort of change in your combo.

Are you going to the best neuro in your area? If not, check the OUCH site for a listing of preferred docs - maybe there is one listed that could help you.

I'm sorry that I don't have any magic answers for you. These ch's are such a nasty devil and they take so much away from us - mentally, physically and emotionally. You must stay strong though and not allow it to win.

Keep the faith,
NotH20

Title: Re: this is insanity
Post by mobetta on Jul 22^nd, 2002, 9:01pm

kari
wish i could help you i totally understand what your going thru
if you have a good doctor he can try a cocktail on you and try to break the attacks
good luck

Title: Re: this is insanity
Post by rick on Jul 23^rd, 2002, 1:28am

Kari,

Keep fighting girl, I know how horrible it is, but do not surrender to this thing. Don't ever let "it" win. Keep reading and learning.

You are in my prayers,

-Rick

Title: Re: this is insanity
Post by Lorsman on Jul 24^th, 2002, 2:23pm

Kari,

Please, find yourself a neurologist that will take aggressive action. If your taking narcotics, then stop them as soon as you can. Trust me, I have had clusters for over 30 years now, and the narcotics actually actually made them worse in the long run. Great prevenatives like O2, verapamil and ergotamine are used now as well as other avenues. I sense you cant take much more. I think we all have been there with these monsters. I had gotten to the point at one time,, of bawling my eyes out,, and pounding on my head for relief. I do feel for you.

If worse, comes to worse,, have the doctor admit you to the hospital for pain control and physical therapy. Yes,, physical therapy to relieve neck and trapezius pain helps considerably. Please hang in there, for this to shall pass Kari.

Kevin....

Title: Re: this is insanity
Post by Svenn on Jul 24^th, 2002, 4:31pm

Verapamil Retard 120mgX5-7/daily during cycle
Oxygene alone at 10ltm for 15 minutes or combined with imitrex-shots does miracles.The shots should start working in 6-9minutes.a few secons after that you are almost painfree
Prednisolone in high doze for 10 days 80mg
then over a 3 weeks periode step down like 60-40-30-20-10-5mg /daily

This is the miraclecure for me,but i`m not a doc.just another clusterhead from Norway

Take care my friend

Your Friend Svenn