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Title: I'm wonder if anything works for long Post by mustang on Jun 27th, 2002, 5:23pm After being chronic for so many years I really wonder if anything reall works. It seem's are bodies get immune to all the meds, like we are not supposed to get relief for long. Does anyone else think this way? |
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Title: Re: I'm wonder if anything works for long Post by nancyc on Jun 27th, 2002, 7:48pm i became immune to verap...then i had so many side effects from seizure meds that took me off them cause i got suicidal...nothing has worked for me but imitrex and they are limiting those bigtime to keep me from having a heart attack....i give up...nothing works for me...what do we do now, sis? praying this doc i am going to on tuesday has an answer...he is a neurologist that also specializes in pain management...Could someone please remove my hypothalamus? LOL.....praying you find pain relief soon, sis..smiles,nancyc |
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Title: Re: I'm wonder if anything works for long Post by maria on Jun 27th, 2002, 9:04pm Hang in there Nancy, There is a new drug just coming on the market shortly called Frova, which has an effect on the vessels of the brain, but does not affect the coronary veins. Thus not the risk of CVA. It also has a half life of 26 hours which I believe is 4x the imitrex. Hope you are OK, Maria |
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Title: Re: I'm wonder if anything works for long Post by nancyc on Jun 27th, 2002, 11:44pm Thanks, sis...hangin in here waiting on that miracle drug..smiles,nancyc |
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Title: Re: I'm wonder if anything works for long Post by rick on Jun 28th, 2002, 2:18am Nancy, Were you ever able to give Aricept a try? -Rick |
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Title: Re: I'm wonder if anything works for long Post by simpson1974 on Jun 28th, 2002, 8:17am I'm not chronic, but I have had to look for new meds the last three cycles. Verapamil, Neurontin, and even Prednisone all stopped working for me. Depakote has this cycle under control, but I'm wondering where I'll go for the next cycle, because if history repeats itself, it won't work next time. Sometimes I wonder, too, if my meds worked or if my cycle just ended... you never really know with these things. |
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Title: Re: I'm wonder if anything works for long Post by nancyc on Jun 28th, 2002, 9:04am Rick, my superwoman neuro gave up after four meds....completely forgot she promised to try me on aricept.. I get really frustrated with neuros...if they can't cure you in a few months, they are ready to hit the highway, it seems...smiles,nancyc |
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Title: Re: I'm wonder if anything works for long Post by Pinkfloyd on Jun 28th, 2002, 9:17am on 06/27/02 at 21:04:13, maria wrote:
Frova is available now Pink (the other one) |
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Title: Re: I'm wonder if anything works for long Post by maria on Jun 28th, 2002, 9:54am Oops, I had a senior moment there I meant frova does not affect the coronary vessels, thus less risk of having a heart attack, not CVA. Maria :-[ |
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Title: Re: I'm wonder if anything works for long Post by Bob P on Jun 28th, 2002, 10:09am From the Frova insert: PRECAUTIONS General: As with other 5-HT1 agonists, sensations of pain, tightness, pressure and heaviness have been reported in the chest, throat, neck and jaw after treatment with FROVA. These events have not been associated with arrhythmias or ischemic ECG changes in clinical trials with FROVA. Because 5-HT1 agonists may cause coronary vasospasm, patients who experience signs or symptoms suggestive of angina following dosing should be evaluated for the presence of CAD. Patients shown to have CAD and those with Prinzmetal’s variant angina should not receive 5-HT1 agonists (see CONTRAINDICATIONS). Patients who experience other symptoms or signs suggestive of decreased arterial flow, such as ischemic bowel syndrome or Raynaud’s syndrome following the use of any 5-HT1 agonist are candidates for further evaluation. If a patient has no response for the first migraine attack treated with FROVA, the diagnosis of migraine should be reconsidered before frovatriptan is administered to treat any subsequent attacks. |
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