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        New Message Board Archives >> Medications, Treatments, Therapies 2002 >> Thoughts on possible links..
        
(Message started by: Tully on Jun 20^th, 2002, 1:01am)

Title: Thoughts on possible links..
Post by Tully on Jun 20^th, 2002, 1:01am

Hi all - hope you're having PFDs.

Anyway, I just wanted to share a few (possibly random) thoughts and check if anyone thinks there is a link:

* The recent Times article indicates that CH sufferers probably have faulty Neurons! Is this hereditary? None of my family suffer from CH but my mother suffers from quite severe Manic Depression (Biploar disorder) and this is also a very cyclic illness. Any link?

* I'm left-handed and my pain is always in the right-hand side of my head... I noticed a lot of posts for people who suffer on the left-hand side. Any link?

* One of the posts suggests exercise can be an abortive but I find exercise (or any exertion - particularly in the morning) is the No.2 guaranteed trigger to Alcohol. I'm currently getting mostly pain-free days at the moment by doing next to nothing! - by that I mean, mostly lying down, don't get up too quickly, no stress (I'm off work), virtually no food (only in the afternoon/evening), and definately no alcohol!. I'm sure stress, eating, exercise and alcohol all must have some related affect on the body (but sadly these are all just the triggers not the causes - please can some find and cure the cause soon!?!?)

Cheers,

Tully.

p.s.
I've suffered from CH for about 17 years and tried various preventative methods but for some reason Verapmil didn't work well this time around - hence why I'm off work. I'm seeing a neurologist in a few days.

Title: Re: Thoughts on possible links..
Post by rick on Jun 20^th, 2002, 1:30am

Tully,

I am right handed, and my attacks are right sided. I have become a bit ambidextrous through this last cycle, as I began to favor my left side.

Heavy exertion is a definite trigger for me in cycle. Which sucks because I am a workout freak. Lack of proper sleep and adequate meals also aggravate my condition when in cycle.

Peace,

-Rick

Title: Re: Thoughts on possible links..
Post by ave on Jun 20^th, 2002, 6:01am

There is STILL no such thing as a definitive trigger list for CH
There is STILL no such thing as a definitive list of palliative treatments for CH

What's a trigger for one may help keep the pain down for another.
See: apply cold/apply heat
excercise/don't excercise
drink coffee/avoid coffee
avoid alcohol/take alcohol

The reason is, they have STILL not found the real and only cause of clusters.

We can speculate, even make educated guesses, but anybody stating they know, is faking it.

Title: Re: Thoughts on possible links..
Post by ave on Jun 20^th, 2002, 6:02am

btw, righthanded, and rightsided sufferer.

look at my sign-off and ponder...

Title: Re: Thoughts on possible links..
Post by Drk^Angel on Jun 20^th, 2002, 1:37pm

I'm right handed and get clusters on either or both sides. And the post article was dealing more with migraines being caused by faulty neurons. It didn't really make that statement for CH.

PFDAN....................... Drk^Angel