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        New Message Board Archives >> Medications, Treatments, Therapies 2002 >> MAD DOCTORS/PROFESSORS
        
(Message started by: Svenn on Jun 3^rd, 2002, 4:58pm)

Title: MAD DOCTORS/PROFESSORS
Post by Svenn on Jun 3^rd, 2002, 4:58pm

Got a clusterfriend here in Norway who his doc is refusing to give him oxygen at home,but expect him to drive about 65km to the hospital to get oxygen there and drive back the same distance.The crasy doc told him that its to dangerous to have oxygene at home.
I have written to the neuro-union here and told them that.No answer yet.
Hi can loan 1 bottle from me. for some weeks.Had a almost 30 minutes tlf call with this neuro.I`m the doc and you dont know about cluster was the answer.If the letter to the neuro-union does not help i`m gonna writhe to the healthdepartment here.
If that not are helping,i`m gonna find his mailadress and gonna ask you all to "bomb"his mailadress and begging him to prescribe oxygen to this clusterhead here in Norway.How many are willing to help me with that.I have profe that oxygen give hime the relieff he deserve.Hi has tested mine.

Your Friend in Norway

Svenn >:(

Title: Re: MAD DOCTORS/PROFESSORS
Post by Bob_P on Jun 3^rd, 2002, 5:15pm

I will, and I'll even put it on OUCH letterhead.

Title: Re: MAD DOCTORS/PROFESSORS
Post by Not4Hire on Jun 3^rd, 2002, 5:22pm

Hey Svenn.....I am in BIG TIME to mess with this idiot doctor. I will send him as many emails as I can....with documentation to back it up that oxygen is effective AND SAFE to treat clusters. GOOD FOR YOU to help your friend and if there is anything else I can do, please let me know. This is exactly the type of abuse we must stand up to.......Good luck my friend

You friend in America.....Steve

...and if your friend has an email address, I'd like to send him my support and best wishes for some relief....

Title: Re: MAD DOCTORS/PROFESSORS
Post by Linda_Howell on Jun 3^rd, 2002, 6:04pm

Svenn.........count me in on this. I'm just looking for a good fight. I have nothing else to do but click on a re-dial or whatever........What an not a very nice person!!!!!!!!!!!

Linda

Title: Re: MAD DOCTORS/PROFESSORS
Post by eyes_afire on Jun 3^rd, 2002, 6:11pm

Damn, it really bugs me that some doctors can be so arrogant! I will testify to the fact that O2 is effective and much safer than many other treatments. It's not really dangerous to keep in the house either, just a little common sense as with all things in life. That doc is either ignorant or arrogant. Svenn, your friend is lucky to have you as a friend.

Title: Re: MAD DOCTORS/PROFESSORS
Post by Mastifflvr28 on Jun 3^rd, 2002, 10:56pm

I'm there Svenn.
Good job on all YOUR hard work!!
Mast

Title: Re: MAD DOCTORS/PROFESSORS
Post by clusterdome on Jun 4^th, 2002, 1:04am

You can bet I'm in on this one my friend! >:(

He better get a Bigger Box! :o

PFDAN......................Ed

Title: Re: MAD DOCTORS/PROFESSORS
Post by rick on Jun 4^th, 2002, 1:18am

I'm in.

Title: Re: MAD DOCTORS/PROFESSORS
Post by Ann on Jun 4^th, 2002, 7:27am

I'm in!! Let me know when!

Title: Re: MAD DOCTORS/PROFESSORS
Post by dydsi on Jun 4^th, 2002, 8:01am

Whatever it takes. I'm in.

Title: Re: MAD DOCTORS/PROFESSORS
Post by kim on Jun 4^th, 2002, 8:07am

Svenn, you say he word and it's "Bombs Away".........!

Title: Re: MAD DOCTORS/PROFESSORS
Post by NotH20 on Jun 4^th, 2002, 9:49am

Running to the store now for email ammo.....I'M IN!!!!!

NotH20

Title: Re: MAD DOCTORS/PROFESSORS
Post by ave on Jun 4^th, 2002, 10:12am

Svenn, I will join anything to help another clusterhead, but might you not get heavier ammunition if you got a few doctors on your side?
Just wondering.

Title: Re: MAD DOCTORS/PROFESSORS
Post by scottwe on Jun 4^th, 2002, 9:27pm

Svenn,

I'm in without a doubt, but I would also suggest that your friend let his fingers do the walking and find another Neuro. Let me know when to lock and load.

Scott

Title: Re: MAD DOCTORS/PROFESSORS
Post by Svenn on Jun 5^th, 2002, 1:32am

VICTORY-VICTORY-VICTORY

Just got a phonecall from Arne who told me that this mad doc has reconsidered the decision about oxygen
He phoned him 5 minutes ago and said that the prescribtion was going by snailmail to him today.
1-0 to us over this "Doc"

thnx for all the support

Svenn

Title: Re: MAD DOCTORS/PROFESSORS
Post by rick on Jun 5^th, 2002, 2:28am

SWEET!

Title: Re: MAD DOCTORS/PROFESSORS
Post by kim on Jun 5^th, 2002, 7:45am

Glad to hear it. Best wishes to your friend Svenn! Way to go.

Title: Re: MAD DOCTORS/PROFESSORS
Post by NotH20 on Jun 5^th, 2002, 7:51am

Svenn - glad to hear such good news for your friend! ;D

Just remember if you need any of us to write, email, call, pester the hell outta that doc - just let us know....we're all willing to help out.

NotH20

Title: Re: MAD DOCTORS/PROFESSORS
Post by mustang on Jun 5^th, 2002, 7:08pm

Boy do I need you guys on my side with my nuro. Took me 6 months to get 02 from him. Now all he wants to give me is Topamax can't take it bad side affects. The only thing he has given me is cafogot, pred.,sancert and topamax, thats it and now he tells me he is at his wits end with me and is trying to find me a new nuro. It's been two weeks and not a word from him. If it weren't for 02 I don't know what I would do , >:(carry it to work with me everyday. Have nothing else to help me. As you have quessed I am cronic and have been for 3 years.
Thanks for listening.

Title: Re: MAD DOCTORS/PROFESSORS
Post by rick on Jun 5^th, 2002, 9:11pm

Mustang,

He's at his wits end with you? Get rid of him girl, get yourself a neuro that knows what they're doing. If you trust him enough to find you someone else, tell him you expect to be set up with a doctor that better understands your condition. Otherwise, do your homework, and question the next doc you see during the first visit so that you can decide whether they are right for you or not. I'm sorry you had to deal with that.

-Rick