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        New Message Board Archives >> Medications, Treatments, Therapies 2002 >> Info on CH
        
(Message started by: Greg_A on Apr 16^th, 2002, 9:26pm)

Title: Info on CH
Post by Greg_A on Apr 16^th, 2002, 9:26pm

Some good info here...

http://www.helioshealth.com/headaches/cluster.html

Does OUCH have a way that we can startin linking resources?

Title: Re: Info on CH
Post by Greg_A on Apr 16^th, 2002, 9:34pm

As i do my research on the web i will post the links in this thread so others can poke around if they wish.

Feel free to add some links of other info you find too..

http://abcnews.go.com/sections/GMA/GoodMorningAmerica/GMA010530Headaches_cluster.html

Title: Re: Info on CH
Post by Greg_A on Apr 16^th, 2002, 9:38pm

http://www.drkoop.com/dyncon/article.asp?id=9663

Title: Re: Info on CH
Post by Greg_A on Apr 16^th, 2002, 9:44pm

http://www.abc.net.au/rn/talks/8.30/helthrpt/stories/s42434.htm

This looks like an interview that was done with Dr Goedsby in London.

There is some contact info at the end of it.

Title: Re: Info on CH
Post by Greg_A on Apr 16^th, 2002, 9:51pm

Some of these are links i've had from previous searching around....

I think we need to corner Dr Goedsby with our imitrex needles until he fixes the pain :) OR we can all show up on his doorstep and help him find a cure...

http://news.bbc.co.uk/hi/english/health/newsid_380000/380497.stm

Title: Re: Info on CH
Post by Greg_A on Apr 17^th, 2002, 9:50pm

This article is about tooth extraction causing CH...

http://www.healthypages.net/news.asp?newsid=203

Title: Re: Info on CH
Post by Greg_A on Apr 17^th, 2002, 9:58pm

This is a search engine for ACHE (American Counsil Headache Education.

Type in "cluster" or any other word and see what you get... i have read alot on this site.

http://www.achenet.org/search/search.pl

Title: Re: Info on CH
Post by Bob_P on Apr 18^th, 2002, 5:14pm

I like the ACHE one. If you check their links, you'll find OUCH, the "ONLY" cluster headaches advocacy group in the world. Is everyone a member yet?
http://pahlow.net/images/ouch.gif

Title: Re: Info on CH
Post by maria on Apr 18^th, 2002, 7:32pm

Hey Greg,

just read about a 21 year old woman who died of Migraine related strokes and siezures on http://headaches.about.com/

so sad, Maria

Title: Re: Info on CH
Post by Greg_A on Apr 18^th, 2002, 8:55pm

That is sad Maria...imagin how she felt going through that.... :(

Here is a link for some different cluster info from about.com

http://headaches.about.com/sitesearch.htm?terms=Cluster&SUName=headaches&TopNode=3042&type=1

Title: Re: Info on CH
Post by Greg_A on Apr 18^th, 2002, 8:58pm

Headache Med Index

http://headaches.about.com/bl-all-meds.htm?PM=ss12_headaches

Title: Re: Info on CH
Post by Greg_A on Apr 18^th, 2002, 9:04pm

Here is some info on med usage.... there is a warning about Topomax that some may be interested in.

http://headaches.about.com/cs/medicationsusage/

Title: Re: Info on CH
Post by rick on Apr 19^th, 2002, 10:19pm

Thanks for all the info Greg. I had a neuro who wanted to put me on Topomax last month, and I was getting sick enough on Depakote and Doxepin, so I did not go that route. The above link makes me feel that much better about my decision. I am morally against human cloning, but would make an exception in Dr. Goadsby's case! -Rick

Title: Re: Info on CH
Post by eyes_afire on Apr 19^th, 2002, 11:55pm

DAMN! The legal medicines are much more dangerous than the illegal ones. Big brother is looking out for your health.... not! Sorry, I'm just pissed. >:(

Title: Re: Info on CH
Post by Greg_A on Apr 20^th, 2002, 8:26am

Not too mention that the "legal" meds are a hell of alot more EXPENSIVE than the "illegal" ones....