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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> Been a Good Run
        
(Message started by: notseinfeld on Apr 12^th, 2008, 3:17pm)

Title: Been a Good Run
Post by notseinfeld on Apr 12^th, 2008, 3:17pm

Writing this at a pucker factor of 10 as my best friend, the uber-reliable 02 is failing in its proven efficacy during the last 6 years. Had pain down to under 2 minutes leading a fairly normal life.

Noticing changes in the occipital nerve and both frequency and occurrence time.

RC seeds on order and surprising luck with Red Bull. Alternative treatment and a trip to the rain forest for your friendly neighborhood Shaman down the pike should these first solutions not work.

Has anyone taken a powdered form Taurine supplement and if so, what kind of results did you experience?

My thanks in advance,

nots

Title: Re: Been a Good Run
Post by E-Double on Apr 12^th, 2008, 3:27pm

Bummer Dave!

Never tried it my friend.
Hope it is quick and easy..

Best,

E

Title: Re: Been a Good Run
Post by lionsound on Apr 12^th, 2008, 4:07pm

Dave!!!!

sorry you are having a rough time.
I don't have an answer to your question, I wish i did...I just wanted to say hi :)

may you be well and Pain Free!

-Rori

Title: Re: Been a Good Run
Post by andrewjb on Apr 12^th, 2008, 4:24pm

"Barry_T_Coles", is yer man. he posted a brilliant article her not so long ago. andrew.

Title: Re: Been a Good Run
Post by nani on Apr 12^th, 2008, 8:47pm

Hiya lovie!!!! I miss ya!!!! :-* :-* :-*

I've used taurine supplements and someone else here has found them (along with calcium and magnesium) a pretty good prevent. It won't interfere with busting, either.

Are ya still hitting the O2 straight off the tank? Is it not working for you that way? Maybe a clustermasx type mask will help?
Here's a way to build your own:
http://www.mushys.com/O2/mymask.html

Don't be such a stranger, OK?

hugs and love, nani

Title: Re: Been a Good Run
Post by Linda_Howell on Apr 12^th, 2008, 10:27pm

Dave...where the hell you been? Being PF does not mean you can just go away, ya know?

I am sorry for the reason you're back though.

Never tried the powdered Taurine. I love my Rock Star too much.

Title: Re: Been a Good Run
Post by notseinfeld on Apr 13^th, 2008, 5:29pm

This is a splendid group! Nice to see everyone and thank you for responding. Indeed I have been too long away hunkered down in my psychological cave and wondering what the hell I should do with the balance of my existence. Surely it's not to suffer and toward that end I feel blessed that the straight-delivery of 02 has worked wonders for the past 6 years. I go now, kicking and screaming, to scratch out another form of relief.

At-bat: RC Seeds.

Wishing for pf living for all.

Title: Re: Been a Good Run
Post by Melissa on Apr 13^th, 2008, 5:32pm

Dave, good luck with the seeds. Tried them myself but found out the hard way that I cannot take any psychodelics due to mental health problems.

Hope they work for you!

:)mel