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        Cluster Headache Help and Support >> Medications, Treatments, Therapies >> I READ THIS, come on!!
        
(Message started by: coach_bill on Feb 11^th, 2008, 8:40am)

Title: I READ THIS, come on!!
Post by coach_bill on Feb 11^th, 2008, 8:40am

coach bill here. pain free 24 days, in those 24 days i have been looking like crazy at every possible link, to find a way or a differnt idea. how about this one. magic mushrooms to stop a cluster cycle. repeat MAGIC MUSHROOMS WILL STOP CLUSTER HEADACHES, they even said there is studies at harvard going on over this. when i was a kid yes i triped a few times( maybe 75). and it was fun, but come on. and everytime a cluster headache had me on my knees, wondering what the hell was going on in my head,and every time i had to wonder if all those trips were finally catching up to me. someone please tell me this is a joke. coach bill.

Title: Re: I READ THIS, come on!!
Post by Melissa on Feb 11^th, 2008, 8:49am

No, it is not a joke. Please check out http://www.clusterbusters.com

Title: Re: I READ THIS, come on!!
Post by coach_bill on Feb 11^th, 2008, 9:08am

has anyone here tried mushrooms and they stoped there cycle. ANYONE

Title: Re: I READ THIS, come on!!
Post by MJ on Feb 11^th, 2008, 10:01am

Probably only a few hundred maybe more have had any success with this.

70-80% success rates.

Title: Re: I READ THIS, come on!!
Post by tommyD on Feb 11^th, 2008, 10:21am

Yes, indeed, no joke, sure does work. And folks don't necessarily have to take enough to trip, about a quarter or a half of a recreational dose is enough: the "side effects" are at about the same level as a couple beers.

Many folks do this once a week for a couple weeks or longer and can break a cycle or supress the hits enough to get their life back.

And a similar substance (see posts here about RC seeds) works almost as well and has even less trip to it (for most folks).

Everyone is different and everyone's mileage may vary, but as MJ said, the success rate is pretty high.

Read the Clusterbuter site carefully, and avoid the shroms or seeds if you tend toward schizophernia - or if you're pregnant, but I doubt you're pregnant :)

I have stopped several cycles with psilocybin, and a few more with RC seeds.

Doesn't cost much either, compared with most prescription meds.

-tommyD

Title: Re: I READ THIS, come on!!
Post by birdman on Feb 11^th, 2008, 10:54am

I was a doubter at first myself. Now I am proof that it works. Read up on it. Read all of the clusterbuster website and know that it worked wonders for me.

Title: Re: I READ THIS, come on!!
Post by hotprestwich on Feb 11^th, 2008, 10:55am

i dont understand why people think natural remedies cant work but suringes full of chemicals do,
it baffles me, some people have contacted privatley to encourage the use of such drugs for my clusters, i didnt give it ago this cycle and opted for a natural remission,
but next cycle or even ive been told you can stop a cycle even starting by taking little doses maybe every 6 months, i guess it works like a preventative, its different for everyone, but the results of clusterbusters remedies seem amazing, im gonna give it ago id rather have a mild trip than a cocktale of chems.

Title: Re: I READ THIS, come on!!
Post by hotprestwich on Feb 11^th, 2008, 10:59am

if any drug is gonna trick the hyp-thingy in the brain (sorry dont know hows it called) its gotta be phycodelic,
i belive it tricks the brain back into remission mode. what i am interested in is the effects on chronic people,
how much does it help them?

Title: Re: I READ THIS, come on!!
Post by brewcrew on Feb 11^th, 2008, 12:09pm

Do you want it to be a joke? If so, ha ha! If not, keep reading.

There is a drug called methysergide maleate. It was marketed for years in the US under the name Sansert. It is chemically very similar to LSD. So far every time I've used it, it has stopped my headaches dead in their tracks within 24 hours. The problem with it is that you have to go off it for at least a month after using it for six months. Bad side effects - like fibrosis of the kidneys and heart valves.

Anyhow - go to the clusterbuster website. You're about to learn a great deal.

Title: Re: I READ THIS, come on!!
Post by coach_bill on Feb 11^th, 2008, 12:57pm

holy-shit!! i said 200 times already that i would be willing to do anything to stop those headaches. there's alot more for me to read on this one, but i dont think the wife is gonna go for it lol. just kidding she would do just about anything to help too. coach bill

Title: Re: I READ THIS, come on!!
Post by Guiseppi on Feb 11^th, 2008, 1:15pm

I am in Law Enforcement so it was not an option for me. From the reading I have done on it, the doseage you take is not a "hallucinogenic" dose. So you probably won't find yourself humming old beatles songs! ;)

It is suprising to me it has the success rate it has and that it seems to be so effective. But who'd have thought oxygen, energy drinks or lithium, would have the success they do.

Keep an open mind. Continue to run things by the board that you hear of. We can reply with a great deal of personal experience and save you from some of the patented snake oil cures going on out there.

Hoping you find some relief soon!

Guiseppi

Title: Re: I READ THIS, come on!!
Post by brewcrew on Feb 11^th, 2008, 1:29pm

Coach - It's not an option for me at this point as I work for a company that is governed by FAA and DOT regulations. As such, I am subject to random pee-pee tests, the results of which can determine my ongoing employment.

I'm not willing to put a 20-year career on the line, especially since other methods of prevention work pretty well for me.

But if it weren't for that little sticky wicket....

Title: Re: I READ THIS, come on!!
Post by Guiseppi on Feb 11^th, 2008, 3:01pm

In California, and I suspect most other states, it's a felony to grow or to possess it. There are some extremely limited exceptions in some states for the indian tribes who still use it as part of their religous rites. In California there is no exceptions to it being a felony, that I know of.

That being said, if you are growing a small quantity in your home, for personal comsumption, the odds are pretty slim they'll come looking for you. But understand going into it, you are taking a risk of running afoul of the justice system. Like Brew said, if you gotta pee in a cup, you could end up in trouble.

I was lucky finding lithium, cafergot and oxygen. With the occasional imitrex jab I can keep it pretty well under wraps. there was a time I would have tried the shrooms therapy and risked my career for a chance at finding relief! So I hear you loud and clear.

Good luck with whichever route you take.

Guiseppi

Title: Re: I READ THIS, come on!!
Post by Gator on Feb 11^th, 2008, 3:09pm

What Guiseppi said.

Shrooms are illegal, but spores are not. The online stores will sell you spores to grow your own shrooms. With the seeds, it is not illegal to have them. It is illegal to consume them.

You gotta evaluate the situation and do what you think is best for you.

Whatever way you decide to go, good luck.

Title: Re: I READ THIS, come on!!
Post by brewcrew on Feb 11^th, 2008, 4:02pm

on 02/11/08 at 14:31:25, coach_bill wrote:

no pee test for me, but it is illegal right? it is the way it looking anyway? but the web site shows you links where you can buy it and grow it. just got froze up when it came time to put coach bill on the order form ya know what i mean? what do u think guiseppi ?? am i gonna get in trouble for this?? i dont think i can score imetrex at the prison commisary. coach bill

You do understand that it is a really bad idea to get more specific than this on a public forum, right?

Title: Re: I READ THIS, come on!!
Post by tommyD on Feb 11^th, 2008, 4:23pm

In Pennsylvania, misdemeanor for possession of a small amount of psilocybin mushrooms, felony to "manufacture" (grow).

In most states, purchase or possession of spores (for educational and scientific purposes) is legal, in California and Georgia, not. One outfit that sells spores says they are for purposes of microscopy.

As Gator said, its okay to posssess seeds containing LSA, but for gardening purposes only, so okay to grow, but not to ingest, even to relieve cluster headaches.

I could be wrong, but I think the Native American religious exceptions are federal, as they are based on the First Amendment. And you must really be a member of an established religion recognized by the feds. Making up your own religion won't work, otherwise, there would be the First Church of Clusterbuster.

Everyone must determine the amount of risk they are willing to take, but few pee tests check for psilocybin, LSA or LSD - the test is too expensive, and the amounts ingested are usually so small (a few milligrams for psilocybin and LSA, less than a tenth of a milligram for LSD) and the metabolism so quick (gone in 48 hours) that most drug testing programs don't bother to look for them. Some might, however, so be careful.

-tommyD

Title: Re: I READ THIS, come on!!
Post by jace77 on Feb 11^th, 2008, 6:24pm

Dr Halpren at Harvard is conducting the study, he is a drug and alcohl abuse pys. I actually asked our neuo about this and one of the theories, he told me to bring him any literature I can find on it.

Title: Re: I READ THIS, come on!!
Post by coach_bill on Feb 11^th, 2008, 9:00pm

thanks for the pubic forum tip brew, forgot about that little thing for a moment. if the goverment knows this can help people with CH even only some people,why is it ingored. coach bill

Title: Re: I READ THIS, come on!!
Post by chewy on Feb 11^th, 2008, 9:12pm

If you find yourself at flea markets searchin desperately for black lights and old Doors posters you simply cut your dosage.

Seriously Coach, used the proper way its helped a lot of people who were either at the end of their rope or prefer not to use pharmacuticals.

Worth a read.

Title: Re: I READ THIS, come on!!
Post by tommyD on Feb 11^th, 2008, 9:26pm

jace -

The is the only formal research completed so far, but more is on the way:
http://www.clusterbusters.com/research.htm

Title: Re: I READ THIS, come on!!
Post by kingsiren on Feb 11^th, 2008, 10:51pm

hey coach, for what it's worth alot of us sufferers have had really good results from seeds, for me it was the RC seeds that did the trick. I just ended a cycle 2-3 weeks early without any prescription medicines (actually thats not true I had to use imitrex once during the first week of my cycle) and I am a true believer, I am confident that with the proper maintenance dosing I am finished with clusters for atleast a few years.

Also, the doses required for rc seed treatment are completely sub recreational. No trips, not even a buzz.

Title: Re: I READ THIS, come on!!
Post by Superdave on Feb 12^th, 2008, 12:47am

Talk to me Brewcrew.
I'm on sansert for about 9 weeks now. Do you know more about this stuff, will the magic mushrooms mature before my 6 mos. treatment is over?
I'm thinkin that sounds alot better than any of this other nonsence the system has put into my body!

Hi everybody I'm Superdave, new cronic guy of 5 1/2 years

Title: Re: I READ THIS, come on!!
Post by George_J on Feb 12^th, 2008, 1:44am

on 02/12/08 at 00:47:36, Superdave wrote:

Talk to me Brewcrew.
I'm on sansert for about 9 weeks now.

Didn't do anything good for me, but others have reported positive results.

YMMV.

Best wishes,

George

Title: Re: I READ THIS, come on!!
Post by tommyD on Feb 12^th, 2008, 6:04am

superdave -

The hard part about this is that many of the usual cluster meds will interfere with the Clusterbuster method. This includes sumatriptan and prednisoine especially but also Topomax. See: http://www.clusterbusters.com/faq.html#4

Always check with your doctor before dropping or changing a medication, of course, but clusterbuster seems to work best when folks "detox" from it for five days or so. Oxygen and taurine drinks are good abortives while detoxing.

Read www.clusaterbuster.com thoroughly, particularly the mushroom faq and the LSA faq - there's a lot to know.

-tommyD

Title: Re: I READ THIS, come on!!
Post by brewcrew on Feb 12^th, 2008, 8:07am

on 02/12/08 at 06:04:38, tommyD wrote:

What he said. If you're in the middle of a cycle, detoxing off your current meds can be a real suck before dosing the clusterbuster way. I've never had to go with the clusterbuster method because methysergide has worked well for me (along with lithium).

PM me if you have any questions I can answer. My schedule is nuts this week, so don't be discouraged if it takes me a day or two to get back to you.

Title: Re: I READ THIS, come on!!
Post by jace77 on Feb 12^th, 2008, 11:26am

on 02/11/08 at 21:26:29, tommyD wrote:

jace -

The is the only formal research completed so far, but more is on the way:
http://www.clusterbusters.com/research.htm

thank you!

Title: Re: I READ THIS, come on!!
Post by thebbz on Feb 12^th, 2008, 2:12pm

Quote:

has anyone here tried mushrooms and they stoped there cycle. ANYONE

Yep. More than once. RC seeds as well. Seeds wont abort the episode as well as shrooms is seems. Demon ass kicker for sure.
thebb

Title: Re: I READ THIS, come on!!
Post by Gator on Feb 12^th, 2008, 11:02pm

You can order Rivea Corymbosa, Hawaiian Baby Woodrose and Morning Glory seeds for gardening purposes and that is totally legal. As soon as you prepare them for consumption they become an illegal drug.

Please read the ClusterBusters site (http://www.clusterbusters.com) for specifics on preparation and dosing.

Title: Re: I READ THIS, come on!!
Post by MJ on Feb 13^th, 2008, 1:50am

on 02/12/08 at 20:00:19, coach_bill wrote:

So shrooms off the street dont work?? and if your on meds like topamax it wont work either? Gator didnt we say seed were legal to have or get? and if im reading this right if you just take it thats it, bye bye clusters? man im game. please keep the info comin. coach bill

Hey coach.

Shrooms off the street--- you never know what your getting for sure, your contributing to an illicit trade and you risk jail time. Best to follow clusterbuster.com advice about all things psylocibin and LSA.
Rivea corymbosa seeds (containing LSA) are the mildest and can be purchased legally from many entheogenic shops and sites.

If you just take and bye bye---- whoa its not allways so easy with RCseeds. Like all medications There are many cautions to be aware of.
For some folks they can be so lucky as a single dose and thats it. For most it can take multiple dosing regimens over several weeks. and many others dose monthly to keep CH at bay.
If one can catch the first CH symptom of a cycle and dose at that time then one can possibly avoid the whole cycle. Most do experiment a bit before reaching success.

Of course there are those who the treatments do not work for.

Heres a blurb on the RCseeds.
http://www.iamshaman.com/eshop/10Expand.asp?ProductUID=1853&ProductCode=RVC-50

I see the prices have gone up. must be the increased demand from C-heads. 500 seeds could last a couple of years at least and make a nice garden as well.

Title: Re: I READ THIS, come on!!
Post by thebbz on Feb 13^th, 2008, 10:50pm

I wouldn't go lookin for the street variety. ;) Would you buy your topomax off the street?
Study up first.
all the best
thebb

Title: Re: I READ THIS, come on!!
Post by kcopelin on Feb 14^th, 2008, 10:04pm

What they all said... :D I tried RC seeds and baby woodrose-nothing. There is a study going on about these treatments. They really have helped alot of people, who shall remain anonymous. 8)

PFDAN
and keep reading!
kathy

Title: Re: I READ THIS, come on!!
Post by coach_bill on Feb 15^th, 2008, 7:00pm

thanks for all the info. everyone!! i feel like i know more than a doctor!! and just so everyone knows from the info and PMs i recieved there is alot more people who belive in the shrooms but the RC SEEDS seems to also have a great affect for many suffers, its about 65% to 35% in favor of shrooms but all claimed success with there methods. just for gp is there anyone who has tried either or the other and it hasnt worked? so thanks everyone for info. also i coach 10u girls tournament fastpitch. 90 games in the sun starting in mid april, and the reason im pushing all of you guys so hard for anwsers is this TOPAMAX is garbage for me. i cant remember nothing, ive lost weight, my mood changes on a dime, and so on. 10 year old kids need postive, stable influence, not ups and downs, not a coach who is on a yo-yo string thats why i need to find a natural treatment, something other than this. my body just dont react well to perscription drugs other than the imitrex, but i dont have to much of a chioce at times with that. thanks again coach bill.

Title: Re: I READ THIS, come on!!
Post by coach_bill on Feb 15^th, 2008, 7:07pm

sorry kcopelin just seen your post thanks for your info..

Title: Re: I READ THIS, come on!!
Post by Poli on Feb 22^nd, 2008, 2:10pm

Sorry, I'm late. Coach bill yes, psilo is the best treatment with less secondary efects I have tried
in 10 years of CH, and I keep on it, and I'll never
(nearly sure of it) change it. Clusterbusters and O2
is the perfect combo.
Saludos
Poli

Title: Re: I READ THIS, come on!!
Post by Sandy_C on Feb 24^th, 2008, 2:28pm

Hi Coach

I'm an rc seed believer. Stopped two cycles dead in their tracks, and outside of a couple of breakthru hits, I'm going on 2 years PF. Only other thing I use is oxygen, and my tank is getting really dusty.

Sandy

Title: Re: I READ THIS, come on!!
Post by coach_bill on Feb 26^th, 2008, 8:06pm

i tried the rcseeds 4 days ago they seem to have wiped out the shadows i was feeling on the spot.. . no more preds, no more topamax. IM FREE!!!! at least for now. i got my 02 tank ready and i will follow thourgh with the second treatment in 3 more days. im not sure, because this has never happened.. but i think round 1 went to me.!!! coach bill. ;;D

Title: Re: I READ THIS, come on!!
Post by Redd on Feb 26^th, 2008, 8:30pm

Welcome to the dark side....

...we have cookies....

J/K

You are on the road to getting your life back my friend.

Title: Re: I READ THIS, come on!!
Post by Pinkfloyd on Feb 26^th, 2008, 11:52pm

on 02/26/08 at 20:30:30, Redd wrote:

...we have cookies....

;;D

Glad to see you brought in the closer. ;)

Bobw

Title: Re: I READ THIS, come on!!
Post by outofcommission on Feb 29^th, 2008, 1:34am

hey coach, the shrooms worked for me too buddy. one time dose took about a week or two. since i drive a truck and i get drug tested i really had to weigh that one out. if i crashed and killed a bunch of people because of a severe attack while i was driving i think that my condition would be hard to sell to a judge and jury. so over the holidays while off duty i dosed. might as well, i couldn't drive or do anything else. man i'm really glad your out of pain. having a class to teach must be tough. this news is awsome! [smiley=headbanger.gif] [smiley=headbanger.gif] [smiley=headbanger.gif] [smiley=headbanger.gif]

Title: Re: I READ THIS, come on!!
Post by rickyshot on Feb 29^th, 2008, 1:15pm

I have heard people say they would drink their own urine if they thought that would work. But tell em you are using shrooms, or seed and they are the ones that does the tripping. Read on the site get you info. A lot of illegal "drugs" ie grass are a lot less dangerous than most of your perscription drugs. You ever read a PDR. Every drug has a huge list of potential side effects. Let us get real. Anything natural or chemical can be used for good or bad and can be potentially dangerous if used the wrong way. That is why it is important to read up on all your treatments and make an informed decision and be responsible for your decision. My neuro said OMG you are taking LSD then winked. He said he did not hear that and reviewed my meds and gave me the unofficial clear on my busting. The dose as said above at worst is the eqivalment of two to three drinks if you get a buzz at all.

For me it was a miracle and Godsend. But then this things are natural and therfore medicines that God has made.

When we use medicines recreationally then we enter into the realm of abuse and that is another issue, legally, morally, and healthwise physically and mentally.

I have been on Prednisone too many times to count. You could not get a more powerful , good yet dangerous drug. I always do a liver detox after a course of that.

We should be mindful of what we put into our bodies period whether it is food, drink, chemicals or natural substances or herbs. It all has uses and we owe ourselves to eductate ourseleves about the uses. Isn't that what these boards are for. To learn. What works for some might not work for others.

DO NOT JUDGE OR CAST STONES. If you ever had anything over a kip 5 you know the deal of this horror.

Title: Re: I READ THIS, come on!!
Post by coach_bill on Feb 29^th, 2008, 6:08pm

thanks all, ricky i had my share of pred tapers, just got to join in on the topamax before i found out it would make me lose 15 pounds and remember nothing, lets not forget about all the blotches that have just started to fade.. YES i said it too. i would give anything, sell my home, even my soul to make those god awful headaches stop. and if there is treatment ( i cant prove, i only know all my shadows are gone it has given me enough to know when they come back what i should. i told everyone who would read my post i needed to find a different way and hopefully i have. coach bill..

Title: Re: I READ THIS, come on!!
Post by brewcrew on Feb 29^th, 2008, 7:49pm

Coach - I'm only going to say this once. Nobody's upset that you found a magic bullet. Why would we be? I think everybody wishes we could do what you and others do to get this god-forsaken monkey off your backs. All anybody has tried to do is keep the language on this PUBLIC board vague enough so as not to arouse any suspicion.

I wish to God I could take the buster approach, but I work for a company that is governed by the rules of the FAA and the DOT. As such, I am subject to random pee-pee tests. I hear lots of folks say, "Don't worry. They're not testing for that stuff anyhow." Maybe not. But I'm not about to throw a 20-year career down the shitter on the off chance that they are. Other methods of dealing with the monkey work fine for me, so I'm more interested in keeping my job.

It's all a matter of priorities. Nobody's pissed at you. If anything, there might be a little bit of jealousy. But I even doubt that.

Title: Re: I READ THIS, come on!!
Post by coach_bill on Feb 29^th, 2008, 8:07pm

I see. and it is noted.. i really didnt think about someone being upset till it was said in another post. i dont understand why they would be like you said.. even i cant 100% say it will prevent anything, because i was already off preds and only 100mg of topamax so was easy to detox, and i was near the cycle end just dealing with out of control shadows and low level CH. but it has stopped the shadows and low level CH. I DONT WANT TO UPSET ANYONE HERE. everyone has been so helpful, and i learned so much here, after all i found this topic..and i will keep in mind this is public board from now on. coach bill

Title: Re: I READ THIS, come on!!
Post by brewcrew on Feb 29^th, 2008, 10:00pm

Don't make me say it again. ;)

You're part of the family now. Sorry, but you're in too deep to extricate yourself. Someone in the family was in a position to help you. Perhaps someday you'll be able to return the favor. ;;D

Title: Re: I READ THIS, come on!!
Post by Guiseppi on Feb 29^th, 2008, 10:32pm

What Brew is saying....grab a pair of oars and keep on rowing! Takes a lot of people to keep this boat going straight! Damned glad to hear your getting relief. Anyone beats the beast we all win a little!

Guiseppi

Title: Re: I READ THIS, come on!!
Post by MJ on Feb 29^th, 2008, 10:53pm

on 02/26/08 at 20:30:30, Redd wrote:

...we have cookies....

This has been my mission since I came here to find out just excactly where they have hidden the cookies...

It's like prying secrets out of the Keebler elves.

I now suspect that Red may be the Keebler leader. :)

Title: Re: I READ THIS, come on!!
Post by kcopelin on Feb 29^th, 2008, 11:08pm

Way to go Coach! Glad you're catching a break!
I still haven't found the cookies either....

kathy

Title: Re: I READ THIS, come on!!
Post by Kirk on Mar 1^st, 2008, 3:34pm

on 02/26/08 at 20:30:30, Redd wrote:

Come to the dark side....

...we have cookies.

OK Redd, who has been feeding you the Linux sayings?
http://img.photobucket.com/albums/v285/Kirk511/wlcmtothedrksde.jpg

Come across with the cookies, or I'll bring Ringo over to terrorize you next time we come up.
http://img.photobucket.com/albums/v285/Kirk511/EasterVisit156.jpg
The little 20 pound Burmese mutant likes Oatmeal cookies.
[smiley=smokin.gif]

Title: Re: I READ THIS, come on!!
Post by brewcrew on Mar 1^st, 2008, 3:38pm

on 03/01/08 at 15:34:27, Kirk wrote:

The little 20 pound Burmese mutant likes Oatmeal cookies.

That's messed up.

Title: Re: I READ THIS, come on!!
Post by coach_bill on Mar 1^st, 2008, 6:56pm

sweet... you know, i still have not gotten any of those damn cookies myself.. does it mean now that ive clusterbusted i get to make the cookies.. that cat would love my NEW cookies.. lol.. keep it comin. coach bill